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intractable epilepsy and developmental delays

Posted by on Sep. 14, 2011 at 10:09 AM
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Hi. My son is 7 months old and was diagnosed with hypotonia and intractable epilepsy after his 2 month stay in the NICU at Vanderbilt Children's Hospital. He hasn't shown much progress in the last 5 months and I'm just looking for people to talk to who have been through and are going through what we are. 

by on Sep. 14, 2011 at 10:09 AM
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Replies (1-2):
SareyF
by Member on Sep. 14, 2011 at 6:48 PM
I'm so sorry mama. Welcome to the group. I wish we were all here under better circumstances...this group is great. A little slow at times, but the moms here have been super helpful.
I'm Sarah. I have a 4 year old with epilepsy. She has seizure free for a year next month through avoiding triggers and medication.
I don't know much about your situation but feel free to hit me up if you need a shoulder or anything.
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Mo-Mommy357
by New Member on Oct. 6, 2011 at 1:03 PM

Hello, My son is 12 but he also has hypotonia/cerebral palsy and Severe intractable Epliepsy.  Feel free to message me any time

TAKE CARE

MONIQUE

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