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Williams Syndrome

Posted by on Jul. 8, 2011 at 12:43 AM
  • 89 Replies
http://www.williams-syndrome.org/

Here is a link in case anyone is interested in what WS is.

Are there any moms on here with kids that have WS?

Ds finaly got his referal to the specialist to get tested for WS.

Do they just do an evaluation first? Or just blood work?

Im trying to figure out what to exspect from first-hand experiences.

I have googled and researched WS for months and think first-hand stories would help.

What made the pedi decide to persue WS as a diagnoses for you kid?

Did they have the "look?"

Ds's pedi was watching a show and called mom asking her to bring him in to discuss WS (origionally they thought he has autism). The doc said he has the "look."

So any stories or advice is great :)

Thanks in advanced
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by on Jul. 8, 2011 at 12:43 AM
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Replies (1-10):
mstkn.identity
by on Jul. 8, 2011 at 12:46 AM
Please bump for me if you have no advice. Thanks
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Sharon300
by Sharon on Jul. 8, 2011 at 12:52 AM

BUMP!

mstkn.identity
by on Jul. 8, 2011 at 12:52 AM
Thanks


Quoting Sharon300:

BUMP!


Posted on CafeMom Mobile
yayay15
by on Jul. 8, 2011 at 12:52 AM
Bump
Posted on CafeMom Mobile
mstkn.identity
by on Jul. 8, 2011 at 1:03 AM
Bump


Quoting yayay15:

Bump

Posted on CafeMom Mobile
sweetnsassymami
by Ruby Member on Jul. 8, 2011 at 1:04 AM

bump!

mstkn.identity
by on Jul. 8, 2011 at 1:05 AM
Thanks


Quoting sweetnsassymami:

bump!


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imafuswb
by ★Rainbow Brite★ on Jul. 8, 2011 at 1:06 AM

One of my favorite (and terribly sad) Law & Order: SVU episodes is about a girl with Williams Syndrome who witnessed her mom's attack.  Season 9, Savant.  Have you seen it?

mstkn.identity
by on Jul. 8, 2011 at 1:06 AM
Crap meant to write thanks


Quoting mstkn.identity:

Bump




Quoting yayay15:

Bump


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mstkn.identity
by on Jul. 8, 2011 at 1:06 AM
No. Ill have to find it. Was it sad?


Quoting imafuswb:

One of my favorite (and terribly sad) Law & Order: SVU episodes is about a girl with Williams Syndrome who witnessed her mom's attack.  Season 9, Savant.  Have you seen it?


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