Hello, my youngest daughter is 3 years old and has seizures. The first one was so mild and there was no twitching or jerking that I thought she just passed out from exhaustion since it was bed time and she had a long day. The second one was at bedtime too. We were reading a book and she suddenly said, "Mommy!" I looked.down and her hands were like claws and her lids were fluttering. I've never seen anything like it. She was like a rag doll and groaning and gurgling. We called 911 and ER said nothing major caused it.
Today she saw her new neurologist for the first time. Her eeg was normal bit they want to do another one next week after we've kept her up and woken her up early. They want to start a medication that is known to cause mood changes that may make her act bad. Then if that happens they want to switch to a different med that may be hard on her liver and kidneys so they'll have to do monthly blood work.
I'm a wreck over this. I have no basis for knowledge. I've never known anyone with seizures and so I've joined this group to get a support system. I need someone to tell me it's going to be ok. I'm scared and I just don't know what to expect. My daughter is only 3 so I think it will be a while before she's old enough to tell me it's about to happen. How do you guys deal with it? I need some encouragement.
on Sep. 26, 2012 at 4:35 PM