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OT - High bilirubin levels *update 2*

Posted by on Jan. 2, 2013 at 1:05 PM
  • 57 Replies
My sister's newborn is 4 days old and his bilirubin levels have been continuously climbing. He came back with a positive coomb's test and my sister is rh- and can't remember her doctor actually giving her the Rho-GAM shot. Her Pediatrician is very worried and had a phototherapy blanket sent to her apartment to use. His levels came back today at 18 and she is starting to get scared. Have any of you experienced this? What ended up happening and having to be done? She's thinking about offering him a little formula since formula will bond to the bilirubin and flush it out of his system faster.



-UPDATE-

They checked his levels today after him being on the bili bed all afternoon and night. They had gone down just one point to 17 and he's gained 2.5oz since yesterday. The doctor seemed pleased and decided they'll meet up on Saturday to check him out again after he spends Friday on the bed. His energy has been good and there's no sign of fever or anything so we're all hopeful. My sister was also able to finally get some sleep last night so she's a little less stressed. Thank you for all the advice. I will update again after his Saturday check.

-UPDATE 2-
So my sister got him checked out this morning. His bilirubin levels have only gone down to 16 and he's dropped an ounce as well. We also found out the doctor ordered a biliblanket for them but for some reason the company or hospital or whatever sent the table. My sister is stressing again, considering formula, and is trying to find somewhere she can rent the blanket. Baby has been crying constantly and not nursing as well because he hates the table and just wants to be held. It just doesn't feel like it's going well. Doctor said he has to be on it the rest of the weekend and check him again on Monday.
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by on Jan. 2, 2013 at 1:05 PM
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Replies (1-10):
Fields456
by on Jan. 2, 2013 at 1:08 PM
Bump
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babylove041810
by on Jan. 2, 2013 at 1:08 PM
My dd had to be put on the bili blanket. She was on it for 3 days and than she was fine. She was supposed to be hospitalized her level got so high but the dr wanted to try the blanket first. We had it at home with us. As long as you do as the dr tells you and the baby eats well there shouldn't be a problem. I also kept dd in the window during the day to get the sunlight on her.
I hope the baby gets well soon!!
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cassiehmomof3
by on Jan. 2, 2013 at 1:11 PM
1 mom liked this
She can feed him every hour from the breast. Formula will work as well but make sure she continues feeding from the breast as well. Leave the light on 24/7. The more he pees and poppa the better the baby will get. She should start noticing an increase in diapers when she starts using the light.
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mostlymaydays
by Group Mod-Stacy on Jan. 2, 2013 at 1:43 PM
Formula is constipating so it backfires when the purpose is to get the baby to poop. I'd guess her milk is just starting to come in full force and nursing like a crazy person will help. My one ds has a blood disorder and was jaundiced until after his 8th birthday when he had his spleen removed; as a newborn, he was hours from needing a complete transfusion but I kept him attached constantly and his levels started coming down.
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3mes
by on Jan. 2, 2013 at 1:50 PM
Just talked to a specialist about bilirubin levels and if they r too high it can cause neurological damage. Continue getting the blood levels tested! I would also continue breastfeeding since bf babies pee and poop more often which gets rid of the bilirubin. If a dr recommends formula pump until you can start nursing again bc this is a temporary issue. Good luck.
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taeray
by on Jan. 2, 2013 at 1:50 PM
Did the doctor never want to put him on a phototherapy blanket? We're trying to figure out how she can nurse him more without taking him off the blanket.

Quoting mostlymaydays:

Formula is constipating so it backfires when the purpose is to get the baby to poop. I'd guess her milk is just starting to come in full force and nursing like a crazy person will help. My one ds has a blood disorder and was jaundiced until after his 8th birthday when he had his spleen removed; as a newborn, he was hours from needing a complete transfusion but I kept him attached constantly and his levels started coming down.
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JasonsMom2007
by on Jan. 2, 2013 at 1:54 PM

My son has suspected neurological damage from his billiruben levels getting so high.  At 18 that baby should be in the hospital.  I was told the levels had to be under 16 to be out of the hospital.  Now his levels are not as high as my sons were but they are still in the danger zone as you can see on this chart.  My son was both under the lights and on the blanket for 3 days before his were at a safe level.  Nursing is easy with the blanket just wrap it around him and nurse as usual.  My son's levels were so high it took 3 hours to get his blood down to the lab without it clotting.  He hit 23 at 3 days old and that's when they started treating.


K8wizzo
by Kate on Jan. 2, 2013 at 1:57 PM

She can pick him up with the blanket under him (so basically picking him up under the blanket), holding him and the blanket together.  She needs to be nursing him every 45 minutes to 1 hr during the day and every 2 hrs during the night.  He's probably very sleepy right now, so frequent feedings are the easiest way to get more milk into him.  She can do breast compressions to get milk flowing again as soon as he slows down or starts getting sleepy during a feeding.  A cool washcloth can also help to wake him up if he falls asleep at the breast.

Quoting taeray:

Did the doctor never want to put him on a phototherapy blanket? We're trying to figure out how she can nurse him more without taking him off the blanket.

Quoting mostlymaydays:

Formula is constipating so it backfires when the purpose is to get the baby to poop. I'd guess her milk is just starting to come in full force and nursing like a crazy person will help. My one ds has a blood disorder and was jaundiced until after his 8th birthday when he had his spleen removed; as a newborn, he was hours from needing a complete transfusion but I kept him attached constantly and his levels started coming down.


piwife
by on Jan. 2, 2013 at 1:58 PM
Tori's level reached 23. She was under lights for 24 hrs. She had nothing but bm
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JasonsMom2007
by on Jan. 2, 2013 at 2:01 PM

Oh and the neurological damage is called Kernicterus

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004562/

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