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seizure #9.... different PHOTO ADDED

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He normaly has a seizure within the first half hour of being awake. WELL he had seizure #9 at school. I just got back from picking him up.....-_- They also said he was turning blue but just as they were about to call 911 his color returned and the seizure started slowing down.....

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I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


by on Nov. 14, 2012 at 11:24 AM
Replies (11-20):
blondie805
by on Nov. 16, 2012 at 7:01 PM
My prayers are with you. Hugs!
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tinkerspell
by on Nov. 16, 2012 at 7:03 PM
Wow that pictures has me in tears no child should be hurt like that

Quoting gypsy_rose:

thank you. I am getting "used" to it. The first one scared me to death. All I can remember is him seizing at the bottom of our stairs blood coming out of his nose and mouth. I think It shortend my life by 30 years. I knew what to do (I had epileptic friends) and I did it but was bawling the entire time. I called 911 was freaking the hell out on the poor woman. It felt like an hour for them to get there. after a 14 step fall he didn't break a SINGLE bone or even chip a tooth (He took the whole fall on his face). 

this was after his first time


Quoting Anonymous:

Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.


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LivinDeadGurl
by Gold Member on Nov. 16, 2012 at 8:39 PM

I am sorry you have to go through this hon.

Elyssa414
by on Nov. 16, 2012 at 8:40 PM
Ugh!! I'm sorry.
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gypsy_rose
by Kandy on Nov. 16, 2012 at 10:51 PM

Yep and now I know to keep an even more watchful eye on my youngest son. (My youngest has a genetic condition which causes tumors to grow. I found out I had it this january and it seems I passed it to him. They have found brain tumors in me.) Just got to keep plugging along. There are somedays all these illnesses get to me but for the most part I am strong about it all. SOmetimes I come on here to let out all my flustrations (and to keep some of the ladies updated) 

Quoting Anonymous:

Its amazing the love us mothers have for our children. Your amazing for being strong for him. Gotta fight the fight

Quoting gypsy_rose:

thank you. I am getting "used" to it. The first one scared me to death. All I can remember is him seizing at the bottom of our stairs blood coming out of his nose and mouth. I think It shortend my life by 30 years. I knew what to do (I had epileptic friends) and I did it but was bawling the entire time. I called 911 was freaking the hell out on the poor woman. It felt like an hour for them to get there. after a 14 step fall he didn't break a SINGLE bone or even chip a tooth (He took the whole fall on his face). 

this was after his first time


Quoting Anonymous:

Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.



For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


gypsy_rose
by Kandy on Nov. 16, 2012 at 10:51 PM

ty

Quoting blondie805:

My prayers are with you. Hugs!


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


gypsy_rose
by Kandy on Nov. 16, 2012 at 10:52 PM

I agree. He is a tough kid though. Shortly after this photo he was playing around for a few minutes. Then he fell asleep. His seizures make him VERY tired. 

Quoting tinkerspell:

Wow that pictures has me in tears no child should be hurt like that

Quoting gypsy_rose:

thank you. I am getting "used" to it. The first one scared me to death. All I can remember is him seizing at the bottom of our stairs blood coming out of his nose and mouth. I think It shortend my life by 30 years. I knew what to do (I had epileptic friends) and I did it but was bawling the entire time. I called 911 was freaking the hell out on the poor woman. It felt like an hour for them to get there. after a 14 step fall he didn't break a SINGLE bone or even chip a tooth (He took the whole fall on his face). 

this was after his first time


Quoting Anonymous:

Wow. I couldnt imagine walking that road. Hugs and strengh to you and i mean that in the most respectful way.



For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


gypsy_rose
by Kandy on Nov. 16, 2012 at 10:53 PM

Thank you!

Quoting LivinDeadGurl:

I am sorry you have to go through this hon.


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


gypsy_rose
by Kandy on Nov. 16, 2012 at 10:53 PM

TY hun. 

Quoting Elyssa414:

Ugh!! I'm sorry.


For information please click the ribbon. 

I have something known as Nerofibromatosis. This illness causes tumors to grow within my body. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


LyTe684
by Tasha on Nov. 17, 2012 at 8:31 AM
Aww man. I thought they were controlled. I'm so sorry hon.. I'm here if you need to talk. *hugs*
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