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Posted by on May. 6, 2012 at 12:52 PM
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Hello I am Stephanie and my daughter Amillianna was just diagnosed on 4/30/12 with ALL and we just started treatment, she is 17 months old. We are from Iowa, came here just to talk to some other moms who have been there or are still going through treatment, as I have no idea what to expect.

 

Look forward to chatting with you all more

by on May. 6, 2012 at 12:52 PM
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Replies (1-10):
ShannanAjluni
by on May. 6, 2012 at 11:47 PM
Welcome.
My son was diagnosed with Histiocytosis on 12/30 of last year at 19mo old. Even though its been 17 weeks of treatment, at times it feels like we just started... At times it feels like we've been doing this forever.
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graciesmom2009
by Member on May. 7, 2012 at 6:55 AM
My daughter was diagnosed with ALL on 12/21/10. Her end of treatment date is 4/11/13. It has been a long road but she is doing great. Just remember that every child is different in this process. Best wishes and prayers are with you and your famiy.
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bellarose1230
by Member on May. 8, 2012 at 9:19 AM

 Hello hun. My son Anthony was dx on Nov 18, 11 with ALL as well. Anthony will be 3 in August. What phase of treatment are you in? There is an awesome group on facebook as well just for moms with kids with all that has helped me along with this group. Its  http://www.facebook.com/?ref=logo#!/groups/130969263666091/272233492873000/?notif_t=group_comment_reply

Looking forward to chatting with you more hun. Have a great day

king04
by on May. 8, 2012 at 12:13 PM

Hi, We are in the induction phase tomorrow we go into the clinic for her iv treatment and second LP.

Quoting bellarose1230:

 Hello hun. My son Anthony was dx on Nov 18, 11 with ALL as well. Anthony will be 3 in August. What phase of treatment are you in? There is an awesome group on facebook as well just for moms with kids with all that has helped me along with this group. Its  http://www.facebook.com/?ref=logo#!/groups/130969263666091/272233492873000/?notif_t=group_comment_reply

Looking forward to chatting with you more hun. Have a great day


king04
by on May. 8, 2012 at 12:15 PM

I was not able to get the link to work

Quoting bellarose1230:

 Hello hun. My son Anthony was dx on Nov 18, 11 with ALL as well. Anthony will be 3 in August. What phase of treatment are you in? There is an awesome group on facebook as well just for moms with kids with all that has helped me along with this group. Its  http://www.facebook.com/?ref=logo#!/groups/130969263666091/272233492873000/?notif_t=group_comment_reply

Looking forward to chatting with you more hun. Have a great day


bellarose1230
by Member on May. 8, 2012 at 1:39 PM

 umm its just called      A.L.L. Moms if you'd like you can add me on facebook. Kristin Lotton

Nichole0403
by Member on May. 12, 2012 at 12:39 AM
Hi my son was diagnosed 5/28/2011 will pre B ALL. It's definitely been a roller coaster to where we are now in maintence. My biggest advice is watch out for the steroids!! That is not your child right now but they are in there. Sawyer was on dexamethosone for a month right away and it was horrible! Good luck and if you have any questions feel free to ask!!
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king04
by on May. 12, 2012 at 1:09 AM

Yes I have noticed a change in my daughter since she has been on Dex for a little over a week.

Quoting Nichole0403:

Hi my son was diagnosed 5/28/2011 will pre B ALL. It's definitely been a roller coaster to where we are now in maintence. My biggest advice is watch out for the steroids!! That is not your child right now but they are in there. Sawyer was on dexamethosone for a month right away and it was horrible! Good luck and if you have any questions feel free to ask!!


bellarose1230
by Member on May. 20, 2012 at 10:41 PM

 I hate the steriods. I have a pic a month after Anthony was dx and he wasnt the same child at all

bellarose1230
by Member on May. 20, 2012 at 10:43 PM

Phases  of the steriods

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