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new dr nightmare...piog

Posted by on Jul. 24, 2013 at 4:20 AM
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My wonderful dr closed her practice in May. She is 42 and said she just needed a break from the day to day stress. Getting a dr in my area is almost impossible and when you are on Medicare, it is just about impossible. I called over 100 drs and finally was told that an approved practice had a dr joining them in July. I was told to get my dr to write prescriptions for my meds through July and the new dr did not prescribe anti depressants or anti psychotics. OK....the only anti depressant I take is for fibromyalgia and I can get my rheumatologist to do that.

I have lupus, rheumatoid arthritis, osteo arthritis, fibromyalgia, severe osteoporosis, 2 herniated discs, degenerative disc disease, cervical radiculapathy, spinal stenosis, and several other medical problems. I am on a lot of meds including 2 pain meds. 

I met the dr today. Well, he does prescribe anti depressants, but will not touch pain meds. Now, I am screwed. He said I would have to see a pain specialist. I have driven 100 miles to Dallas, seen one who approved the plan, but will not see me as a regular patient due to the distance. There is not ONE pain management specialist approved on my insurance plan in the Waco area. 

I am obese and the dr is SUPER OBESE. He asked if I had considered lap band surgery. I responded no and lupus patients CANNOT have lap band....if he just researched it, he would know that. Also, I have had 7 abdominal surgeries and have horrible, horrible problems with wound healing including incisions that have split open and others that had to be opened due to massive infections....all of which make me a poor candidate for any bariatric surgery. Also, I have SEVERE osteoporosis and am on daily injections for it which cost the insurance company $1400 a month. My t score is incredibly out of range for any bariatric surgery since vitamin malabsorption and osteoporosis are known side effects for bariatric surgery. I am on forteo which is a hard drug to have insurance approval. Although I brought my medical records, he honestly asked if I had a dexi scan. Um, yes, they would not know my t score without one. He commented on the amount of thyroid meds I am on. Yes, I have been hypothyroid for almost 40 years, have a goiter, and have had multiple thyroid nodules. I get the level checked every 3-6 months.....is it any wonder I am over weight?

I have lost 104 lbs on my own....I need to lose another 80-100 lbs., but bariatric surgery is not in my future. It took all of my restraint to not ask if he, whose stomach was dragging below the chair, had considered surgery. He wanted to see my surgery scars....His response was that I clearly had healing issues after seeing the massive scars. What, did I make up having massive surgeries?

I have fought tears all day and the appointment was at 9 am. I just don't know what to do. I called the insurance. They gave me the name of a pain dr...turns out, there is no dr by that name here and the phone number is to another practice. Turns out, the dr is a neurosurgeon in McKinney almost 130 miles from here. 

I miss my wonderful dr and just don't know what to do. 

by on Jul. 24, 2013 at 4:20 AM
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momof3inCT
by Member on Jul. 26, 2013 at 1:51 AM

IM SO sorry to hear this you need support and deserve bettter medical care!!!!!!!!!!!!!!!!!!!!!!!! I dont know if your on Facebook but I have joined a group there that is very supportive and im wondering if there maybe someone who lives in your area who can point you in the right direction for medical care?? YOu may want to check it out its called Lighthouse for lupus if your not on Facebook maybe look up a local support group maybe you can find someone else locally that way who can help! Wish I could do more sorry again!!

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