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seizure #9.... different PHOTO ADDED

Posted by on Nov. 14, 2012 at 11:24 AM
  • 27 Replies

He normaly has a seizure within the first half hour of being awake. WELL he had seizure #9 at school. I just got back from picking him up.....-_- They also said he was turning blue but just as they were about to call 911 his color returned and the seizure started slowing down.....

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I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


by on Nov. 14, 2012 at 11:24 AM
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Replies (1-10):
mom2ljh
by on Nov. 14, 2012 at 11:26 AM
Oh no, prayers.
Posted on CafeMom Mobile
Barabell
by on Nov. 14, 2012 at 12:11 PM

:(

((HUGS))

gypsy_rose
by Kandy on Nov. 14, 2012 at 4:56 PM

Dzyre1115
by Bronze Member on Nov. 14, 2012 at 4:57 PM

 We went through that too, thankfully it subsided prior to him starting his regular school career!

gypsy_rose
by Kandy on Nov. 14, 2012 at 5:00 PM

he just started. His first one was August 10th when he decided the BEST place to have his FIRST seizure was the top of the damn stairs -_- (Mind you I know he did not decide anything of the sort) the day before vacation started LOL.

Quoting Dzyre1115:

 We went through that too, thankfully it subsided prior to him starting his regular school career!


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


Anonymous
by Anonymous on Nov. 14, 2012 at 5:01 PM
Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.
gypsy_rose
by Kandy on Nov. 14, 2012 at 5:07 PM

thank you. I am getting "used" to it. The first one scared me to death. All I can remember is him seizing at the bottom of our stairs blood coming out of his nose and mouth. I think It shortend my life by 30 years. I knew what to do (I had epileptic friends) and I did it but was bawling the entire time. I called 911 was freaking the hell out on the poor woman. It felt like an hour for them to get there. after a 14 step fall he didn't break a SINGLE bone or even chip a tooth (He took the whole fall on his face). 

this was after his first time

Quoting Anonymous:

Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


Evilfelly07
by on Nov. 14, 2012 at 7:04 PM

wow lots of hygs and prayers lady <3

Hottmomma607
by Trica on Nov. 14, 2012 at 9:00 PM
:'( :'( Wow! Poor baby!! ((Hugs))
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Anonymous
by Anonymous on Nov. 16, 2012 at 5:26 PM
Its amazing the love us mothers have for our children. Your amazing for being strong for him. Gotta fight the fight

Quoting gypsy_rose:

thank you. I am getting "used" to it. The first one scared me to death. All I can remember is him seizing at the bottom of our stairs blood coming out of his nose and mouth. I think It shortend my life by 30 years. I knew what to do (I had epileptic friends) and I did it but was bawling the entire time. I called 911 was freaking the hell out on the poor woman. It felt like an hour for them to get there. after a 14 step fall he didn't break a SINGLE bone or even chip a tooth (He took the whole fall on his face). 

this was after his first time


Quoting Anonymous:

Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.


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