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Need help on a medical decision for myself

Posted by on Jan. 26, 2011 at 3:09 PM
  • 32 Replies
I had my tubal ligation in July of 2009. Since then I've had extreme bleeding during periods and so much pain in my lower back. I hurts so much I dont want to move. So, my gynecologist had me come in to see him. He said he doesnt know why I started bleeding as bad as I do ( I go through a super plus tampon and overnight pad in 2hrs.). He has recommended that I have either a endometrial ablation ( burn out the lining of my uterus) or a hysterectomy ( only the uterus). I am 24years old and I dont know which one is "better". I am sad cause I very much like my girl parts. I need some opinions & advice.
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by on Jan. 26, 2011 at 3:09 PM
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Replies (1-10):
anna_mccall
by on Jan. 26, 2011 at 3:16 PM

I've had the ablation done only to have more endometriosis attach to it. I'm hoping to talk to my dr about a hysterectomy next time I see her. I don't need my uterus since I'm fixed and I really don't want anymore periods. I'm also high risk for cervical cancer since I have endometriosis and I also have Polycystic Ovarian Disease (PCOS).

OhSara87
by Bronze Member on Jan. 26, 2011 at 3:17 PM
Bump!!
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staceyjoy
by on Jan. 26, 2011 at 3:26 PM
I have no advice but I'm sorry you're going through this.

Here's a bump.
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ChaoticSoul
by on Jan. 26, 2011 at 3:27 PM
how old are you? do you think hysterectomy is the better choice?

Quoting anna_mccall:

I've had the ablation done only to have more endometriosis attach to it. I'm hoping to talk to my dr about a hysterectomy next time I see her. I don't need my uterus since I'm fixed and I really don't want anymore periods. I'm also high risk for cervical cancer since I have endometriosis and I also have Polycystic Ovarian Disease (PCOS).

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bjdmom
by Bronze Member on Jan. 26, 2011 at 3:29 PM

I had the ablation back in November and it has been great. I googled ablation and found a lot of sites. Some of them were scary. I ended up talking to people I knew in real life who had it done and it was a success for all but one of them. You can't read everything on those sites, people tend to post complaints rather than success stories.

 

ChaoticSoul
by on Jan. 26, 2011 at 3:29 PM
ty for the bumps ladies :)
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ishmay28
by on Jan. 26, 2011 at 3:29 PM

 I had a total hysterecomy. I have to take hormones now but you could keep your ovaries right? No endo or anything? I can tell ya, not having a period is awesome lol.

BoxerMomma
by on Jan. 26, 2011 at 3:33 PM
1 mom liked this

I am having the same issues and have been for 9 years since my tubal.  I actually have seen three doctors over 4 years and the first two just wanted to stick me on birth control to control the periods instead of checking to see if anything is wrong.  The doctor I just saw Monday actually took the time to listen and talk to me.  He gave me four options.  He did blood work and he also did a vaginal ultrasound and some kind of biopsy.  Once he gets everything back we will proceed.  He said the least expensive, least invasive option was that I take 800mg of motrin three times a day two days before my period starts.  If that reduces cramping and bleeding then I found my solution.  If not there is a new drug out that he wants me to try.  If that doesn't work he said I should either try mirena bc or ablation.  My periods are regular as far as when they come so this was his plan of action.  I am convinced the tubal causes it and he says there is no way to know.

ChaoticSoul
by on Jan. 26, 2011 at 3:33 PM
yes i get to keep my ovaries, tubes, & cervix. I am worried about pre-menopause. How is it for you?

Quoting ishmay28:

 I had a total hysterecomy. I have to take hormones now but you could keep your ovaries right? No endo or anything? I can tell ya, not having a period is awesome lol.

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JADIEBUG
by on Jan. 26, 2011 at 3:34 PM

Look Up Post Tubal Ligation Syndrome.

Post Tubal Syndrome (PTS) Symptom List

PTS is an an iatrogenesis condition meaning "doctor-caused" or "doctor produced". Many women suffer PTS after having a tubal ligation.

The following is a list of symptoms that are associated with post tubal syndrome (PTS).

PTS is often the result of a rapid decline in estrogen levels due from the blood supply being damaged to the ovaries during the TL surgery. Depending on the damage to the veins and capillaries, blood volume to the ovaries may slightly decrease or can be eliminated completely (isolated ovarian syndrome, common with hysterectomy operations). Many of the symptoms of PTS are associated with having an estrogen/progesterone imbalance.

Other symptoms, such has heavy painful periods may be caused by a hormonal imbalance, could be caused by adenomyosis (bought on by uterus mussel and tissue being damaged, effected by the TL surgery impairing the blood supply to areas of that organ/mussel) or a combination of both.

Other theories of PST and the hormonal imbalance that results after a TL is that "target" or "receptor" cells that are important in the relay of hormonal messages are damaged, destroyed, and or removed during the TL surgery. It is derivable that these target or receptor cells are located within the fallopian tube.

With this in mind, it's possible for a woman to have both her ovaries still functioning to some degree (if blood supply was not damaged), have no major problems with her uterus (again if blood supply was not damaged to that organ), and still be experiencing a PTS in the from of a hormonal imbalance caused by change in her hormonal message relay system.

 

*** SYMPTOMS OF POST TUBAL SYNDROME ***

1. Eptopic pregnancy or pregnancy (welll known risk of tubals)

1a.Hot flashes, flushes, night sweats and/or cold flashes, clammy feeling, chills

2. Bouts of rapid heart beat

3. Irritability

4. Mood swings, sudden tears

5. Trouble sleeping through the night (with or without night sweats)

6. Irregular periods; shorter, lighter periods; heavier periods, flooding; phantom periods, shorter cycles, longer cycles

7. Loss of libido (see note)

8. Dry vagina (see note)

8a.Itchy vagina-at time raw like, can radiated from whole area, with absence of yeast infections. (see note)

8b.Color change in vaginal area. (color gets darker - purple/black)

9. Crashing fatigue

10.Anxiety, feeling ill at ease

11.Feelings of dread, apprehension, doom (see note)

12.Difficulty concentrating, disorientation, mental confusion

13.Disturbing memory lapses

14.Incontinence, especially upon sneezing, laughing; urge incontinence (see note)

14a.Prolapse of uterus do to rapid decress in estrogen levels.

15.Itchy, crawly skin (see note)

16.Aching, sore joints, muscles and tendons (see note)

17.Increased tension in muscles

18.Breast tenderness

18a. Decress in breast mass

19.Headache change: increase or decrease

20.Gastrointestinal distress, indigestion, flatulence, gas pain, nausea

21.Sudden bouts of bloat

22.Depression (see note)

23.Exacerbation of existing conditions

24.Increase in allergies

25.Weight gain (see note)

26.Hair loss or thinning, head, pubic, or whole body; increase in facial hair

27.Dizziness, light-headedness, episodes of loss of balance

28.Changes in body odor

29.Electric "shock" or "stabbing" sensation under the skin.

30.Tingling in the extremities, (see note)

31.Gum problems, increased bleeding

32.Burning tongue, burning roof of mouth, bad taste in mouth, change in breath odor (see notes)

33.Osteoporosis (after several years)

34.Changes in fingernails: softer, crack or break easier

NOTES:

Symptom 1a (flashes) Hot flashes are due to the hypothalamic response to declining ovarian estrogen production. The declining estrogen state induces hypophysiotropic neurons in the arcuate nucleas of the hypothalamus to release gonadotropin-releasing hormone (GnRH) in a pulsatile fashion, which in turn stimulates release of luteinizing hormone (LH). Extremely high pulses of LH occur during the period of declining estrogen production. The LH has vasodilatory effects, which leads to flushing.

Symptom 7 (loss of libido) For some women the loss is so great that they actually find sex repulsive, in much the same way as they felt before puberty. What hormones give, loss of hormones can take away.

Symptom 8 (dry vagina) results in painful intercourse

Symptom 8a (Itchy and or raw vaninal area) A normal vaginal pH level is around 4.5. A vaginal pH of 6.0 to 7.5 -- in the absence of a vaginal infection (yeast infection)-- indicates low blood estrogen levels and signals that the woman is menopausal. "The vagina (and whole area) becomes more acidic." http://www.thriveonline.com/health/menopause/seek/info.areyouin.html

Symptom 11 (doom thoughts) includes thoughts of death, picturing one's own death. Feelings of complete dispare.

Symptom 14 (incontinence) reflects a general loss of smooth muscle tone

Symptom 15 (itchy, crawly skin) feeling of ants crawling under the skin, not just dry itchy skin

Symptom 16 (aching sore joints) may include such problems as carpal tunnel syndrome

Symptom 22 (depression) different from other depression, the inability to cope is overwhelming. There is a feeling of loss of self. Hormone therapy ameliorates the depression dramatically.

Symptom 25 (weight gain) often around the waist and thighs, resulting in 'the disappearing waistline'

Symptom 29 (shock sensation) "the feeling of a rubber band snapping in the layer of tissue between skin and muscle. It may be a precursor to a hot flash"

Symptom 30 (tingling in extremities) can also be a symptom of B-12 deficiency, diabetes, alterations in the flexibility of blood vessels, or a depletion of potassium or calcium

Symptom 32 (Burning mouth syndrome) http://www.tambcd.edu/DentalCE/dsc/ARCHIVES/oc93ap94/oct/dscted.htm

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