My son, 2yrs and 10 months old, got sick June 6th with a rash on his face and fever of 103. First the pediatricians office said it may be an allergic reaction, then a virus, by day 3 he was covered head to toe in a rash, and still had a fever of 103+ that he had since day one. Nurse practitioner at pedi office said again, just a virus, he'll be fine. Day 6 came and he wasn't getting better, I decided it was time to take a trip to the emergency room. There they tell me my son had Kawasaki's Disease and send me to Boston Children's Hospital an hour and a half away where my son was admitted for 5 days and treated. Because it took so long to catch, we are now on day 20 and he is having heart issues. Traveling to Boston one a week for echocardiograms showing now that one of his coronary arteries are enlarged and he has to be on aspirin. My question is, why did the doctors office miss this? If I had listened to the doctors, and believed it was "just a virus" when his fever went away on day 7, I would have thought he was fine, and without treatment for Kawasaki disease he could have ended up having a heart attack, dying, or having major heart problems, if I hadn't listened to my gut and taken him to the emergency room, there's a chance he wouldn't be alive today. It's important for this disease to be caught early, and they say he was a textbook case, he had every symptom.. And when I went back to the pediatrician street he came home from the hospital, they seemed to know ask about this illness, so why was my son sent home twice, brushed off as just a virus? What would you do?
on Jun. 25, 2014 at 3:26 PM