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Hi Everyone
I decided to start the group a couple of weeks ago because I became tired of trying  to find moms like me out there that are dealing with little ones and having to cope with RA.

I had nothing against women that have grown children its just that I need someone to talk to that could relate to what I deal with everyday.
Whether it be a discussion about pregnancy with RA, chasing a 2 year old or walking your kid to school.

I was diagnosed with RA when I was 19 the doctors mentioned that it could have been this car accident I was in  that could have brought out the RA that was eventually going to hit me. Hmmm.... I still don't know if I believe that.
I married my high school sweetheart at 21 and lived a life of swollen painful hands and feet for years after....more poor husband, what he had to deal with for me.
Despite the pain I continued to work as a Medical Assistant and then I finally became pregnant and decided to quit my job and stay at home.

Of coarse it was planned because I had to get off most of my meds but I felt it was worth it.

I was happily pregnant for 5 months then everything went wrong.... I started to feel funny, some stomach pains and some chest pains. I knew something was wrong. I called my doctors office millions of times for the nurse to keep repeating "All expecting mothers feel uncomfortable at this stage of the pregnancy."
But I knew something was wrong.

Later that week I went in for a normal check up and I was rushed to the Hospital and an emergency C-section was performed. My son was only 1lb and fought for his life for almost 3 months. He passed away in January 2002
Later I was told that I had pre-eclampsia....my blood pressure was so high that they thought I wouldn't make it one more day pregnant without losing my own life.

I of coarse was devastated and my husband, but I decided to talk to other doctors that were high risk specialist and what I found out was that my doctor should have ran a simple blood test that would have told them that I had Anti-phospholipid Antibody Syndrome. And apparently most women with RA develop this blood-clotting problem.

I changed doctors and decided to try to get pregnant again I was put on Lovenox, a blood thinner, that had to be injected everyday by myself in my stomach. Yeah it was horrible and I became so bruised from the shots I couldn't lean my belly against anything without screaming in pain. Good excuse for not washing dishes ;)

But now I have 2 beautiful children and once a upon a time I thought my RA would get in my way again but I'm happy  to say I kicked RAs ass.
by on Mar. 30, 2008 at 10:41 AM
Replies (31-35):
lovagelien
by New Member on Aug. 18, 2008 at 3:14 PM

I know that it is hard to have something and get a song and dance session from your doctors.  I also have migrains and seizures and honestly the only doctor that would pin point what type of seizures I'm having was my OB/GYN he has been an angel to me. Don't give up on finding a doctor the right one will come around.

Amber Tipton

annabelles
by Group Owner on Aug. 19, 2008 at 6:55 PM


Quoting lovagelien:

  The other day Bryan forgot to open a case of diapers for our youngest. Bless her heart she had to sit there with a cloth diaper on until my dad could make the 30min. drive to my house to open them for me. Bryan tells me that it isn't my fault and I shouldn't feel bad about needing things like that, but I do.


I know we're told we shouldn't blame ourselves but unfortunately I don't know how to stop myself. I blame myself everyday for the past 7 years for what happened to my baby. I had problelms with blood clotting(caused by my RA) during my first pregnancy which cause me to have pre-eclampsia(high blood pressure) and had to have my baby really early I was only 5.5 months pregnant and of coarse he didn't make it. So I hate myself for not seeing a high risk specialist that would have found this problem, I needed blood thinners during pregnancy. I've had two beautiful healthy kids since and I will always blame myself for I did to my son. Every year at his birthday,which is coming up, I tell him how sorry I am for what I put him through and my husband tells me I have to stop saying this but I can't because I love him and that's why we blame ourselves. We're their mothers we love them and we want to do everything for them and thats why you will continue to blame yourself and its okay it just means your a loving mom.

momoffore
by New Member on Aug. 30, 2008 at 3:44 PM

Unfortunately not only do we blame ourselves, but if you are like me, you take it out on others.  I get so frustrated trying to make dinner and when it comes to opening jars, I just dont have the strength.  One night I was making spagetti for dinner and my husband was not home yet, he was late which made me mad too, and I couldn't get the jar open and boy did I rip my husband a new one when he got home.  Poor thing, it wasn't really his falt.  I do have a great hubby though, he puts up with me and helps me out with the new baby, more than most men do with a healthy wife.  Thank god for putting good people in our lives!

Armywife91003
by New Member on Oct. 13, 2008 at 12:08 PM

Hello all. I am 25. I have a 2 year old son (who is a handful.lol), My DH of 5 years is in the Army. We r currently stationed in VA. I was diagnosed with RA when I was 5. So I have had to deal with it most of my life. I have a ard time with the medications because I have a weak stomach for meds. I have had 3 bleeding ulsers and 5 non bleeding ulsers in my life. I a sooooooooo happy i found a site like this. It will b so nice to talk to ppl who know what I am going through. I can't wait to talk to u all.

annabelles
by Group Owner on Oct. 14, 2008 at 7:55 PM


Quoting Armywife91003:

Hello all. I am 25. I have a 2 year old son (who is a handful.lol), My DH of 5 years is in the Army. We r currently stationed in VA. I was diagnosed with RA when I was 5. So I have had to deal with it most of my life. I have a ard time with the medications because I have a weak stomach for meds. I have had 3 bleeding ulsers and 5 non bleeding ulsers in my life. I a sooooooooo happy i found a site like this. It will b so nice to talk to ppl who know what I am going through. I can't wait to talk to u all.


Welcome "Armywife91003"!
I understand the stomach problems thing...I, every couple years, go in to have an Upper GI to make sure I don't have anything serious going on in my stomach. I'm glad to say the Aciphex, the med Im on for my stomach, is helping. Im on Enbrel, an injection that I inject myself into my belly once a week, for my RA which is nice....one less oral med for my stomach to deal with. So far its my miracle drug. The only drug that keeps me going day and night without morning stiffness. Now if Im on my feet for more than 6 hours I'll feel it the next day but usually it only takes me a day of being off my feet to get me back to "mommy on the go" again. Make sure to share anything you want about yourself we all here completely understand what you are going through.
Take care of yourself for you and your son :)

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