My lupus seems to be more CNS related lately. I am getting burning in my legs and twitching. Thoughts?
I seem to be having much of the same problem, and all I can think of is stress. I did not mean to come off as a smart butt. I think the longer we have our wonderful disease, the more we will notice it in our higher affected systems. I feel mine also is a CNS issue, I have memory issues, twitching, spasms etc... Good luck I hope it strightens out soon.
~ma
Ugh, I'm sorry. I have CNS Lupus and it SUCKS. I get these shocks all over and twitching sometimes so I know what you are going through. The only thing I've found that helps mine is heat, for some reason if I put a heated blanket on really hot until I can't stand it anymore it will make it go away for a while. Have you tried a TENS machine? I'm trying one now and having some good results, its mild electrical shocks, I'm not very experienced with it yet but so far I'm liking it.
it sucks. the twitching is super ANNOYING and the burning keeps me up at night : ( And yes, I'm a little stressed but it happens even when I'm not : (
I have a numbness in my arms or legs and I thought it was stress too but I notice hormonal changes can egg it on such as period, ovulation or when I am breastfeeding etc...
Quoting jdouglas111:Ugh, I'm sorry. I have CNS Lupus and it SUCKS. I get these shocks all over and twitching sometimes so I know what you are going through. The only thing I've found that helps mine is heat, for some reason if I put a heated blanket on really hot until I can't stand it anymore it will make it go away for a while. Have you tried a TENS machine? I'm trying one now and having some good results, its mild electrical shocks, I'm not very experienced with it yet but so far I'm liking it.
Okay so new question. When you say shocks, do you mean static electricity. I have a horrible problem with that and somedays are more electric than others, I asked my medical team about and was laughed at. Interested in your input.
Quoting DragonFlyGals:
Quoting jdouglas111:
Ugh, I'm sorry. I have CNS Lupus and it SUCKS. I get these shocks all over and twitching sometimes so I know what you are going through. The only thing I've found that helps mine is heat, for some reason if I put a heated blanket on really hot until I can't stand it anymore it will make it go away for a while. Have you tried a TENS machine? I'm trying one now and having some good results, its mild electrical shocks, I'm not very experienced with it yet but so far I'm liking it.
Okay so new question. When you say shocks, do you mean static electricity. I have a horrible problem with that and somedays are more electric than others, I asked my medical team about and was laughed at. Interested in your input.
No not static shocks. Have you ever had a nerve damaged? When a nerve starts coming back it feels like little zings or shocks or pinches, I get that a lot of the time all over and not in any sort of pattern or any certain area. I also have times where no matter what I do it feels like part of me is wet. Like part of my leg or a foot or a hand will just feel like it's soaked when it's not.
sorry to hear it but at least you got a diagnosis and hopefully they can treat it?
Quoting chickensmommy:
Just an update... Its restless legs syndrome. Mine is more severe.. It affects my arms too.
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super grouch
- chickensmommy
on Nov. 18, 2010 at 9:53 PM