PARENTING CHILDREN WITH GENETIC DISORDERS Group

Welcome to CafeMom

join our community and talk to other moms, share advice, and have fun!

Email:

Password:

(minimum 6 characters)

Screen Name:

Birth Date:

We won't show your age or birthday to anyone unless you want us to!

Send me email updates about messages I've received on the
site and the latest news from The CafeMom Team.
By signing up, you certify that you are female and accept the Terms of Service and have read the Privacy Policy

PARENTING CHILDREN WITH GENETIC DISORDERS

About PARENTING CHILDREN WITH GENETIC DISORDERS

THIS GROUP IS FOR MOM'S WHO ARE DEALING WITH THE UPS AND DOWNS OF HAVING A CHILD OR CHILDREN WITH A GENETIC DISORDER. I KNOW HOW DIFFICULT IT IS TO DEAL WITH MULTIPLE DOCTORS AND MEDICINES AND DEVELOPMENT DELAYS. THIS IS OUR PLACE TO TALK, VENT, AND DO WHATEVER IS NEEDED TO FEEL BETTER ABOUT OUR... MORE

To see or post to all forums: Join Now!

General Discussion

Title	Replies	Last Reply
OUR STORIES!! by luvmy002girls Mar. 31, 2007 at 10:08 AM	20	Apr. 20, 2010 at 7:45 PM by deborahlat
WELCOME!! by luvmy002girls Mar. 18, 2007 at 5:29 PM	10	Aug. 22, 2008 at 4:08 PM by Tracelyn28
My baby has Infantile Refsums Disease by BellaMama96 Jul. 30, 2007 at 9:30 PM	3	Aug. 10, 2011 at 5:55 PM by luckymum9905
Information by dixrod Jun. 26, 2011 at 7:50 AM	0	Be the first to reply to this post. »
new here son with 1Q43 deletion by babyj222 Aug. 14, 2008 at 4:12 AM	1	Jun. 17, 2011 at 6:23 AM by dixrod
Digeorge Syndrome...Need Advice! by KaetlinC Aug. 24, 2009 at 4:37 PM	0	Be the first to reply to this post. »
WHAT WOULD YOU THINK?????? by Sissy_Girl Jun. 18, 2009 at 11:04 PM	4	Jul. 3, 2009 at 9:33 AM by momeeofmax
Important question by supermomofgirls Jun. 18, 2009 at 8:58 PM	0	Be the first to reply to this post. »
mcad by KnJsMom06 May. 25, 2009 at 11:59 PM	0	Be the first to reply to this post. »
saethre-chotzen syndrome by shreveskids Apr. 20, 2009 at 11:39 AM	0	Be the first to reply to this post. »
MPS1/Hurler Syndrome by bcuzyouluvme Sep. 18, 2008 at 9:40 AM	1	Sep. 22, 2008 at 5:11 AM by sarah_ray06
erythromycin for acid reflex by babyj222 Aug. 26, 2008 at 2:58 AM	2	Sep. 4, 2008 at 2:56 AM by babyj222
Williams Syndrome by LaceMom Mar. 9, 2008 at 12:54 PM	9	Jul. 28, 2008 at 1:32 PM by tiaragwin
My doctor said my daughter had a "Fairy Face" by UnaRubia Jun. 5, 2008 at 9:11 PM	9	Jun. 25, 2008 at 9:43 PM by UnaRubia
Finally a diagnosis by Deena8178 Jun. 4, 2008 at 4:20 PM	3	Jun. 10, 2008 at 2:16 PM by Deena8178
need advice on how to raise funds for a test by jacessa Apr. 23, 2008 at 9:31 PM	1	Apr. 24, 2008 at 1:29 AM by mccat777
possible spinal muscular atrophy kinda freaking out by CamdensMommy Apr. 22, 2008 at 8:56 PM	1	Apr. 23, 2008 at 10:19 AM by Brknwngs02
New here... I have a son that the Dr's can't diagnose yet by Deena8178 Apr. 19, 2008 at 5:11 PM	3	Apr. 20, 2008 at 11:13 PM by Deena8178
up all night by mastuemke Apr. 6, 2008 at 11:10 PM	3	Apr. 10, 2008 at 2:38 PM by mastuemke
Hi! New here with some questions. by Brknwngs02 Apr. 3, 2008 at 8:42 PM	3	Apr. 4, 2008 at 9:29 PM by lillmanjb