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seizure #9.... different PHOTO ADDED

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He normaly has a seizure within the first half hour of being awake. WELL he had seizure #9 at school. I just got back from picking him up.....-_- They also said he was turning blue but just as they were about to call 911 his color returned and the seizure started slowing down.....

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I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


by on Nov. 14, 2012 at 11:24 AM
Replies (21-27):
themomof3boys
by Member on Nov. 17, 2012 at 8:35 AM
My son has seizures as well. They are scary and I hope they get your son under control soon. My son usually has them in the car while I'm driving.
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PerfectVirgo
by on Nov. 17, 2012 at 8:37 AM
My children's cousin did that. Fell down the basement stairs at 2 years old. Thought the fall caused the seizure at first, but he's had more since.

Quoting gypsy_rose:

he just started. His first one was August 10th when he decided the BEST place to have his FIRST seizure was the top of the damn stairs -_- (Mind you I know he did not decide anything of the sort) the day before vacation started LOL.


Quoting Dzyre1115:

 We went through that too, thankfully it subsided prior to him starting his regular school career!


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Tea4Tas
by on Nov. 17, 2012 at 8:41 AM

What medications is he on-the first year or so is usually the worst-after that you can regulate the medicine (usually) and it can become rare to have seizures. Try and get him to focus on how he feels immediately prior to a seizure-my Mom is epileptic and she can TELL when she is having a seizure-many people can learn to do so-making it a lot safer for them.  His pediatric neurologist might know a counselor who can help him learn the signs of a seizure.

gypsy_rose
by Kandy on Nov. 17, 2012 at 10:13 AM

OMG I don't know how I could drive knowing DS would have one!

Quoting themomof3boys:

My son has seizures as well. They are scary and I hope they get your son under control soon. My son usually has them in the car while I'm driving.


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


gypsy_rose
by Kandy on Nov. 17, 2012 at 10:14 AM

he was on 2 diffrent meds before this one, he is now on depakote.

Quoting Tea4Tas:

What medications is he on-the first year or so is usually the worst-after that you can regulate the medicine (usually) and it can become rare to have seizures. Try and get him to focus on how he feels immediately prior to a seizure-my Mom is epileptic and she can TELL when she is having a seizure-many people can learn to do so-making it a lot safer for them.  His pediatric neurologist might know a counselor who can help him learn the signs of a seizure.


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


Tea4Tas
by on Nov. 17, 2012 at 10:17 AM


Quoting gypsy_rose:

he was on 2 diffrent meds before this one, he is now on depakote.

Quoting Tea4Tas:

What medications is he on-the first year or so is usually the worst-after that you can regulate the medicine (usually) and it can become rare to have seizures. Try and get him to focus on how he feels immediately prior to a seizure-my Mom is epileptic and she can TELL when she is having a seizure-many people can learn to do so-making it a lot safer for them.  His pediatric neurologist might know a counselor who can help him learn the signs of a seizure.

 

Depakote is what my Mom has been on for 3 decades now. It works well (she is seizure free for 10 years now)  You just need to keep up with the blood work for liver damage (which isn't common)

Depokote can take a while to work though. It is good because it prevents the vomiting after seizures that depekane can't.

themomof3boys
by Member on Nov. 18, 2012 at 7:31 AM
It is ok as long as he isn't looking out a side window with behind the trees and has had enough sleep. It has been more than a year since he has had one. Plus his poor little brother is my look out for the signs.

Quoting gypsy_rose:

OMG I don't know how I could drive knowing DS would have one!


Quoting themomof3boys:

My son has seizures as well. They are scary and I hope they get your son under control soon. My son usually has them in the car while I'm driving.


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