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They said it was just a virus, it wasn't.

Posted by on Jun. 25, 2014 at 3:26 PM
  • 9 Replies
My son, 2yrs and 10 months old, got sick June 6th with a rash on his face and fever of 103. First the pediatricians office said it may be an allergic reaction, then a virus, by day 3 he was covered head to toe in a rash, and still had a fever of 103+ that he had since day one. Nurse practitioner at pedi office said again, just a virus, he'll be fine. Day 6 came and he wasn't getting better, I decided it was time to take a trip to the emergency room. There they tell me my son had Kawasaki's Disease and send me to Boston Children's Hospital an hour and a half away where my son was admitted for 5 days and treated. Because it took so long to catch, we are now on day 20 and he is having heart issues. Traveling to Boston one a week for echocardiograms showing now that one of his coronary arteries are enlarged and he has to be on aspirin. My question is, why did the doctors office miss this? If I had listened to the doctors, and believed it was "just a virus" when his fever went away on day 7, I would have thought he was fine, and without treatment for Kawasaki disease he could have ended up having a heart attack, dying, or having major heart problems, if I hadn't listened to my gut and taken him to the emergency room, there's a chance he wouldn't be alive today. It's important for this disease to be caught early, and they say he was a textbook case, he had every symptom.. And when I went back to the pediatrician street he came home from the hospital, they seemed to know ask about this illness, so why was my son sent home twice, brushed off as just a virus? What would you do?
by on Jun. 25, 2014 at 3:26 PM
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Replies (1-9):
Jacqalyn
by Member on Jun. 25, 2014 at 3:29 PM
2 moms liked this
Change pediatricians.
RosePetalTears
by Bronze Member on Jun. 25, 2014 at 3:36 PM
My oldest had it at 3. We did 2 trips to his primary and 3 trips to the er, including a children's hospital and they didn't figure it out till the 4th er trip. I live in co in one of the few areas of the world it is more commonly found, and it still took me constantly going in to get anyone to say it was something other than a virus. It's just not well known. Only 62 cases were treated at Denver children's hospital last yr, and there are people from other states going there for it too.
How things with your son turn out for the best!
momofthree3708
by New Member on Jun. 25, 2014 at 3:36 PM
There's a few autocorrect mess ups in there I'm sorry I'll fix them later lol if you can't figure out what I meant, I apologize
ejkdmom
by Member on Jun. 25, 2014 at 3:51 PM

This is a hard one. One one hand it's like "Duh, couldn't you see this?".  On the other hand it's, "Ugh, another overbearing mom when a virus is going around."

Ask the specialists what they would do.  Is this a common mistake when catching this?  Many diseases mimic other more common things and unless the patient is demanding they don't get caught (had that happen to me) and doctors get many people with WebMD diagnoses so I guess there is a delicate balance between sounding the alarm and calming a hypochondriac.

Glad it was caught and hope he gets better soon.

TheMaddHatress
by New Member on Jun. 25, 2014 at 8:49 PM
I am not sure how common that disease is but if it is not and the symptoms mimic a typical virus perhaps that is the reason. If he saw a nurse perhaps she was telling you what she truly thought it was. I may just watch to many medical shows but often doctors and nurses seem to have a hard time with things that mimic what is most common.
MissingOregon
by New Member on Jun. 26, 2014 at 3:55 PM

When my oldest was 6 months old he came down with what at first appeared to be a cold. He got worse each day. On day 3 I took him to the dr. The dr say's 'it's just a cold' and gives me some cough meds to help. It got worse and took him back the next day. And again 'it's just a cold' and sent us on our way. That night he had more and more trouble breathing. I decided to take him to the ER. They discovered he had spinal meningitis. Transferred us to another hospital where they discovered it was due to RSV. He was in the hospital for over a week.

momofthree3708
by New Member on Jun. 29, 2014 at 7:35 AM
It makes me so angry, that this all started about 23 days ago, and he is still having problems with his coronary arteries, and I feel that if this had been caught earlier by the pedi and was treated faster, it wouldn't have effected his heart. Thanks for sharing your similar stories. It's scary to think about how much trust you put into your child's doctor only for something like this to happen. My advice to everyone is always, always, ALWAYS listen to your gut. Don't ever worry about being that "overbearing paranoid" mom. You know your child's better than any doctor ever could and when you feel that something is wrong, don't stop until you get answers.
bhow
by on Jun. 29, 2014 at 10:31 AM

Holy Crap!  I read all this, never heard of it, Googled it.  Wow!  Poor kid, and mom too.  I don't know what to say about doctor.  I suppose if they have never seen it they would miss it.  I certainly hope this all works out without further complications.  

ladybugchick317
by Charity on Jul. 3, 2014 at 3:29 PM

 There is a reason that God gave us Mother's Instincts. I have found that some Pedis are more concerned with getting paid than finding out what is wrong with a child. We had one that would tell us it was just a virus because dd was getting fevers and not feeling well and it was almost once a week. She missed 16 days of school one month because of a fever. I finally got tired of the dr telling me it was a virus and took her to our dr that is a general practitioner and they did blood work and found out that she had an immune deficiency and had previously had mono (mind you she was only 6 at the time) and I went to the pedi and raised hell and was able to get the files of all 4 of my kids and found a pedi that is wonderful.

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