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im so sick of this need input *update*

Posted by on Apr. 9, 2013 at 1:28 AM
  • 13 Replies

Ok let's see where do I start? I guess at the beginning.
At 3 we noticed our son squinting and holding things close to his face. Took him to the eye doctor who said he needed reading glasses and we needed to monitor him for tracking and convergence issues.
At 4 the same eye doctor gave him stronger reading glasses and said he had not outgrown the tracking and convergence issues. He needed to have a further evaluation done. If I remember right it's $400. Insurance will not cover it.
Talked to a friend who is in charge of head start for the county. Next thing I know they are doing a full evaluation on my son. They said he had no vision problems at all. The only issue they found had to do with his fine motor skills.
He had a checkup with the pediatrician later and miserably failed the eye exam. She wanted another opinion and then to see him back. Insurance approved it. Eye doctor said his eyes were perfect and he didn't need reading glasses at all even.
Pediatrician was as confused as I was and sent him to a pediatric ophthalmologist 2 hours away. There I was told his eyes were perfect. We donated the glasses and moved on with life. I think this was last summer.
My son goes to a charter homeschool program. His mentor teacher mentioned the possibility of a tracking problem and I completely blew it off. Been there checked that right?
But then today I was reading in the out of sync child about how tracking problems can present differently in kids with spd so they often get overlooked. I told the mentor I needed to talk to her without ds and asked her if she really thought this was something I should peruse. I told her what I read and asked her what made her think he had tracking issues.
I hadn't even noticed how much he rubs his eyes when he reads. I knew he reads twice as fast following along with his finger but just thought it was part of being 5. I knew he has a hard time going to the next line but once again thought it was just because he's 5. I knew he squints and sometimes complains things are hard to see but he's been checked so many times!
Turns out his mentor has researched spd and tracking problems. She even has the name and number of an eye doctor who knows about it.
The same eye doctor he went to at 3! The same one who prescribed the reading glasses everybody else said he doesn't need. I told her this and she says that's not uncommon with these kids just because they are trying to give the eyes a little help so they can work on the tracking. With the eyes still developing the glasses are helpful.
And tonight ds was telling me his eyes hurt when he reads. He reads a ton. He's at 3rd grade level reading chapter books.
I just don't know what to think here. Any thoughts?
Thankfully the school has the eyes on track program so I won't have to pay the hundreds a month for therapy. They really want him evaluated but if it's too crazy expensive they say we will just start the program without it.
What would you do?


*update*

We went to the eye doctor today.  Very interesting eye doctor.  A new one to us but he specializes in tracking.  He had some interesting things to say.   First of all my son should be left handed not right which is only adding to his problems.  I had him try to write left handed earlier and he did pretty well.  We're going to work on that.  Secondly he could tell my daughter doesn't eat sugar but my son's eyes showed a food allergy still.  What in the world that is I have no clue!  

This eye doctor says that his eyes hurt because he's been asked to do something that he cannot do at this age.  He's reading chapter books and at this age his eyes just aren't developed enough for reading.  He's very anti-reading before the age of 7.  I'm sorry my son taught himself at 4 and I'm certainly not going to take his books away!  He loves to read!  He feels the same about my son playing tee ball, it's too hard on undeveloped eyes.  But he says he knows it's unreasonable to expect me to change those things.

He says that whoever told me my son doesn't have tracking issues is crazy.  He wanted me to start a therapy program with him but when I saw it was $125 for this tiny book I said there was no way I could afford that (which was true).  I asked him about eyes on track and he said he's not familiar with that program and how it works.  Jason's mentor can call him with details if she feels it is important and we can go from there.  In the meantime we are going to do lens therapy (glasses) and he thinks that alone will make a huge difference for my son.

He knew a ton about child development and has truly studied and researched all of this stuff.  I mean he could quote the study he got his information from and everything.

His glasses should be in next week.


Being a full-time mother is one of the highest salaried jobs in my field, since the payment is pure love.  ~Mildred B. Vermont
by on Apr. 9, 2013 at 1:28 AM
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Replies (1-10):
SophieLee
by on Apr. 9, 2013 at 6:56 AM

Give it another go. Let your son do the talking now. At 3 it is hard for them to say if they are able to see or not. My son is 3 and his thing is going to the zoo.. we have never been to the zoo... LOL


Give it another shot. See how it goes and trust what you feel, not what they tell you.

JasonsMom2007
by Silver Member on Apr. 9, 2013 at 11:13 AM

Thanks I'm just so frustrated.  His eyes aren't the only thing I've gone around in circles with.  When he was diagnosed with spd we were able to find it was the source of most of his odd medical stuff nobody could figure out and we have been greatly enjoying life without doctors appointments.  I just don't want to start again!


Quoting SophieLee:

Give it another go. Let your son do the talking now. At 3 it is hard for them to say if they are able to see or not. My son is 3 and his thing is going to the zoo.. we have never been to the zoo... LOL


Give it another shot. See how it goes and trust what you feel, not what they tell you.




Being a full-time mother is one of the highest salaried jobs in my field, since the payment is pure love.  ~Mildred B. Vermont
corrinacs
by on Apr. 9, 2013 at 2:34 PM

I would go through the eyes on track program, since its available to you!  Let them evaluate him.  Also, you remember taht first doctor.  Did you see him again?  Perhaps you should just to see what he has to say on teh subject.  

Someimtes its hard to diagnose issues, especially when the symptoms can vary so mcuh from child to child.  Since you've had several doctors and specialists pinpoint the issue, perhaps he will pursue it more.  Sinec he does know more about it, he may have more recommendations for you!

Good luck!

JasonsMom2007
by Silver Member on Apr. 9, 2013 at 2:39 PM

Thanks I called the old eye doctor to see what he thought and he doesn't take our insurance anymore.  So I spent my morning tracking down someone who does take our insurance who specializes in tracking problems and knew about sensory processing disorder.  Both of my kids have appointments this afternoon thanks to a cancelation.  My daughter's doctor was concerned about her eye because it's slightly off from the other eye.  He told me I could give it 6 months 2 months ago but she'll be much more cooperative if she goes at the same time as her brother.


Quoting corrinacs:

I would go through the eyes on track program, since its available to you!  Let them evaluate him.  Also, you remember taht first doctor.  Did you see him again?  Perhaps you should just to see what he has to say on teh subject.  

Someimtes its hard to diagnose issues, especially when the symptoms can vary so mcuh from child to child.  Since you've had several doctors and specialists pinpoint the issue, perhaps he will pursue it more.  Sinec he does know more about it, he may have more recommendations for you!

Good luck!




Being a full-time mother is one of the highest salaried jobs in my field, since the payment is pure love.  ~Mildred B. Vermont
mom22tumblebugs
by Gold Member on Apr. 9, 2013 at 2:43 PM

try again. he is older now and can communicate better what is he seeing or not seeing.

ashleysmommy123
by on Apr. 9, 2013 at 3:17 PM

Well after reading your whole post it seems that maybe te first doctor had it right.....he was the one who told you to watch for tracking issues to begin with, and maybe at such a young age the glasses helped to correct any vision problems he might have had.  I'd check into the evaluation.  Are you using your medical insurance, not vision?  Vision insurance only covers so much, but certain problems, like the ones you describe usually are covered under medical.  Good luck

JasonsMom2007
by Silver Member on Apr. 9, 2013 at 3:19 PM

I've tried both vision and medical.  Nobody covers it.  

I'll see what the new doctor says.  The old one doesn't take our insurance anymore.  I found a new one that specializes in tracking problems and knows about spd.


Quoting ashleysmommy123:

Well after reading your whole post it seems that maybe te first doctor had it right.....he was the one who told you to watch for tracking issues to begin with, and maybe at such a young age the glasses helped to correct any vision problems he might have had.  I'd check into the evaluation.  Are you using your medical insurance, not vision?  Vision insurance only covers so much, but certain problems, like the ones you describe usually are covered under medical.  Good luck




Being a full-time mother is one of the highest salaried jobs in my field, since the payment is pure love.  ~Mildred B. Vermont
JasonsMom2007
by Silver Member on Apr. 9, 2013 at 10:12 PM

we went so I updated

aetrom
by Gold Member on Apr. 10, 2013 at 8:30 AM
Ugh how frustrating!!
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cjsmom1
by Silver Member on Apr. 10, 2013 at 8:37 AM
Hopefully you can get the help you need for both kids. I've never heard of not reading until age 7.
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