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IEP- What's in your child's (if you don't mind me asking)?- little dr. update (heard of this?)

Posted by on Feb. 6, 2014 at 3:58 PM
  • 49 Replies

Hi,

so my son has generalized anxiety with sensory integration issues.  He kind of has somatization disorder but that only happens when it comes to school, which is his trigger.  Anwyay, he has a 504 plan.  We met with the SST team on Tuesday & they want to do testing for an IEP.  We're going to go ahead & let them do it.  The psychologist brought up Autism again, but everytime he's tested he's determined not to have it. Currently my son has the following:  

--  an aide

--  on a modified schedule of 10:30-2:30, later if there's a sub.  

--  He's allowed to take  breaks when needed from the classroom .

--  He has an area in the back of the room with headphones if needed but he doesn't use them.  

So I emailed his Behavioral Ped with an update & a request for an OT referral, and this is what he said, "What probably needs to happen in addition to (or instead of) an IEP is something called an FBA (functional behavioral analysis), for the purpose of initiating a formal BIP (behavior intervention plan).  Cristian's difficulties in school are due to his sensory integration issues triggering his anxiety attacks.  If a district-based behaviorist can help the teachers and school develop a consistent plan, it might help a lot."

by on Feb. 6, 2014 at 3:58 PM
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Replies (1-10):
frndlyfn
by Gold Member on Feb. 6, 2014 at 4:12 PM

She has one on one with a person every day for i think 30-45 minutes.  She can dictate 75% of her written work when she does not want to do actual writing. She has OT, ST, PT throughout the week.   I think there are a few other things as well.  This year she was promoted to speech only once a week whereas last 2 years she had it twice a week.  They took away the behavioral session since she is now able to better interpret social cues.

emarin77
by Bronze Member on Feb. 6, 2014 at 4:22 PM

My son has mild/high functioning Autism and receives speech therapy at school.  He is in a typical kindergarten classroom.

Who's testing your son for Autism?  A child psychologist or doc with experience with Autism should be diagnosing only.

mommy2cristian
by Bronze Member on Feb. 6, 2014 at 4:38 PM

 I will make a point to find out.  We haven't received the paperwork yet.  They said they will mail us paperwork to review & let us know what's being tested, then we sign it if we agree.  In the past he's been tested by Harbor Regional Center twice which works with Autistic kids & those that are mentally challenged.  When he received OT services prior she ruled it out.  The Developmental Ped said the Autism question comes from his sensory integration because some of it mimics or is found in Autism, but he's not Autistic. 

Quoting emarin77:

My son has mild/high functioning Autism and receives speech therapy at school.  He is in a typical kindergarten classroom.

Who's testing your son for Autism?  A child psychologist or doc with experience with Autism should be diagnosing only.

 

littlecheifsmom
by Member on Feb. 6, 2014 at 4:50 PM
Our son is in 3rd grade with high functioning autism.
He's in a reg classroom
2 hrs a week he goes to rsp to help teach him social interaction. He has a very hard time readying others body cues. & doesn't understand why other kids don't always like what he does. He thinks everyone is just like him.

We have all the documentation & evals from the schools physiologist. We have an appointment
pending to get him seen with someone who specialises in this.

We also have to have if he's out of school for any. reason his class work & homework will be waiting by noon for me to.pick up. That way he doesn't fall behind. ( we have asthma issues were trying to get under control) his school refuses to give him his meds if the nurse isn't there ( she's there once a week) yet he can't Carry.his inhaler with him in his bag. So I refuse to send him.

& a bullying policy. If my son complains about it to someone they.must.listen & I get a note or call informing me. Ds will tell me too. After I.put this in his iep the. Bullying stoped
emarin77
by Bronze Member on Feb. 6, 2014 at 4:56 PM

 I will tell you, Autism is a behavieral/socialization/ communication disorder.  Some individuals do not have sensory issues or very little.  If a child does not have the first three challenges, Autism would not be considered.   What are his sensory issues that your child has? 

Quoting mommy2cristian:

 I will make a point to find out.  We haven't received the paperwork yet.  They said they will mail us paperwork to review & let us know what's being tested, then we sign it if we agree.  In the past he's been tested by Harbor Regional Center twice which works with Autistic kids & those that are mentally challenged.  When he received OT services prior she ruled it out.  The Developmental Ped said the Autism question comes from his sensory integration because some of it mimics or is found in Autism, but he's not Autistic. 

Quoting emarin77:

My son has mild/high functioning Autism and receives speech therapy at school.  He is in a typical kindergarten classroom.

Who's testing your son for Autism?  A child psychologist or doc with experience with Autism should be diagnosing only.

 

 

mommy2cristian
by Bronze Member on Feb. 6, 2014 at 5:03 PM

 Interesting.  To be honest I don't think my son has Autism, but only because he doesn't fall on the spectrum.  KWIM?  I've always felt he had autistic tendencies so to speak or it was sensory processing disorder (falls in line with that more), but not enough of either to be diagnosed.  When you say the highlighted part that reminds me of my son.  I don't know if it's that he's not capable of picking up cues or just because he's not paying attention. 

My son also has asthma but there's no school nurse.  The secretary gives it to him. I won't send him if he's coughing a lot & needs multiple treatments.  Other than that he doesn't go to school on days he has therapy. 

Quoting littlecheifsmom: Our son is in 3rd grade with high functioning autism.
He's in a reg classroom
2 hrs a week he goes to rsp to help teach him social interaction. He has a very hard time readying others body cues. & doesn't understand why other kids don't always like what he does. He thinks everyone is just like him.

We have all the documentation & evals from the schools physiologist. We have an appointment
pending to get him seen with someone who specialises in this.

We also have to have if he's out of school for any. reason his class work & homework will be waiting by noon for me to.pick up. That way he doesn't fall behind. ( we have asthma issues were trying to get under control) his school refuses to give him his meds if the nurse isn't there ( she's there once a week) yet he can't Carry.his inhaler with him in his bag. So I refuse to send him.

& a bullying policy. If my son complains about it to someone they.must.listen & I get a note or call informing me. Ds will tell me too. After I.put this in his iep the. Bullying stoped

 

mommy2cristian
by Bronze Member on Feb. 6, 2014 at 5:09 PM

 Through Harbor they look specifically for certain things.  I have a report (not in front of me) of what they look or test for & they said he falls within the normal ranges.  The psychologist referred him to Mental Health because she found he had high levels of anxiety.  It was more like when he was a baby he was delayed & it was kind of on the down low where his Ped referred him to OT, but didn't tell me that she was concerned about Autism.  The OT let me know that was why he was referred.  He was a little over 1 & they ruled it out then 2 years ago I had him tested again. 

His sensory issues have become better.  When he was little he didn't like to be touched.  He had issues with texture like playdoh & icing.  He has issues with loud noises like flushing of public toilets, garage opening, whistles, his brother's voice (lol).  The sound he still has problems with, but the touching has gotten a lot better.  When he started having problems at school he developed issues with texture like his socks or his underwear or his clothing itching him.  He's a picky eater but I don't think that's a textural thing. 

Quoting emarin77:

 I will tell you, Autism is a behavieral/socialization/ communication disorder.  Some individuals do not have sensory issues or very little.  If a child does not have the first three challenges, Autism would not be considered.   What are his sensory issues that your child has? 

Quoting mommy2cristian:

 I will make a point to find out.  We haven't received the paperwork yet.  They said they will mail us paperwork to review & let us know what's being tested, then we sign it if we agree.  In the past he's been tested by Harbor Regional Center twice which works with Autistic kids & those that are mentally challenged.  When he received OT services prior she ruled it out.  The Developmental Ped said the Autism question comes from his sensory integration because some of it mimics or is found in Autism, but he's not Autistic. 

Quoting emarin77:

My son has mild/high functioning Autism and receives speech therapy at school.  He is in a typical kindergarten classroom.

Who's testing your son for Autism?  A child psychologist or doc with experience with Autism should be diagnosing only.

 

 

 

emarin77
by Bronze Member on Feb. 6, 2014 at 5:26 PM

 Any child can have anxiety, my son has the flushing the toilet scensory issue too.   It is common for children to grow out of sensory issues.  I have difficulties with loud noises but I only have Central Auditory Processing Disorder.  You can have sensory issues and not have Autism because if one does not have difficulties with their communication/behavier/socialization difficulties.  That is why a specialist of Autism needs to diagnose for the correct diagnosis.

Quoting mommy2cristian:

 Through Harbor they look specifically for certain things.  I have a report (not in front of me) of what they look or test for & they said he falls within the normal ranges.  The psychologist referred him to Mental Health because she found he had high levels of anxiety.  It was more like when he was a baby he was delayed & it was kind of on the down low where his Ped referred him to OT, but didn't tell me that she was concerned about Autism.  The OT let me know that was why he was referred.  He was a little over 1 & they ruled it out then 2 years ago I had him tested again. 

His sensory issues have become better.  When he was little he didn't like to be touched.  He had issues with texture like playdoh & icing.  He has issues with loud noises like flushing of public toilets, garage opening, whistles, his brother's voice (lol).  The sound he still has problems with, but the touching has gotten a lot better.  When he started having problems at school he developed issues with texture like his socks or his underwear or his clothing itching him.  He's a picky eater but I don't think that's a textural thing. 

Quoting emarin77:

 I will tell you, Autism is a behavieral/socialization/ communication disorder.  Some individuals do not have sensory issues or very little.  If a child does not have the first three challenges, Autism would not be considered.   What are his sensory issues that your child has? 

Quoting mommy2cristian:

 I will make a point to find out.  We haven't received the paperwork yet.  They said they will mail us paperwork to review & let us know what's being tested, then we sign it if we agree.  In the past he's been tested by Harbor Regional Center twice which works with Autistic kids & those that are mentally challenged.  When he received OT services prior she ruled it out.  The Developmental Ped said the Autism question comes from his sensory integration because some of it mimics or is found in Autism, but he's not Autistic. 

Quoting emarin77:

My son has mild/high functioning Autism and receives speech therapy at school.  He is in a typical kindergarten classroom.

Who's testing your son for Autism?  A child psychologist or doc with experience with Autism should be diagnosing only.

 

 

 

 

littlecheifsmom
by Member on Feb. 6, 2014 at 5:32 PM
Well he's not dx yet. This us what those tests say.

He does have sensory issues. He hates water ie beach, sand differed textures ect. He gets scared really easy. Fast or very loud noises cares him & will lead to a break down.

We have always known "something" isn't right. But really don't know what that "something" is. So far all his drs say he's fine. Till his new school. The child physiologist thinks there's an underlying issues ( & 3 years ago my mom.passes suddenly & could have caused a few issues).

We are waiting to get seen by other professionals to help us help him

Quoting mommy2cristian:

 Interesting.  To be honest I don't think my son has Autism, but only because he doesn't fall on the spectrum.  KWIM?  I've always felt he had autistic tendencies so to speak or it was sensory processing disorder (falls in line with that more), but not enough of either to be diagnosed.  When you say the highlighted part that reminds me of my son.  I don't know if it's that he's not capable of picking up cues or just because he's not paying attention. 


My son also has asthma but there's no school nurse.  The secretary gives it to him. I won't send him if he's coughing a lot & needs multiple treatments.  Other than that he doesn't go to school on days he has therapy. 


Quoting littlecheifsmom: Our son is in 3rd grade with high functioning autism.
He's in a reg classroom
2 hrs a week he goes to rsp to help teach him social interaction. He has a very hard time readying others body cues. & doesn't understand why other kids don't always like what he does. He thinks everyone is just like him.

We have all the documentation & evals from the schools physiologist. We have an appointment
pending to get him seen with someone who specialises in this.

We also have to have if he's out of school for any. reason his class work & homework will be waiting by noon for me to.pick up. That way he doesn't fall behind. ( we have asthma issues were trying to get under control) his school refuses to give him his meds if the nurse isn't there ( she's there once a week) yet he can't Carry.his inhaler with him in his bag. So I refuse to send him.

& a bullying policy. If my son complains about it to someone they.must.listen & I get a note or call informing me. Ds will tell me too. After I.put this in his iep the. Bullying stoped

 

steelcrazy
by Emerald Member on Feb. 6, 2014 at 6:40 PM

 I've never heard of IEP testing before and my oldest has had his IEP for anxiety for 8 years now.  He was diagnosed with anxiety by his psychologist at the age of 5.  His psychologist informed the school and our pediatrician of his diagnosis, the school knew of my son's diagnosis prior to him starting kindergarten and he started kindergarten with an IEP already in place.

I don't recall everything that was in his IEP initially, as it has been so long as and we have slowly weaned him off of services and aides.  Initially his psychologist attended the IEP meetings with me to help me with the process. 

He had a yellow flag that he put on his desk when he began feeling anxious and he was supposed to use a stress ball that he kept in his desk to help him calm down.  If that didn't help, he would then put a reg flag on his desk, quietly get up, leave the room, and go to the emotional support room for help.  He received therapy three times a week during the school day as well as once a week with his psychologist.  He was given extra time on all assignments and tests, if he needed it.  He also had the ability to take all tests, including state testing in the emotional support room.

Wanted to add that school's can not diagnose medical conditions, only a doctor can do that.  Also, an IEP is a legal document, not a medical diagnosis.

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