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After budget cuts, Indiana baby denied life-saving treatment

Posted by on Dec. 9, 2010 at 10:51 PM
  • 19 Replies

An Indiana baby needs life-saving surgery, but the state health care agency -- whose budget was slashed this year -- won't pay for it.

Six-month-old Seth Petreikis suffers from complete DiGeorge syndrome, which keeps him from developing a thymus, an infection-fighting glandular organ. He needs a transplant that's been pioneered by a specialist at Duke University in North Carolina.  But the procedure costs $500,000, and the state's Family Social Services Administration won't pay for it under the state's Medicaid, reports the Northwest Indiana Times.  It claims that the treatment is "experimental" -- even though 58 of 60 children to receive it have survived.

We last wrote about Indiana's FSSA after some of its staffers told parents to drop off their developmentally disabled children at homeless shelters. The parents had failed to receive schedule Medicare waivers to pay for care, after Gov. Mitch Daniels -- who is now weighing a possible 2012 GOP presidential run -- cut the agency's funding to deal with a budget shortfall.

As we've reported, Arizona, suffering from its own budget crunch, has cut funding for certain medical transplants for people with diseases such as leukemia and hepatitis B.

Seth's parents have set up a fund for those who want to contribute to the cost of his treatment.

(Photo of Gov. Daniels in 2007, after delivering his State of the State address: AP/Tom Strattman)

 

http://news.yahoo.com/s/yblog_thelookout/20101209/ts_yblog_thelookout/after-budget-cuts-indiana-baby-denied-life-saving-treatment

by on Dec. 9, 2010 at 10:51 PM
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Replies (1-10):
MelaniesMama
by on Dec. 9, 2010 at 10:53 PM

thats so wrong & sad

emessa
by on Dec. 9, 2010 at 10:57 PM
Bump! I wasn't sure if this has been posted or anything.
katiebuggs2003
by on Dec. 9, 2010 at 10:59 PM
Sad but it happens all the time to people who pay for coverage.
Posted on CafeMom Mobile
mom-to-3-kids
by on Dec. 9, 2010 at 11:00 PM

I agree. I hope they get enough money donated. Poor baby :'(

Quoting MelaniesMama:

thats so wrong & sad


mrs.arnett21210
by on Dec. 9, 2010 at 11:02 PM

): aww, poor baby...thats wrong, but like a PP said it happens all the time...its horrible..

CafeMom Tickers
SNikkiP
by on Dec. 9, 2010 at 11:05 PM

Does anybody know how to contact this family? Our 15mo ds has DiGeorge Syndrome. We have been searching for family's close to us with children with DiGeorge - and we live in Indiana. I would really love to contact this family, if anybody knows how to.

mom-to-3-kids
by on Dec. 9, 2010 at 11:34 PM


Quoting SNikkiP:

Does anybody know how to contact this family? Our 15mo ds has DiGeorge Syndrome. We have been searching for family's close to us with children with DiGeorge - and we live in Indiana. I would really love to contact this family, if anybody knows how to.

I didn't see anything on any of the links, but here's a bump


Bits08
by on Dec. 9, 2010 at 11:37 PM

Poor baby.  =(

mom-to-3-kids
by on Dec. 10, 2010 at 12:04 AM

I found a page on Facebook called Pray for Seth Petreikis .... perhaps you can send his parents a pm thru there/on that page?

Good luck & I hope both your son & Seth get the best medical care & lead full wonderful lives.

I'll also pm this to jic =)

Quoting mom-to-3-kids:


Quoting SNikkiP:

Does anybody know how to contact this family? Our 15mo ds has DiGeorge Syndrome. We have been searching for family's close to us with children with DiGeorge - and we live in Indiana. I would really love to contact this family, if anybody knows how to.

I didn't see anything on any of the links, but here's a bump



mom-to-3-kids
by on Dec. 10, 2010 at 12:09 AM

BUMP!

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