I decided to start the group a couple of weeks ago because I became tired of trying to find moms like me out there that are dealing with little ones and having to cope with RA.
I had nothing against women that have grown children its just that I need someone to talk to that could relate to what I deal with everyday.
Whether it be a discussion about pregnancy with RA, chasing a 2 year old or walking your kid to school.
I was diagnosed with RA when I was 19 the doctors mentioned that it could have been this car accident I was in that could have brought out the RA that was eventually going to hit me. Hmmm.... I still don't know if I believe that.
I married my high school sweetheart at 21 and lived a life of swollen painful hands and feet for years after....more poor husband, what he had to deal with for me.
Despite the pain I continued to work as a Medical Assistant and then I finally became pregnant and decided to quit my job and stay at home.
Of coarse it was planned because I had to get off most of my meds but I felt it was worth it.
I was happily pregnant for 5 months then everything went wrong.... I started to feel funny, some stomach pains and some chest pains. I knew something was wrong. I called my doctors office millions of times for the nurse to keep repeating "All expecting mothers feel uncomfortable at this stage of the pregnancy."
But I knew something was wrong.
Later that week I went in for a normal check up and I was rushed to the Hospital and an emergency C-section was performed. My son was only 1lb and fought for his life for almost 3 months. He passed away in January 2002
Later I was told that I had pre-eclampsia....my blood pressure was so high that they thought I wouldn't make it one more day pregnant without losing my own life.
I of coarse was devastated and my husband, but I decided to talk to other doctors that were high risk specialist and what I found out was that my doctor should have ran a simple blood test that would have told them that I had Anti-phospholipid Antibody Syndrome. And apparently most women with RA develop this blood-clotting problem.
I changed doctors and decided to try to get pregnant again I was put on Lovenox, a blood thinner, that had to be injected everyday by myself in my stomach. Yeah it was horrible and I became so bruised from the shots I couldn't lean my belly against anything without screaming in pain. Good excuse for not washing dishes ;)
But now I have 2 beautiful children and once a upon a time I thought my RA would get in my way again but I'm happy to say I kicked RAs ass.