Links

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Parents of Children Diagnosed with Neurofibromatosis(NF)

http://www.groups.myspcae.com/PCDN

Description: Neurofibromatosis (nyoo-r-oh-fahy-broh-muh-toh-sis) Group for parents with children -under 18 that have been diagnosed with neurofibromatosis. Come chat, vent, ask questions, meet new people/families and possibly make friends. If there are people in your area you can arrange to have a support group meet up.

Added on Feb. 10, 2007

Mastocytosis Group

http://www.cafemom.com/group/mastocytosis

Description: Cafemom group for mastocytosis, parents of or with masto, and/or know anyone with masto...support, information, advise.

Added on Apr. 30, 2007

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