Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Supplements & Recomendations by the Autism Research Institute

Posted by on Nov. 14, 2007 at 1:46 PM
  • 14 Replies
  • 442 Total Views
This are the recommendations by the Autism Research Institute. Not everything listed here will work on every child, so its up to us to try different things until we find what helps our kids.

Improve Diet (veggies, Meats, organic)
Food Allergies
GFCF Diet
Vitamin/ Mineral supplementation (Super Nu-Thera from Kirkman Labs)
High-Dose Vitamin B6 & Magnesium
Essential Faty Acids
Gut Treatments
  • Anti-fungals
  • Anti-virals
  • Probiotics
  • Digestive Enzymes
Amino Acids
Melatonin (at night time for sleep)
Thyroid Supplements
Sulfation
Glutathione
Chelation (DMSA with ALA)-reported improvement in 73% of cases
Immune System Regulation
HBOT (hiperbatic oxigen therapy)
by on Nov. 14, 2007 at 1:46 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
tiredmom07
by New Member on Feb. 21, 2008 at 1:26 AM
The GFCF diet is so hard. Do you use it for your child.
What of those things listed have you used and how have they worked?
Tiredmom07
Carey3
by New Member on Feb. 21, 2008 at 8:53 AM
My Daughter is almost 100% tube fed. She licks crackers. Eats pop corn and some baby food. Any clue on how I can follow a recommended diet? It is so hard when I hear all have to do is change her diet and I will have huge improvements when I don't know how to even start.
mickiesmom
by Group Owner on Feb. 22, 2008 at 2:23 PM
I couldn't beging to imagine what it must be like for you having to feed her through a tube, but did you ever try forcing her to eat. I did that with Mickie when the tube was mentioned and how he eats. His food is still blended, because he doesn't chew, but he eats never the less.
It took me months, but it was worth it.
If this is not possible for your little girl, whatabout milk free formula. Is there such a thing. In Mickie's case he is on no soy too.
Have you ever had an immune panel done on her. Tha't one way to find out if she is even supposed to be off milk.
Mickie has selective IgA deficiency and high IgE (heis not supposed to have dairy).
mickiesmom
by Group Owner on Feb. 22, 2008 at 2:30 PM
Mickie has been on GFCF since he was five. It stopped his chronic diahrrea and some of his pain.
I have tried everything on that list. At the moment he is not on the HBOT treatments. I did one treatment, but I'm reluctant to doing 40 treatments all in a row.
I saw the most improvement with the diet changes and the antivirals and antifungals which he is on right now.
Carey3
by New Member on Feb. 22, 2008 at 3:22 PM
Victoria is on a soy based formula. She gets 2 ounces every half hour. There is no force feeding her. I can force brush her teeth but it takes a while. When I tried to force feed her she choked or vomited. Then screamed and hit her self. She does eat baby food, puddings, yogurt, soft thing when she feels like it. We have tried everything. We had to get the feeding tube or she would have starved to death. Before she developed Autism she ate very well. She could chew anything. That left with her speech. I really wish someone could figure out this illness. I HATE AUTISM!!!!!
mickiesmom
by Group Owner on Feb. 23, 2008 at 7:51 PM
What part of the country are you in. I bet she could benefit from visiting Thoughtful House hospital in Texas. It is run by Dr Wakefield from the United Kingdom. I don't know if you have heard about him. He was the Gastroenterologist that found vaccine strain measles virus in the gut of autistic children.
Even if you can't go to thoughtful house, try to get her to a DAN doctor, preferably an MD. Mickie has done so much better since being under a DAN doctor's care. I would hightly recomended to everyone here.
Your daughter was probrably not supposed to be vaccinated just like my Mickie. He was born with an immune deficiency and I didn't find out until he was 5 years old.
Have you ever had an immune pannel done on her? She was premature right? If she was-then she was probably immune compromised and shouldn't have had any vaccines, but of course doctors don't tell us this things and once our kids get damaged-we are on our own.
Google autistic enterocolitis, which is what I know Mickie has.
How are your daughter's bowls movements? Do you know if she has Acid Reflux. Mickie did for years and the poor little thing would sleep sitting up, because it was to painful to lay down.
Do you know if she is lead and Aluminum toxic, because those two will interfear with chewing and muscle tone and talking. Mickie is toxic with both of these.
mickiesmom
by Group Owner on Feb. 23, 2008 at 7:53 PM
This thing about hitting herself sounds like a gut issue. Like she is in pain.
Carey3
by New Member on Feb. 24, 2008 at 8:49 PM
I haven't any idea if Victoria has any of theses things but I am on my way to find out. She did have acid reflux as a baby and toddler and was on meds for it. She also does not go to the bathroom unless she has miralax daily. As long as she has it she doesn't have any problems. It is hard with her because of all her other Medical problems. I am pretty sure the hitting comes from frustration. When she wants something she can't tell me. She is often bored. She needs to be active all the time. Winters are hard because of snow storms and the cold we often have to find at home indoor things to do. Some days even though I have shaving cream for the table and rice and water tables she just doesn't want to do theses things and can't understand why she isn't going out. Thank you so much for all the info. I am going to find someone to do these tests so I have answers. I will keep you posted. Thanks again ~ Carey


tiredmom07
by New Member on Apr. 23, 2008 at 11:39 PM
Will any of the items you listed work without being on a gfcf diet. The diet is so hard im really not sure if we will do it. Also he seems to be alot better since we just eleminated him drinking milk. What should a parent do when they cant afford a DAN Dr or other specialist. Its not fare. Please let me know
Thanks
Tiredmom07
mickiesmom
by Group Owner on Apr. 24, 2008 at 2:06 PM
I know I sound like a broken record, but I can't  enfasize enough how important diet is. You mentioned he is off milk, so that is big step. Kids don't come with instructions and when something like autism is added to the mix, then it gets even more complicated. Hang in there!

If you can't afford a DAN, you can just get him over the counter supplements. For every prescription medication there is a natural alternative. I will post some really good imformation that explains it all this in detail. Most autism treatments are natural anyways. You don't need a doctor for that. That's when forums like this one and many other come very handy, becasue there are thousand of us all willing to share information and help others, because we have all been there.

Zurama


Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)