My husbands male so obviously, she wanted to do blood work. A complete work up because "men just rarely get it". Poor guy is always getting stuck. Anyhow, she called back with the results. She said everything was negative! Wth? I went over his old labs. Once he had a positive ANA, one he had one that was homogeneous, but only 1:160. There, but low enough to give him a negative. Hes got every symptom and had been diagnosed, yet now hes being told he doesn't have it from someone who is supposed to be an expert. Its alot of mixed feeling really. Part says WOOHOO, this is a good thing. The other part says well WTF is going on then!! It sucks not having answers. When he got his lupus diagnosis it was saddening, but we FINALLY had answers. Now, were back at square one. Really frustrating. I found something called chronic fatigue syndrome, or CFS. The symptoms mimic those of lupus, but nothing will show on a bloo test. Going to bring this up with his doc. at his august apt. It mentions the only relief (for CFS) really is from low doses of codein. Coincidentally enough, at his last visit with his doc she gave him an oxycodone script. And, it helps tremendously with his pain... No anti-inflammatories work.
Hope to get answers soon.
I suppose I will leave the group since he "no longer" has lupus. I wish you all the best of luck!