Has your child had ureter reimplantation surgery?
Here is a bump for more responses. I have no idea what type of surgery that is, sorry.
bumping because just found out that DD (2 and 1/2) is having Glenn-Anderson procedure...apparently stents will be inserted into both ureters to elongate them and reduce the incidences of urine reflux and UTIs? DH took her to appt where we found out, so I have LOTs of questions and still awaiting a return call from doctor
The surgery is to correct a urine reflux in the ureters/kidneys. The reflux causes chronic UTIs, kidney and bladder infections. My daughter had the surgery in 2010 and is now on her second kidney infection within a month....so she had a 2-year break. I was hoping she would have been in the clear.....
Quoting natesmom1228:Here is a bump for more responses. I have no idea what type of surgery that is, sorry.
Quoting kgirl58:bumping because just found out that DD (2 and 1/2) is having Glenn-Anderson procedure...apparently stents will be inserted into both ureters to elongate them and reduce the incidences of urine reflux and UTIs? DH took her to appt where we found out, so I have LOTs of questions and still awaiting a return call from doctor
Ours is level 4 also. I have to admit I'm not yet sold on the stents, but we were told that the alternative (and I don't know what that is...it may NOT be what your daughter had) can create complications later in life should the patient develop kidney stones. Apparently the stones won't pass. So what does reconstructive surgery entail?
We were told that even if she outgrows this, the number of infections and damage to her kidneys and bladder while we wait for a possible outgrow is too risky. But I really don't like the idea of surgery on a 2 and 1/2 year old and I find it hard to believe that she can have stents inserted now that will work for the rest of her life.
Thankfully she didn't have any scarring on her kidneys, but she was on a daily antibiotic for like 7 months. Which I HATED - I'm not one to use antibiotics all willy-nilly.
Her urologist won't be able to see her until October 3rd. I hope to get some answers then. I bet she will order another VCUG to see if my daughter is still refluxing.....my daughter hated that procedure.
I know it's hard to imagine such a little one going through surgery but if she has a level 4 reflux, I would think it is surely a necessity. I worry more about long term kidney damage,otherwise :o/
Quoting kgirl58:Ours is level 4 also. I have to admit I'm not yet sold on the stents, but we were told that the alternative (and I don't know what that is...it may NOT be what your daughter had) can create complications later in life should the patient develop kidney stones. Apparently the stones won't pass. So what does reconstructive surgery entail?
We were told that even if she outgrows this, the number of infections and damage to her kidneys and bladder while we wait for a possible outgrow is too risky. But I really don't like the idea of surgery on a 2 and 1/2 year old and I find it hard to believe that she can have stents inserted now that will work for the rest of her life.
Quoting banana-bear:
The surgery was almost 5 hours long, so fairly complicated. Basically, she took the ureters and stretched them out, making the opening more narrow, then stitched them to her bladder accordingly. My daughter has a c-section scar, but the stitches were all on the inside and the scar is pretty minimal now. Her recovery was pretty fast. She stayed 2 days in the hospital and stayed two weeks out of school (she was in PPCD).
Thankfully she didn't have any scarring on her kidneys, but she was on a daily antibiotic for like 7 months. Which I HATED - I'm not one to use antibiotics all willy-nilly.
Her urologist won't be able to see her until October 3rd. I hope to get some answers then. I bet she will order another VCUG to see if my daughter is still refluxing.....my daughter hated that procedure.
I know it's hard to imagine such a little one going through surgery but if she has a level 4 reflux, I would think it is surely a necessity. I worry more about long term kidney damage,otherwise :o/
Quoting kgirl58:
Ours is level 4 also. I have to admit I'm not yet sold on the stents, but we were told that the alternative (and I don't know what that is...it may NOT be what your daughter had) can create complications later in life should the patient develop kidney stones. Apparently the stones won't pass. So what does reconstructive surgery entail?
We were told that even if she outgrows this, the number of infections and damage to her kidneys and bladder while we wait for a possible outgrow is too risky. But I really don't like the idea of surgery on a 2 and 1/2 year old and I find it hard to believe that she can have stents inserted now that will work for the rest of her life.
Which antibiotic is she on? Sophia was on Sulfameth/Trimeth-something-or-another. She never had an infection while on it. I'm sorry she's still getting infections while on antibiotics - that's awful :o( So you found out when she was really young? I found out when my daughter was 3.5 years old. We should have known sooner because she has auditory issues as well, and the two are usually related since they both form at the same time in utero.
Quoting kgirl58:Thanks. I understand re: the antibiotics...we have been on them daily for 2 years now. We've had 2 VCUG and no damage (as of last Oct), but simply too many infections, despite the antibiotic. I can't imagine a 5 hour surgery!
No, but I wish you good luck! I've had kidney/bladdar issues, but fortunately this wasn't one of them. I had issues with my urethra being too small and chronic kidney/bladdar infections.
Is there any way to make tying shoes fun?
- banana-bear
on Aug. 28, 2012 at 10:17 AM