Today is Arlos first neurology appointment.
UPDATE: It is offical....Arlo has NF.
For information please click the ribbon.
my son and I have something known as Nerofibromatosis. This illness causes tumors to grow within our bodies. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.
My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located.