Experimental surgery at CCHMC, developed Absent Seizures plus more
I ask that you please share my daughter, Hailey Reuter's story. She was diagnosed with simple Metopic craniosynostosis at 4 months of age and underwent an experimental surgery at 6 months of age. It has been a very long journey and continues to be. She has multiple health issues from it. We were never told nor ever told even after the fact by CCHMC. She developed absent seizures at 14 months of age.
Included is a video with detailed pictures and her medical documentation.
Thank you in advance!!