I give up. We can't feed DD enough without causing her extreme pain, so she's basically starving to death. She's 3 months old and only weighs 8 pounds. Her clonzapam, cyproheptadine, topamax, omeprazol, and B-6 are no longer making her comfortable. She's started screaming constantly again. She's deteriorating so fast that her doctors and I can no longer keep up.
I will be talking to her dad about making her a DNR, placing her on TPN and just letting nature take it's course. There is nothing more I can do.
I'm sorry. I wish there was something more that can be done. I will keep you and her in my thoughts and prayers. :(




- Ashley_Carlson
on Apr. 7, 2012 at 1:25 AM