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Weight loss and supplementing.

Posted by on Aug. 9, 2014 at 11:23 AM
  • 30 Replies
Gemma went from 12.14 lbs to about 12.4 lbs in about 45 days. I was devastated but the pedi was so supportive and basically told me I am doing everything right and just need to give more solids (because she is nursing enough). She nurses atleast 6 times a day (between 8am-10pm) and her diaper count is good (5-7 a day). I'm trying to add in more nursing sessions, but really how? When? So dh will be giving a bottle of pumped milk with a scoop of premie formula added in once a day. She eats a half a jar of babyfood for dinner so I will be trying to add a jar for brunch too. We will try puréed real foods soon but I'm not sure how that will go. So what do y'all suggest? What puréed food will work best I know rice and oatmeal is a no no normally but would it help her? Puréed meats are ok right? Oh the doctor mentioned pediasure is 30 calories per ounce, would that be better than the pumped milk with formula? Maybe I should ask to see a dietitian ? But I don't want to be given bad advice though it be with good intention. Ugh. I'm sick over this, but the pedi was very positive and acted like it's just a hiccup. Someone just talk me through this.

(For the few that don't know our story, my daughter is special needs so the standard "rules" don't apply)
by on Aug. 9, 2014 at 11:23 AM
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Replies (1-10):
Precious333
by Group Mod-Julia on Aug. 9, 2014 at 11:57 AM
Well, i suppose if you are going to add solids, add avocado, yams,.sweet potatoes....high fatty foods. Maybe an sns if you are going to add a suppliment.
MusherMaggie
by Platinum Member on Aug. 9, 2014 at 1:20 PM
I would puree meat and a good fat source together, such as meat and avocado. I would also be inclined to feed the preemie formula separate from breastmilk rather than putting formula powder in breastmilk. You don't wat to overtax her kidneys and upset her electrolyte balance. I would puree your own foods and not use jarred foods, which are not as calorie dense. You'll have to see what her system will tolerate, but some whole fat yogurt and.cottage cheese would be something to try. I would still say the breastmilk would be what she would absorb best. Maybe a 48 hour nursing holiday would help, too.
ceckyl
by Kyla on Aug. 9, 2014 at 2:21 PM
Just to be sure, these weights were on the same scale right? I would stay away from pediasure
stepconfused182
by Kelley on Aug. 9, 2014 at 3:17 PM
I wouldn't give her pediasure. It's made for children over the age of 1. I would imagine she would inevitably lose muscle mass over the course of your journey. I doubt she is having fat loss and I'm skeptical that increasing solids would have any effect. Does she consistently sleep through the night?
tabi_cat1023
by Group Mod - Tabitha on Aug. 9, 2014 at 3:28 PM

NO pediasure! Ask the doctor if he can get her Prolacta human milk fortifier, its made of human milk and better t use than the preemie formula to raise calories.  That being being jarred food ARE purees.  Avacado is awesome to use.  Add coconut oil instead of water to purees! NO pediasure, its NOT for babies under a year!  Can you use a supplemental nursing system and give a small amount of extra each feed instead of a bottle as the bottle may cut a nursing session.  Try to add 2 sessions a day..8 is pretty common...even 7 sessions intead of 6 would help.

iSMILEheCRIES
by Bronze Member on Aug. 9, 2014 at 3:38 PM
That's what the pedi said (about muscle vs fat). Also she does PT once a week and I know she burns a ton of calories that day, plus a few shorter times a week at home. She does STTN now, 1030-8 (now about 7 since school started back). Plus I think I am pumping too much milk off in the morning before she eats and she isn't getting that easy milk. I have a question, she is making diaper count fine but stays dry from her fist diaper change in the morning til around 3 pm. After that I will change her about 4 times til bed. Is that ok? Could that be related? I am upset that she lost but I don't know what else I can do, I feel like she is eating enough/fine. Even if we did the Gtube, the specialist in PA, calculates feeds based on height and from what I can tell most Krabbe kids only get 10-15 ounces a day and they are all larger then Gem. I KNOW Gemma gets atleast 12 ounces a day, I'm betting closer to 20 because she nurses so good/long

Quoting stepconfused182: I wouldn't give her pediasure. It's made for children over the age of 1. I would imagine she would inevitably lose muscle mass over the course of your journey. I doubt she is having fat loss and I'm skeptical that increasing solids would have any effect. Does she consistently sleep through the night?
iSMILEheCRIES
by Bronze Member on Aug. 9, 2014 at 3:42 PM
I think she is getting a full feed at the breast. But I feel like she would sometimes nurse all day, but life gets in her way so the bottle may actually help her. I will ask my pedi and palliative care about the Prolacta. Good info about the coconut oil, that will help. Oh and I meant the fact that jarred foods aren't as high calorie, so table food would be better.

Quoting tabi_cat1023:

NO pediasure! Ask the doctor if he can get her Prolacta human milk fortifier, its made of human milk and better t use than the preemie formula to raise calories.  That being being jarred food ARE purees.  Avacado is awesome to use.  Add coconut oil instead of water to purees! NO pediasure, its NOT for babies under a year!  Can you use a supplemental nursing system and give a small amount of extra each feed instead of a bottle as the bottle may cut a nursing session.  Try to add 2 sessions a day..8 is pretty common...even 7 sessions intead of 6 would help.

iSMILEheCRIES
by Bronze Member on Aug. 9, 2014 at 3:55 PM
Yes. But it was difficult because she is getting too long for the newborn scale (where all her weights have been so far) so we switched to the digital scale which has a bucket design and she fits better. So on the original scale she lost 10ounces. And we started a new base weight on the new digital scale.

Quoting ceckyl: Just to be sure, these weights were on the same scale right? I would stay away from pediasure
tabi_cat1023
by Group Mod - Tabitha on Aug. 9, 2014 at 4:04 PM
1 mom liked this

The SNS could get her more milk a bit easier and burn less calories nursing which is why I mentioned it.  MAYBE ..just an option

stepconfused182
by Kelley on Aug. 9, 2014 at 4:18 PM
Yes diaper count is fine. Don't worry about frequency; total count over 24 hrs is what you're looking at. If you could offer to nurse
a time or 2 more, that may help at least maintain her weight. Go ahead and pump after her morning feeding instead of before so she doesn't have to use as much energy to transfer. Doesn't sound like the gtube is needed yet. I think it sounds like you're doing a great job.


Quoting iSMILEheCRIES: That's what the pedi said (about muscle vs fat). Also she does PT once a week and I know she burns a ton of calories that day, plus a few shorter times a week at home. She does STTN now, 1030-8 (now about 7 since school started back). Plus I think I am pumping too much milk off in the morning before she eats and she isn't getting that easy milk. I have a question, she is making diaper count fine but stays dry from her fist diaper change in the morning til around 3 pm. After that I will change her about 4 times til bed. Is that ok? Could that be related? I am upset that she lost but I don't know what else I can do, I feel like she is eating enough/fine. Even if we did the Gtube, the specialist in PA, calculates feeds based on height and from what I can tell most Krabbe kids only get 10-15 ounces a day and they are all larger then Gem. I KNOW Gemma gets atleast 12 ounces a day, I'm betting closer to 20 because she nurses so good/long

Quoting stepconfused182: I wouldn't give her pediasure. It's made for children over the age of 1. I would imagine she would inevitably lose muscle mass over the course of your journey. I doubt she is having fat loss and I'm skeptical that increasing solids would have any effect. Does she consistently sleep through the night?
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