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Need help on a lip/tongue tie.

Posted by on Sep. 20, 2017 at 12:17 AM
  • 5 Replies



I'm just trying to help a friends -friend's, 3 week old baby. They were told baby didn't have a lip/tongue tie, and she's struggling with thrashed on nipples, allergy-reflux type problems, hives/red blotchiness, issues from trying to supplement with formula.

She was told by lactation consultants in the hospital that the baby oculd latch, didn't have a lip or tongue tie because baby could stick the tongue past the lips and hold a pacifier.

She says baby would often nurse for hours straight, swapping side to side, gassy, spitting up, acting miserable, making her miserable. everyone's giving her advice on the baby - but no one ruled 100% out a tongue/lip tie. based on what I heard, I'd put money on it - but am sharing her pictures here, for a second opinion since she most likely has to pay for an ENT evaluation out of pocket.


Here's her location and insurance type - if anyone knows of a specialist they'd trust in her area, to treat the baby  :


New jersey, hightstown. United health care community plan through the state.


by on Sep. 20, 2017 at 12:17 AM
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Replies (1-5):
Junebaby18
by Nannerz on Sep. 20, 2017 at 2:09 AM
I can see a tongue tie, but not sure about a lip tie. It looks like the baby may have a high pallet (roof of the mouth). My youngest ds had that and it was excruciating to nurse him. The gassy and spitting up sounds like mom may have overactive letdown and/or oversupply. Why is the mom supplementing, and how much is she giving?
kajira
by Silver Member on Sep. 20, 2017 at 8:52 AM


baby was diagnosed with a high palate. She's supplementing because the lactation consultants told her too. Not sure the amount total in a day - but I do believe she's over feeding baby. She nurses and then offers up to a 2oz bottle after feeding.

Almost all the symptoms she's complained about, sounded like an over supply issue + tongue tie, to me, too, but she said the lactation specialists and doctors/pedi's she saw, said he didn't have one.... I spotted the cupped tongue instantly, and if you look closely at the lip, you can see the line of tissue connecting the lip to the gums.

Quoting Junebaby18: I can see a tongue tie, but not sure about a lip tie. It looks like the baby may have a high pallet (roof of the mouth). My youngest ds had that and it was excruciating to nurse him. The gassy and spitting up sounds like mom may have overactive letdown and/or oversupply. Why is the mom supplementing, and how much is she giving?



MusherMaggie
by Ruby Member on Sep. 20, 2017 at 1:52 PM
That baby definitely appears to be tied, and they need a real IBCLC. Let me see who is in her area!
MusherMaggie
by Ruby Member on Sep. 20, 2017 at 2:10 PM
Here are some nearby providers. We don't have anyone specifically listed in New Jersey. The Tongue Tied Babies group on Facebook may know of someone closer.



NEW​ ​YORK
Dr Scott Siegel, DDS, MD, FACS
Only uses laser. Submit both medical and dental insurances.
Offer financial aid or other solutions if financially challenged or no insurance.
Rockville Center Office:165 North Village Avenue, Suite 12
Rockville Centre, New York 11570
PHONE:516 208 5088 FAX: 516 594 2581
Melville Office: 510 Broadhollow Road, Suite 130
Melville, New York 11747
631 465 0300 PHONE 631 271 7593 FAX
nomcs.info@gmail.com http://www.nomcs.com/
Dr Lawrence A. Kotlow, D.D.S.
340 Fuller Road,Albany, NY 12203
Phone: 518-489-2571
website: http://kiddsteeth.com/
Insurance details: Takes military dental insurance, others on a case by case basis.
Out of pocket cost: $550 (will do maxillary and lingual ties for that amount).
Dental billing codes: Consult - 140 Procedure - 7960
Medical billing codes: consult - 99202 (for reimbursement)
Maxillary revision - 40819
Lingual revision - 41115
A great office to work with, call them to discuss financial problems, they will do their best to help you .
PENNSLVANIA
Penny Soppas, MD, IBCLC,
5030 State Rd, Suite 2-900, Drexel Hill, PA 19026
kajira
by Silver Member on Sep. 20, 2017 at 4:05 PM

I'll pass the information along. 

Quoting MusherMaggie: That baby definitely appears to be tied, and they need a real IBCLC. Let me see who is in her area!


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