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HELP where can i get gluten free/dairy free/soy free formula?

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Rhythm lost more weight...

at this point I honestly do not care about breastfeeding anymore.

I am worried.

the doctors are screwing with my meds and medi-cal is giving me problems trying to find a doc, i just want him to be ok. i dont know where i can get formula that will even be ok for my LO. please help me :(


update:


wasnt able to find any formula i trusted he wouldnt react to, this is my plan for today:

im going to be pumping pretty much all day and imm going to putt a hot compress on my breasts to help my letdown.

whats going on now is the docs raised my thyroid when i was already hyper, told me i was hypo, causing problems, im not going to taake any more thyroid. period. until i talk to a competant doctor, its highly likely i didnt need it to begin with. since they tested my levels when i was pregnant..

____________________________________________________________________________________

Non-vaccinating, breastfeeding, babywearing, co-sleeping, cloth diapering, attachment parenting, anti-CIO,  crunchy momma of one happy little baby boy. :)

by on Jan. 25, 2013 at 9:25 AM
Replies (41-50):
skylarkdancer
by Member on Jan. 25, 2013 at 11:49 AM
Well if he isn't sensitive its worth a try. Weston a price has a website that has the info for the goats milk and I think there is a chicken liver formula?

Quoting K8wizzo:

50% of infants with a cow's milk sensitivity/allergy also have trouble with goat's and sheep's milk products.  My boys actually had far worse reactions to goat's milk exposure through my breastmilk than they did to cow's milk exposure.  Just something to keep in mind.

Quoting skylarkdancer:

Is he sensitive to goats milk? If not I have a recipe for a goat's milk formula that would help him gain weight.


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K8wizzo
by Kate on Jan. 25, 2013 at 11:55 AM
1 mom liked this

Another something to keep in mind.... some of those recipes contain toxic levels of some nutrients (vitamin A in particular) for ADULTS, let alone infants. WAPF has yet to provide a response that I've seen to multiple questions about that.  I only say this to urge the OP to be cautious and thoroughly research before feeding something that may cause harm to her extremely sensitive baby who already has a lot of other stuff going on.

Quoting skylarkdancer:

Well if he isn't sensitive its worth a try. Weston a price has a website that has the info for the goats milk and I think there is a chicken liver formula?

Quoting K8wizzo:

50% of infants with a cow's milk sensitivity/allergy also have trouble with goat's and sheep's milk products.  My boys actually had far worse reactions to goat's milk exposure through my breastmilk than they did to cow's milk exposure.  Just something to keep in mind.

Quoting skylarkdancer:

Is he sensitive to goats milk? If not I have a recipe for a goat's milk formula that would help him gain weight.



piwife
by on Jan. 25, 2013 at 12:23 PM
If he does have ciliac, wouldn't you eaten glutten affect him?
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Cleo07
by Bronze Member on Jan. 25, 2013 at 12:43 PM
1 mom liked this

I just had another thought...

When and why did you assume dairy sensitivity was a player here? Maybe it's the gluten all along and NOT dairy. With your strong family history plus the fact that you have thyroid disease/suspected celiac, I would say it is a given that celiac disease is a major player here. 

The reason I am saying this is that it is far easier to find gluten free formula if you don't have to worrry about dairy. He may do fine with some of the very processed dairy proteins?

Keep us posted. 


jjchick75
by Silver Member on Jan. 25, 2013 at 1:00 PM

Completey agree! I've suspected all along this is NOT a breastfeeding issue. If it was a breastfeeding issue he would have gained when he started being supplemented. They need to find out what's really wrong because they are obvioiusly ignoring the real problem. I wish you luck though! My daughter has a dairy, soy, and egg allergies and has issues with gluten. We never found a formula she tolerated well.  

Quoting tabi_cat1023:

Even if gluten is not the issue only dair and soy free are neocate and some elecares. My friends son has severe intestinal issues. She had to give up bfing too. Her sons nine now i believe and has a feeding tube and is on elecare.

Sometimes things are out of our control, demand testing, demand doctors help him. Not just blame bfing.



LucyHourglass
by on Jan. 25, 2013 at 1:32 PM


RIGHT? thats what I was thinking.... 

he does have a sensitivity to dairy, i have noticed he reacts if i eat cheese.

but so we called store after store and all sorts of companies and couldnt find a formula, i only have an ounce of pumped milk left, but my morning dosage of thyroid should be starting to leave my system now, im letting down on the other side. i'm not going to be taking any thyroid again until i speak to a competant doctor, which really i'm not sure when that is goign to be.

i'm having all sorts of issues with medi-cal which is why i was seeing a doctor at urgent care,

apparently since im under 21 medi-cal assigned me to a peditrician and doesnt want me to see a normal adult doctor UGH and they keep rejecting any and everything ive gotten referals for. its like jumping thorugh hoops of fire and getting nowhere. I know i should wait to speak with a doctor before changing things, but based on what is happening and the lack of a competant doctor im going to just stop them for now..

I DO think that he has celiac and that is a major problem, but i do also think my thyroid being too hyper may have been causing a huge issue as well.

poor baby :( I hope it doesnt take too long for the thyroid to get out of my system and for my milk to start being normal. his thyroid WAS tested. it was within normal range. i dont think its so much my thyroid getting to him as it is my milk not letting down properly like the LLL article said

Quoting Cleo07:

Just reread everything. The doctors increased your dose with a TSH of .01??

OMG. That's malpractice.



____________________________________________________________________________________

Non-vaccinating, breastfeeding, babywearing, co-sleeping, cloth diapering, attachment parenting, anti-CIO,  crunchy momma of one happy little baby boy. :)

LucyHourglass
by on Jan. 25, 2013 at 1:39 PM


well, i think its both. i think its combination of them raising my thyroid through the fucking roof and celiacs. 

Quoting jjchick75:

Completey agree! I've suspected all along this is NOT a breastfeeding issue. If it was a breastfeeding issue he would have gained when he started being supplemented. They need to find out what's really wrong because they are obvioiusly ignoring the real problem. I wish you luck though! My daughter has a dairy, soy, and egg allergies and has issues with gluten. We never found a formula she tolerated well.  

Quoting tabi_cat1023:

Even if gluten is not the issue only dair and soy free are neocate and some elecares. My friends son has severe intestinal issues. She had to give up bfing too. Her sons nine now i believe and has a feeding tube and is on elecare.

Sometimes things are out of our control, demand testing, demand doctors help him. Not just blame bfing.





____________________________________________________________________________________

Non-vaccinating, breastfeeding, babywearing, co-sleeping, cloth diapering, attachment parenting, anti-CIO,  crunchy momma of one happy little baby boy. :)

aehanrahan
by Group Mod - Amy on Jan. 25, 2013 at 1:55 PM
I thought that you were going to see your old doctor who prescribed the medication in the first place. What happened?
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lifeforchrist
by on Jan. 26, 2013 at 10:44 AM

are you able to make your own formula? Weston price has a recipe, and I believe I know some moms who swap the raw milk for rice milk. Is this a possibility for you?

skylarkdancer
by Member on Jan. 26, 2013 at 11:29 AM
We used the goats milk one. Dd did great on it.

Quoting lifeforchrist:

are you able to make your own formula? Weston price has a recipe, and I believe I know some moms who swap the raw milk for rice milk. Is this a possibility for you?

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