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Crohn's disease---TMI (updated)

Posted by on Dec. 29, 2012 at 11:32 PM
  • 34 Replies
about a month ago i made a post about all my stomach issues. I thought it was crohn's but a lot of people kept saying gallbladder so i went to the dr. She ordered a HIDA scan, which is scheduled for jan. 9th. Well since that appointment ive had 4 epsodes of bloody, fleshy looking stool. I have researced it and the only things i an find are ulcerative colitis and crohn's. Any other ladies out there suffer from crohn's with this issue? Iplan on calling the dr. Monday to let her know about this new symptom, but would like some insight before then. Thanks!



Updated: my reg dr. Is out til jan. 9th. The dr. Taking her place says I need to see her but he highly suspects its something GI related and is putting in a referral for a GI specialist but he wants me to keep the HIDA scan appointment because it could still take a week or more for the GI appointment.

~Melissa~Wife to Jarrod~Mommy to Nathan, Kristina, Tyler, and Ryan~

by on Dec. 29, 2012 at 11:32 PM
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Replies (1-10):
Nathans_mom0612
by on Dec. 29, 2012 at 11:50 PM

BUMP!

Sagely
by on Dec. 29, 2012 at 11:54 PM
I have colitis. Right now, I'm magically cured since I'm pregnant (woulda thought pregnancy would have made it worse). But gluten and dairy aggravated things so I cut out gluten completely and cut way back on dairy. I also had to take three pills every morning which act as anti-inflammatories.

It's manageable. Transitioning to a new diet sucked major balls but now that I'm finally "there," it's actually not so bad.
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EyEmTuRtLe
by Bronze Member on Dec. 30, 2012 at 12:00 AM

Not trying to scare you but after what I've been going through this past month with my DH. I suggest you get a barium CT done to look for any unusual masses. Mainly in your "trunk" area.

My DH thought he had Crohn's...yeah that's not what he has. And I'd tell you what but we're not even 100% sure. As this has just happened in the last 32 days.

Nathans_mom0612
by on Dec. 30, 2012 at 12:08 AM
Quoting EyEmTuRtLe:

Not trying to scare you but after what I've been going through this past month with my DH. I suggest you get a barium CT done to look for any unusual masses. Mainly in your "trunk" area.

My DH thought he had Crohn's...yeah that's not what he has. And I'd tell you what but we're not even 100% sure. As this has just happened in the last 32 days.




Do you think its colon cancer? I thought that but also read it doesnt look fleshy with cancer...just blood. Plus i dont want to go there cause then i will get so overstresssed...im only 28.

~Melissa~Wife to Jarrod~Mommy to Nathan, Kristina, Tyler, and Ryan~

Nathans_mom0612
by on Dec. 30, 2012 at 12:09 AM
Quoting Sagely:

I have colitis. Right now, I'm magically cured since I'm pregnant (woulda thought pregnancy would have made it worse). But gluten and dairy aggravated things so I cut out gluten completely and cut way back on dairy. I also had to take three pills every morning which act as anti-inflammatories.

It's manageable. Transitioning to a new diet sucked major balls but now that I'm finally "there," it's actually not so bad.



Did you ever have the fleshy stools? Congats on being pregnant!!

~Melissa~Wife to Jarrod~Mommy to Nathan, Kristina, Tyler, and Ryan~

Sagely
by on Dec. 30, 2012 at 12:11 AM
I'm not sure what you mean by "fleshy."



Quoting Nathans_mom0612:

Quoting Sagely:

I have colitis. Right now, I'm magically cured since I'm pregnant (woulda thought pregnancy would have made it worse). But gluten and dairy aggravated things so I cut out gluten completely and cut way back on dairy. I also had to take three pills every morning which act as anti-inflammatories.



It's manageable. Transitioning to a new diet sucked major balls but now that I'm finally "there," it's actually not so bad.





Did you ever have the fleshy stools? Congats on being pregnant!!
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Nathans_mom0612
by on Dec. 30, 2012 at 12:14 AM
Quoting Sagely:




It looks like flesh from your body coming out in the toilet...kinda like bloody tissue.

~Melissa~Wife to Jarrod~Mommy to Nathan, Kristina, Tyler, and Ryan~

Sagely
by on Dec. 30, 2012 at 12:15 AM
No, my case was pretty mild. I just had inflammation at the time of my colonoscopy.

So I basically had very mucousy stools.
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EyEmTuRtLe
by Bronze Member on Dec. 30, 2012 at 12:30 AM

Nope not exactly. My DH's case is very unique though. In my DH's case it turned out to be a form of cancer. BUT and it is a big BUT... his doctor found a HUGE tumor near his small intestines. The tumor's core is benigh but because it wasn't caught until now my DH's Spindle Cells went into overdrive and so now my DH has Spindle Cell Cancer.

GIST (Gastrointestinal Stromal Tumor) are usually none cancerous and very treatable. A lot of people have the small tumors. Most people don't even know they have them because they don't cause problems. Or at least that's what we've been told.

My DH was just diagnosed on the 5th with Spindle Cell Cancer. But we don't have an official stage yet. And we found out last Thursday that he has GIST. His GIST is the primary illness. His Spindle Cell Cancer is the secondary illness.

Soooo that is why I suggest a Barium CT. Any abnormal growths like GIST's are easier to see on Barium CT's verses standard CT's or MRI's.

 



Quoting Nathans_mom0612:


Quoting EyEmTuRtLe:

Not trying to scare you but after what I've been going through this past month with my DH. I suggest you get a barium CT done to look for any unusual masses. Mainly in your "trunk" area.

My DH thought he had Crohn's...yeah that's not what he has. And I'd tell you what but we're not even 100% sure. As this has just happened in the last 32 days.




Do you think its colon cancer? I thought that but also read it doesnt look fleshy with cancer...just blood. Plus i dont want to go there cause then i will get so overstresssed...im only 28.


MaddiesMama09
by on Dec. 30, 2012 at 3:50 AM
My mom was diagnosed with Crohns disease after an abnormal colonscopy 15 years ago. She had a ton of weight loss and has really mucousy, bloody stools (mixture of constipation and diarrhea). Her tummy swells and feels sore when she has flare ups. It is always worse when she is stressed. Have you had a colonoscopy to rule out crohns or Ulcerative colitis?
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