Update on Joycelyn(Jacy) PLEASE SAY A PRAYER FOR MY ANGEL

[precious_moment]

Hey guys,I am so sorry it has taken me so long to get an update posted.We have been going crazy over here.As you all know we have been battling one thing after another with my Jacy.WE have been in and out of the hospital. Sunday 7/12,I noticed that Jacy was running a fever,I gave her tyl.,and just watched it,while she was napping,she woke up screaming and throwing up massively,and had diarrhea.I called her Dr to try and get her in,but the 24 hr service couldn't get me in to see him until Wednesday morning,I thought virus or something,so i was like ok,I guess I will take it.She threw  up for 2 days,but they said since she was getting her feeds,that she should be ok until Wednesday.Well Tuesday,I had to go get meds filled,and check my mail,I put her in the van like I always do,i noticed she was very sensitive on her tummy,again(stupid mommy)I thought because she had been throwing up,she was just sore.Well when I got to the post office7:00pm,I went to unload her as I always do,took her IV poll out first,set it on the ground,unbuckled her,picked her up,and stood her inside the van to make sure she wasn't tangled up.I picked her up into my arms and she started crying,and grabbing her belly,as she tried to lift her shirt,her feeding button hit the ground,by this time she was scream bloody murder.I absolutly lost it,I went retarted,I actually had no idea what to do,I was freaking out.I called 911,and waited for them to get to us.They told me they could drive no faster than me,so I said screw it,I will take her my damn self(sorry for the language).SO,I got to the Er,and they rushed her back,and they put a Foley Tube,to keep the peg tube site open.She screamed so loud,everyone in the Er was freaking out,she was in so much pain,and they wouldn't give her anything.They admitted her at 12:30,but didn't get her into a room until 4am,and then the nurse had to come in and get loads of information.I laid down for like 30 minutes,before the surgeon came into to take a look at her,and WAKE HER UP!The surgeon said she would have her surgery that day,and we waited all day,and heard nothing,finally at almost 7pm(shift change)I was told that the anesthesiologist couldn't get free,so it would be the next day,by this time,she had nofeeds for over 24 hours(she lost 1.4lbs in almost 2 days).and nothing for pain.So go figure,she cried most of the night.The next morning,the surgeon came in (again @ 5am) to tell me that her surgery was going to happen later in the morning.

At 10:24am,they came to get her,and the transport lady that was bringing us down,picked my baby girl up,to put her in the other bed,and pulled that Foley tube out,and again my angel started screaming.

and it was bleeding a little.we made it downstairs,and as they were taking her into the OR,she was screaming at me.It was so hard having to leave her,knowing she was so scared.I cried like a big old baby.The surgery took a little over an hour,and they called for me in recovery,my baby was so frantic, she was screaming & crying.I took her from the nurse,and she tensed up,you could tell she was hurting.We were in recovery for almost 2 hours,due to not being able to stabilizeher,her oxygen wouldnt get above 78%,and her temp was 94,i was losing it,was scared to death.Finally they got her back where she needed to be,and we went back to her room.Again she was just crying,and they wouldnt give her anything for pain,they said because they didnt want anything to cover up a problem from the meds they used to knock her out.I kept trying to talk to her,and she would just look at me like she either didnt her what I said,or she didnt understand.She was doing that to everyone.I had a cousin come up there,and usually she will cut up with him,and she did him the same way,He was worried by that as well.

Well again we was up all night long with her not being able to sleep.Surgeon came in to check on her,and about 9 am the Dr came in,and she was noticing what was going on with Jacy,she would just cry and not talk or anything.She seemed to think my baby was suffering from emotional trauma,and fear.She suggested for her to try and recover at home,and see if maybe that would help her.As I am writing this post,she is a little bit better,but will not talk to me(I hope this will pass),she is still hurting,and running a fever.

Now I find out that they want to do another surgery on her to try an minimize her throwing up,its called:

Nissen fundoplication:

Sometimes a Nissen fundoplication is done at the same time the gastrostomy tube is placed.

This surgical procedure tightens the valve between the esophagus (canal connectingthe mouth anad stomach) and your baby’s stomach.

Part of the baby’s stomach is wrapped around the esophagus, like a scarf is wrapped around the neck

 

The thing is,I am so scared.This Dr is one that has not made the best judgement so far,and they say thins can be a very serious surgery for her,with everything she has had to deal with.This is the Dr that put in the wrong peg tube the first time,and in less than a week,she had to have it redone.I think I need another opinion.This is my baby we are talking about.

Thanks for taking the time to read this!please say a prayer for my angel,and for me to be able to keep my strength

  PLEASE SEND THIS TO EVERYONE YOU KNOW,WE NEED ALL THE PRAYERS WE CAN GET,THANK YOU!

[azcowgirl28]

I'm so soory you and your baby had to go thourght all of that.and poor thing not getting anything for the pain.you and her are in the prayers.

[AliciaM1985]

You are both in my prayers.... Stay strong. God never gives you more then you can handle.

[sgoodknight]

Melissa,,

Poor thing, no wonder she has emotional trauma.  Having the Drs put her through such an ordeal and not give her anything.  Have you contacted your state Rep?  I would get on the phone with your State Representative and speak with them about the treatment your daughter is and isn't receiving.  You should also contact some local media in your area to get the word out about how she's being treated.  That is not right to put a child through so much. 

Prayers are with you.

[jennifermay]

OMG... I cannot even believe what you all have been through. Your poor baby... she is definitely in our prayers and thoughts. I agree with Susan should go to a State Rep and the Local Media to let them know what they had put you all through. That is not right at all especially for your baby girl, she is too small to have to go through so much trauma. Please update us on how things are going and we are here if you ever need to talk! Lots of HUGS and Love!!!

[2playful]

Sending healing love to your dear baby.

God Bless you and your family.