my son was just diagnosed as epileptic.

[gypsy_rose]

He is 7 years old and has had 3 seizures in 2 weeks. Though I found a trigger. All three times he was woken up. these are some photos from his seizures

This is from his third seizure when he bit his lip

These photos are from his FIRST seizure. (down 14 steps ALL on his face not a single broken bone!)

[cat331]

I understand your worried. I have had Epilepsy since I was about 7. Is your son on any medicine? Trial and error for me before I had surgery. I tried so many meds that they ran out. Any questions you have, I will help you the best I can.

[02nana07]

 That is the same trigger my son has we don't wake him ever we let him wake on his own now. 

[gypsy_rose]

how do you avoid waiking him up?

Quoting 02nana07:

 That is the same trigger my son has we don't wake him ever we let him wake on his own now. 

[gypsy_rose]

thank you. he has a script buthey want to wait for more tests.

Quoting cat331:

I understand your worried. I have had Epilepsy since I was about 7. Is your son on any medicine? Trial and error for me before I had surgery. I tried so many meds that they ran out. Any questions you have, I will help you the best I can.

[SareyF]

It's hard. :( My dd was diagnosed spring 2010. My dh had epilepsy and my fil does. My sister had Lennox Gastaut. Between meds and the ketogenic diet, all have found relief or been cured. Have hope and fight but accept. It gets somewhat easier in time, though it's always scary.

[mcphersonkj]

My son was diagnosed January 2 2010 he had just turned 5. He is now 7 years old and on his 3rd tupe of meds and he is doing great. He goes to school, plays sports, lives everyday life as a normal child. We found a new doctor in April of his year who did some new test and he figured out he exact type of epilepsy and seizures my son has. He new medication has been great.
I would find a specialist and go from there. We have been to 3 specialist at two childrens hosptials. We no drive 3.5 hours to his doctor but the drive is well worth the time and money. If you have any questions I will do my best to anwser them for you.

[gypsy_rose]

dont supose you leave near mass? LOL I currently am taking my son to hasbro hospital.

Quoting mcphersonkj:

My son was diagnosed January 2 2010 he had just turned 5. He is now 7 years old and on his 3rd tupe of meds and he is doing great. He goes to school, plays sports, lives everyday life as a normal child. We found a new doctor in April of his year who did some new test and he figured out he exact type of epilepsy and seizures my son has. He new medication has been great.
I would find a specialist and go from there. We have been to 3 specialist at two childrens hosptials. We no drive 3.5 hours to his doctor but the drive is well worth the time and money. If you have any questions I will do my best to anwser them for you.

[mcphersonkj]

No, sorry we live in Tennessee.

Quoting gypsy_rose:

dont supose you leave near mass? LOL I currently am taking my son to hasbro hospital.

Quoting mcphersonkj:

My son was diagnosed January 2 2010 he had just turned 5. He is now 7 years old and on his 3rd tupe of meds and he is doing great. He goes to school, plays sports, lives everyday life as a normal child. We found a new doctor in April of his year who did some new test and he figured out he exact type of epilepsy and seizures my son has. He new medication has been great.

I would find a specialist and go from there. We have been to 3 specialist at two childrens hosptials. We no drive 3.5 hours to his doctor but the drive is well worth the time and money. If you have any questions I will do my best to anwser them for you.

[Mipsy]

Waking and falling asleep are very common triggers for seizures our neuro has told us. My sons are triggered by both and he has them in his sleep at night too.

[cat331]

I have had epilepsy since I was 7 and actaually just published a book on growing up with epilepsy.

It may be good for you to read. It also explains my different seizures and my growing up with epilepsy.

My book at Lulu.com and is entitled Nuerological Disorders: A Bind for Strong Mothers

I think it will good for you to read.