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Spending the last moments

Anonymous
Posted by Anonymous
  • 3 Replies
I recently found out my daughter has Tracheobronchomalacia and polmonology hypertension. Or in other words her airway collapses and her heart has high blood pressure.

Her second birthday is days away and I'm going to do the best I can to make it happy.

But if you found out your kiddo has life changing and threatening condition, what would you want to do with them to spend happy days before they passed away?
Posted by Anonymous on Jan. 13, 2017 at 6:54 PM
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dragonborn
by Member on Jan. 14, 2017 at 8:49 AM
With a child that young, I would just make sure to give all my attention to her. There's no reason to do anything super speci", she would be happy to just spend time and play with you.
I'm so sorry you're going through this. *hugs*
Anonymous
by Anonymous 2 on Jan. 14, 2017 at 8:56 AM
Is there no medications or surgery to help this?
Anonymous
by Anonymous 1 - Original Poster on Jan. 14, 2017 at 2:21 PM
Yes there is medication and surgery that will slow down everything, but in the end she will need heart lung transplant.

I'm still looking for another two to ten years of life with her but I'd rather live like it's the last moments then take anything for granted.

Quoting Anonymous 2: Is there no medications or surgery to help this?
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