PregnancyPregnancy

Cystic Fibrosis?

mommy2clarke

Sep. 4, 2008 at 10:53 PM by mommy2clarke
posted to Pregnancy

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I was just wondering if it is routine to be tested for cystic fibrosis during pregnancy? My doctor sent me to get blood drawn for this test today and it kinda scares me. If it's not routine, then I don't know why he would send me for this test because no one in my family has ever had it. Thanks in advance for your responses.



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Written by mommy2clarke on Sep. 4, 2008 at 10:53 PM Send mommy2clarke a message

Replies:


brownto6

by brownto6 on Sep. 4, 2008 at 10:55 PM

I'm gonna go with yes, it's routine. I got tested for it at my last doctor's appointment. They asked for my approval first of course...But I wouldn't worry about it too much if I were you.

Alicia-

by Alicia- on Sep. 4, 2008 at 11:28 PM

WHEN I GOT TESTED FOR IT IS WAS BECAUSE IT CAME UP IN MY BLOOD THAT I HAD A TRACT OF IT SO MY BABYS FATHER HAD TO GET TESTED FOR IT TOO BUT HE CAME UP CLEAN SO EVERYTHING WAS FINE. IM FRM BKLYN N.Y  SO ITS NOT ROUTINE THERE BUT MAYBE IT IS WERE YOU R FRM DONT GET YOUR SELF WORRYED INTILL YOU GET THE RESULT IM SURE EVERTHING IS OK!

chairhead28

by chairhead28 on Sep. 4, 2008 at 11:33 PM

I got all the blood work done with my son (he'll be 16 months in 30 minutes!!) when I was pregnant with him and at the time, insurance and everything covered it. This time around, I requested not to have all the blood work done (to check for downs and other abnormalities) and they asked if I wanted the CF test done. Apparently, since so many babies are born with it now, insurance DOES NOT cover it (at least here in NC that's what my doctor told me) and the only reason I can think is so they can make more money on the test. No one in my family or DH's family has it, so we opted not to get it. I'm pretty sure it's routine, it's in with all the other testings. You do NOT have to get the test though if you don't want. There are A LOT of false positives that make people worry so much, then have a 2nd level ultrasound done, and their baby (babies) are fine.

                                      
                       
           


                   


      

mrsmorrissey04

by mrsmorrissey04 on Sep. 4, 2008 at 11:59 PM

the test for CF is usually routine. However once you have been tested once there is no reason to be tested again. they wont test your hubby unless you come up positive.   its a very good test to have done. that way they know if your baby will have it an have everything ready at birth. its nothing to be scared of. its just really good to find out.

Mamaz

by Mamaz on Sep. 5, 2008 at 12:35 AM

i think it;s routine. don;t worry if no one else in your family has had it. my best friend has it, so we talk about it a lot. if you were carrying the gene for it. you would know!! so many people are carriers that if your family passed that gene down, the disease itself would be popping up all over your family tree.

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mommy2clarke

by mommy2clarke on Sep. 5, 2008 at 12:50 AM

Thank you all so much...I feel so much better now!!!

thank you



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trist22

by trist22 on Sep. 5, 2008 at 1:30 AM

Yes it is routine. If you came back a carrier they would then want to test your partner ( both partners have to be carriers for it to be transferred to the baby). However if you have ever been tested for it once and find you are not a carrier you never have to be tested again.
mommy_2_1_now

by mommy_2_1_now on Sep. 5, 2008 at 2:09 AM

they gave me the choice to have it done and since it is like 400-500 without the insurance paying for it I DID NOT get it done!

fallon113

by fallon113 on Sep. 5, 2008 at 9:11 AM

I had it done and it turns out I am a carrier which was a suprise because no one in my family has it.
brittcobb20

by brittcobb20 on Sep. 5, 2008 at 9:12 AM

You don't have to have these kinds of tests done if you don't want to.My doctor gives me the option.

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