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Worst decision of our lives.....TMI and long

Posted by on Jun. 4, 2011 at 3:17 PM
  • 23 Replies

 My husband's vasectomy has been the absolute worst decisions of our lives...

 

Aug 2010 my husband willingly had a vasectomy. He experienced pain immediately following the procedure but figured it was normal. The procedure went fine, as most do. This had nothing to do with the surgeon messing up. His pain never went away, and only got worse. He was suffering from congestive pain meaning he could feel being backed up. His orgasm changed drastically, his libido went down, his testosterone plummeted...he was in pain 24/7. We saw quite a few different urologists that kept telling us it will get better, take these meds, and you'll be fine. After many, many round of antibiotics and different NSAIDS we realized he wasn't going to get better.

 

My husband suffers from post-vasectomy pain syndrome or PVPS.

 

After 6 months of being in horrible pain (taking months off of work, not being able to play with our kids, etc) we sought out a specialist (world renowned) and drove 600 miles to see him. He recommended to have the vasectomy reversed. My husband had a reversal done in Jan 2011. We were hoping this would be the end of his pain.

 

Immediately following the reversal he felt a little better but then the pain returned. His semen sample showed he was open and fertile again but the pain persisted. 1 month ago we made the 600 mile drive again to see the specialist again. He determined that my husband is having an auto immune response to his own sperm. Basically during the vasectomy and most like the reversal too, sperm leaked into his body. Sperm is a foreign substance to the human body so his body went into attack mode...so even though he has been put back together his body is still attacking its own sperm. Kind of like he was vaccinated with his own sperm and now his body recognizes it as a foreign substance.

 

So to counter act this immune response he has to go on testosterone therapy to try and shut his testicles down and hope it turns down or turns off his immune response. He is one month into taking testosterone but the specialist warned it may take a few months to see results.

 

My husband's vasectomy has been the absolute worst decision of our lives. Pre op vasectomy he was never once told about the chance that he'd be in pain for ever. He was always told it was a risk free operation and will be the best decision he's ever made....boy were we wrong! Many men suffer chronic pain after vasectomy but it's not talked much about. You can find other stories like mine at http://www.vasectomypainstories.org/ if you're interested.

 

At 28 years old, my husband is in chronic pain every single day of his life. It hurts to work, it hurts to play with our kids, it hurts for us to be intimate together. This has ruined out sexual relationship. My husband has even said that he could see why some men with this condition opt to have their testicles removed.

 

So far we've paid $15,000 out of pocket (the down payment to a house we were saving for). Insurance won't cover it because its just a 'syndrome' and a lot of the medical community think its pain made up in the mans' head...many urologists won't even acknowledge that the man is in pain at all....

 

I feel SO guilty...why did I not push to get back on BC....I hate seeing my husband, my other half, suffering like he is. I feel so helpless...

 

So please ladies, if you are pushing your husband to get snipped or is he wants to do it, do your research and be sure you know what the potential side effects can be...This has been one horrible nightmare that we can't wake up from...

 

Feel free to ask questions if you have any....

 

*** here's the wikipedia link that contains some statistics http://en.wikipedia.org/wiki/Post_vasectomy_pain_syndrome

 

by on Jun. 4, 2011 at 3:17 PM
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Replies (1-10):
Stephanie329
by on Jun. 4, 2011 at 3:20 PM

 OMG, so sorry this has happened. I've had a tubal so no reason for my husband to get a vasectomy. It's sad when the rarest of the rare complication happens.

LoveMyLos
by on Jun. 4, 2011 at 3:21 PM

um wow. i am so not reading this to my dh! he wants to get a vec, but i got on bc b/c a vec just seemed to permanant. thanks for sharing!

momof3ak
by on Jun. 4, 2011 at 3:24 PM

so sorry ya'll are going thru this

ShannyLouisiany
by on Jun. 4, 2011 at 3:24 PM
oh, wow. I had never heard of such a thing! I'm very sorry you guys are experiencing this nightmare. I hope the testosterone therapy ends it soon.
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mandksmommy
by on Jun. 4, 2011 at 3:24 PM

 that sucks that that has happened to you guys but do you have the statistics of how often this happens before you go scaring people and deterring them from getting this done? my husband had his five years ago and hasn't had one problem.

mommymelissa76
by on Jun. 4, 2011 at 3:25 PM

Thats terrible. Im so sorry you guys are going through this ordeal. I had a tubal because DH chickened out on the vasectomy. Now Im glad he did. I had zero complications.

kthruz143
by Kerrie on Jun. 4, 2011 at 3:26 PM

My dh got a vasectomy a year ago and gets pain every once in a while mostly was he is horny and we don't do anything. once he releases he feels alot better. the dr never told him about the chances of any of this happening . luckly dh pain isn't to bad

kthruz143
by Kerrie on Jun. 4, 2011 at 3:27 PM

from what we read it is actually very common most men have some sort of pain after . it just depends on the severity

Quoting Stephanie329:

 OMG, so sorry this has happened. I've had a tubal so no reason for my husband to get a vasectomy. It's sad when the rarest of the rare complication happens.


KadynsMommy806
by Bronze Member on Jun. 4, 2011 at 3:27 PM


Quoting mandksmommy:

 that sucks that that has happened to you guys but do you have the statistics of how often this happens before you go scaring people and deterring them from getting this done? my husband had his five years ago and hasn't had one problem.


I believe its something like 1%-15% of men suffer from post vasectomy pain. There has not been many studies done as there are so many different aspects of pain (nerve pain, congestive pain, infection, etc)..I wish I read stories like this before my husband had his vasectomy done. I would have at least been more educated on the subject and the potential side effects.

Atessa
by on Jun. 4, 2011 at 3:29 PM

LOL this sounds more like your Hubby is playing you, LOL "Hunny my pee pee hurts because I'm honry and we need to have sex" LOL

Quoting kthruz143:

My dh got a vasectomy a year ago and gets pain every once in a while mostly was he is horny and we don't do anything. once he releases he feels alot better. the dr never told him about the chances of any of this happening . luckly dh pain isn't to bad


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