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Arlos first nero appointment is today. UPDATE

Posted by on Dec. 3, 2012 at 9:20 AM
  • 8 Replies

Today is Arlos first neurology appointment. 

UPDATE: It is offical....Arlo has NF. 

For information please click the ribbon. 

my son and I have something known as Nerofibromatosis. This illness causes tumors to grow within our bodies. I currently have brain tumors which affects my ability to function 100% normaly. My memory is poor as is my spelling and grammar abilities. It is a part of who my youngest is and a part of who I am. It is not all of ether of us.

My husbands best friends brother has a condition known as tuberous sclerosis. He was supposed to have died at a very young age. He is now close to 30 and still alive. He has had a few brain surgeries and has had to have his shunt replaced a few times. They run a program to help people with this condition. This ribbon will take you to their website where information on TS is located. 


by on Dec. 3, 2012 at 9:20 AM
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Replies (1-8):
LyTe684
by Tasha on Dec. 3, 2012 at 12:32 PM

Good luck!

TheIrishDuckie
by on Dec. 3, 2012 at 12:39 PM

Hope all goes well.

gypsy_rose
by Kandy on Dec. 3, 2012 at 1:06 PM

It is official. Arlo has Nerofibromatosis.


TheIrishDuckie
by on Dec. 3, 2012 at 1:14 PM

:-(

Hottmomma607
by Trica on Dec. 3, 2012 at 5:02 PM

sadWow sorry to hear that! hugs

PacificNW1994
by New Member on Dec. 3, 2012 at 6:28 PM

I am new to this group, so I don't know about your son.  I am so sorry to hear this info. I am sure that it is not easy for you or your son.  My thoughs and prayers go out to both of you.  I think that we all have a cross to bear.  But, I know that probably does not make you feel any better. Good Luck.

LyTe684
by Tasha on Dec. 4, 2012 at 10:02 AM

So sorry hon. :( group hug

Quoting gypsy_rose:

It is official. Arlo has Nerofibromatosis.



Insulin is not a cure, it's life support.

atlmom2
by Susie on Dec. 4, 2012 at 10:13 AM

:(

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