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Experimental surgery at CCHMC, developed Absent Seizures plus more

Posted by on Jan. 10, 2013 at 10:42 PM
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I ask that you please share my daughter, Hailey Reuter's story. She was diagnosed with simple Metopic craniosynostosis at 4 months of age and underwent an experimental surgery at 6 months of age. It has been a very long journey and continues to be. She has multiple health issues from it. We were never told nor ever told even after the fact by CCHMC. She developed absent seizures at 14 months of age.

Included is a video with detailed pictures and her medical documentation.  

http://www.youtube.com/watch?v=6jsfWWB3f2E

Thank you in advance!!

by on Jan. 10, 2013 at 10:42 PM
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