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Has anyone heard of this disorder?

Posted by on Jan. 25, 2010 at 11:57 PM
  • 6 Replies

 I have been diagnosed with a neurological disorder called Complex Regional Pain Syndrome.  And I was wondering if anyone knows anyone with it and what their quality of life is like.  It's a disorder that affects your bones, joints, muscles, skin, hair, and limbs.  It's a progressive disorder and there is no cure.  And it was likely caused by my back issues, but is completely seperate otherwise.  So now I will definately not be much of a mother at all to my girls. 

P.S.  I think it's also called Sympathetic Nerve Syndrome

feeding babytoddler girlin lovewearing crown


Loving wife to Chintan, Adored SAHM mommy to Lydia and Lucy, Addicted to my family, and  Follower of Christ

by on Jan. 25, 2010 at 11:57 PM
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SamiJ18
by on Jan. 25, 2010 at 11:59 PM

http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/detail_reflex_sympathetic_dystrophy.htm

This might help.

n03z07l08
by on Jan. 25, 2010 at 11:59 PM

I've never heard of it but im sorry to hear! You will still be a great mom though. Just keep your head up! 

mommytohuddy
by on Jan. 26, 2010 at 12:00 AM

It sounds a lot like what my mom has. I can't remember if that is the exact name though. She stays in pain quite a bit, but she manages. Some days are worse than others. Just stay positive, as hard as that must seem when diagnosed with something like that. We try to encourage my mom to stay positive.

Lydiasmama354
by on Jan. 26, 2010 at 12:02 AM


Quoting SamiJ18:

http://www.ninds.nih.gov/disorders/reflex_sympathetic_dystrophy/detail_reflex_sympathetic_dystrophy.htm

This might help.

Thank you so much for the link, but it is the same info that I've already read.  But again thank you for the thought :)

feeding babytoddler girlin lovewearing crown


Loving wife to Chintan, Adored SAHM mommy to Lydia and Lucy, Addicted to my family, and  Follower of Christ

nemiller
by on Jan. 26, 2010 at 12:04 AM

never heard of it, but i looked up some information on it.  i'm sorry you're having to deal with this, mama.  hopefully you can find a combination of therapies that help you manage it.

army_wife_916
by on Jan. 26, 2010 at 12:14 AM

I googled it and there were a lot of medical sites but thats not what you want right? 

http://www.rsdhope.org/ShowPage.asp?PAGE_ID=53

that is a list of support groups for your "disorder" Hopefully some of those people can give you hope & advise. and brighten up your day 

good luck

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