I give up. We can't feed DD enough without causing her extreme pain, so she's basically starving to death. She's 3 months old and only weighs 8 pounds. Her clonzapam, cyproheptadine, topamax, omeprazol, and B-6 are no longer making her comfortable. She's started screaming constantly again. She's deteriorating so fast that her doctors and I can no longer keep up.
I will be talking to her dad about making her a DNR, placing her on TPN and just letting nature take it's course. There is nothing more I can do.