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Lupus

Posted by on May. 3, 2012 at 1:45 AM
  • 27 Replies
Who has Lupus that can explain this disorder to me, please?

I've been online and read the symptoms, but you don't know how it truly effects someone until you ask someone who has it, or knows someone close to them who has it...
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Posted by on May. 3, 2012 at 1:45 AM
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SugarFoot84
by on May. 3, 2012 at 1:45 AM

BUMP!

frndlyfn
by Emerald Member on May. 3, 2012 at 1:48 AM

SIL has it. It has affected her energy levels, always very tired, has dealt with hair loss, random sores appear, overall health is just bad.  It probably doesnt help she smokes as well.

Momof2Stepof3
by Platinum Member on May. 3, 2012 at 1:50 AM

I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board. 

smurfbitebug
by Cherokeex♥xRose on May. 3, 2012 at 2:26 AM
How does it effect you?

Quoting Momof2Stepof3:

I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board. 

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smurfbitebug
by Cherokeex♥xRose on May. 3, 2012 at 2:28 AM
What are the sores about? Do they itch? Do they hurt her?

Quoting frndlyfn:

SIL has it. It has affected her energy levels, always very tired, has dealt with hair loss, random sores appear, overall health is just bad.  It probably doesnt help she smokes as well.

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MixedCooke
by Ruby Member on May. 3, 2012 at 2:29 AM

my Aunt had to get a kidney transplant.

Apollos82
by Platinum Member on May. 3, 2012 at 2:29 AM
This article helped me understand. http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

Sorry it's not clicky, I'm mobile.
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Apollos82
by Platinum Member on May. 3, 2012 at 2:31 AM
BTW, I haven't see you around in ages. I thought Karen ate you or drove you across states (STATES) or something.

How have you been? Good, I hope, but if Lupus is involved, I'm worried it's not good. :(
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smurfbitebug
by Cherokeex♥xRose on May. 3, 2012 at 2:35 AM
Ooo I have a picture somewhere I wanted to show you. Hold on a min..

Quoting Apollos82:

BTW, I haven't see you around in ages. I thought Karen ate you or drove you across states (STATES) or something.



How have you been? Good, I hope, but if Lupus is involved, I'm worried it's not good. :(
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Momof2Stepof3
by Platinum Member on May. 3, 2012 at 2:36 AM
1 mom liked this

Lets see have had 3 infections around my heart since 2008, my whole body hurts joints, muscles, bones, and at times my skin hurts, in recent months I have been getting blotches on my skin. I have lost 50% of my right kidney and will most likely need a transplant with in the next 10 years. In reason weeks DH has noticed I have a form of a seizure. I am always tired. I get blisters in my mouth. At times I can't walk. At times I can seem and look 100% healthy then bam I am sick as a dog. Anyone comes around with illness I catch it and it takes weeks some times months to get it out of me. I have forgotten how to talk, write and even type doesn't always happen. My thought process is much slower, I had a store clerk ask my DH if I was retarded one time because I couldn't recall how to swipe a debt card. If we go out for the day DH knows to prepare for me to be hurting and needing to rest the whole next day as I'm tired and sore. I use a walker and wheel chair at times. I have been deemed disabled by 3 doctors but the SSI doctors don't seem to think I am disabled enough. I suffer from depression because of all this I have lost a lot of my life due to Lupus. I use to be so out going and willing to do anything now I can't I most think what will happen if I do A, B, or C.

Quoting smurfbitebug:

How does it effect you?

Quoting Momof2Stepof3:

I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board. 


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