I GOT A LETTER FROM SSI 2DAY SAYING THEY WANT ME TO GO SEE THERE DOCTOR...
SO I WILL DO THIS ON JUNE 6,
I WILL KEEP EVERYONE POSTED
PEACE AND LUV 2 ALL
MONICA
jeremaih 29:11
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not harm you, plans to give you hope and a future..."
I have had 2 kidney transplants since then. I recenlty quit working because of the strain the job put on my physically and mentally.
I'm new here and can't wait to read other posts from other moms!
Thanks for sharing!!
Quoting luvbeinhermom:
both of these posts and comments have been interesting and encouraging to me. I was diagnosed with lupus 23 years ago (I was 18).
I have had 2 kidney transplants since then. I recenlty quit working because of the strain the job put on my physically and mentally.
I'm new here and can't wait to read other posts from other moms!
Thanks for sharing!!
God bless you. You have been through alot. I pray you continue to stay positive.
jeremaih 29:11
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not harm you, plans to give you hope and a future..."
I applied for SSI about 4 years ago. This past May I had a court date. In early July I got a letter of award (approval). I am receiving a monthly benefit and well as the Insurance benefit. I had a great lawyer that specialized in autoimmune diseases. I am still waiting for my "back pay" but I guess since I am dealing with the government, I will get it when I get it!
Good luck with your case and please update us!
B
hi im new to the group my name is christie i was diagnosed with lupus when i was 9 i had recently got sick about a year ago and applied for ssi they denied me and told me it was just because i was a nurses aid and it was too hard for my body i told them it doesnt matter if im at a desk all day when my lupus wants to be active it will. so i got denied.
Quoting lyncourtbrat:
don't be surprised if they don't see your condition as disabling. We went to capital 5 years ago to have lupus recognized as a diabling disease, they listened and it is now recognized. But not everyone has the physical symtoms of lupus (if you know what i mean). SSDI dr's are to weed out the obvious disbailities from the others. If they deny your case after you have been examined then get a disability lawyer. They can work wonders. They will not take a case unless it has been denied first. Then they require a small fee, I think about $25 for processing paperwork. Then they take care of the rest. They get paid a portion of your back pay if you are accepted. Keep your chin held high, it may be a bit of a haul, but don't let that discourage you.
jeremaih 29:11
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not harm you, plans to give you hope and a future..."
It almost sounds like another racket for the lawyers! SSI has to turn you down and then you have to hire a lawyer to get what is rightfully yours, and the lawyer gets a portion!!! I work in the medical field, and I have a daughter who has just been diagnosed with lupus. I've known about the harsh reality of this disease for many years, but I've learned more in the past month than I learned in the last 20 years!
I was diagnosed with lupus 5 years ago, and in September I had to cut down on my work and in Feb. I went on medical leave and am applying for disability.
I have a lawyer and this is my first time applying. The lawyer does NOT get pain unless I WIN my case, period, at all, payed nothing!!!!!!
So, it is well worth trying to get a lawyer your first time applying. Like lionsheartmojo, I have an appointment in June, but that app. is for congnitive problems and is with a pychiatrist. I have an app. on May 29 with Internist.
When I applied, I was told they wanted me to see 2 of their drs. I asked why, my doctors are recommended by MAYO and demanded they tell me how their drs were more qualified than mine. The woman stumbled on her words and said that my dr thought I was in remission. I knew that was not true. My dr started off his notes with "evaluate for remission and would go through several checks and would put his evaluation at the bottom of the page. I knew this because I had a copy of my records. I asked her to keep reading. She got to the bottom of the page of notes and said, "Oh." The next day I was told there was no reason to see any of their doctors.
I don't necessarily recommend my approach to every one, but I do suggest that every person who applies for benefits should get a copy of their records. You can't go into battle unless you know what weapons are at your disposal. I have seen sick people denied and people who should be working approved. The system sucks and autoimmune illnesses are poorly understood. Good luck.
dex side effects...
- lionsheartmojo
on May. 10, 2007 at 8:32 PM