Looking for info, any Moms of girls with Retts or Fragile X?
My oldest daughter is 10 1/2, severely autistic with lots of seizures. Lilly was tested for all kinds of genetic disorders when she was first being diagnosed. Her doctors told us they were certain she had a genetic disorder, but everything came back negative. Now eight years later, still non verbal, not really potty trained and starting to have more problems instead of less. Lilly is more disconnected then she has ever been, she's more angry, more self injurious, they want to do testing for Retts and Fragile X and maybe more, again, the tests are better now. Anyway, I was wondering if anyone could give me some info, if this sounds anything like anyone else's child. Any help would be appreciated. Thanks.