New Website

[ekewer]

I have created a new website for Jacobsens Syndrome. If you would like to help me with it or add anything please let me know.

 

www.jacobsenssyndromeawareness.com

[Tylersmom523]

Thank you so much for making this website.  My husband was going to do the same thing and never had the time or enough information for it.  This is just what we all need to join together and bring awareness to new families.  I will pass the address along to all that I know and send any updates as they come in for my son Tyler.  Again, thank you for all the hard work you have put into this and great job!

Sincerely,

Alison

[ekewer]

Feel free to come over andpost your info. I would love to add more pics, blogs, and stories on these wonderful kids.

[ekewer]

I am still looking for stories for the website. If you have not seen it yet you can go to www.jacobsenssyndromeawareness.com Please email me your stories and also any pictures that you want me to put on the site. Please give me your feedback, Im looking for ideas for the site if you have any please let me know. Erin