I've been online and read the symptoms, but you don't know how it truly effects someone until you ask someone who has it, or knows someone close to them who has it...
SIL has it. It has affected her energy levels, always very tired, has dealt with hair loss, random sores appear, overall health is just bad. It probably doesnt help she smokes as well.
I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board.
Quoting Momof2Stepof3:I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board.
Quoting frndlyfn:SIL has it. It has affected her energy levels, always very tired, has dealt with hair loss, random sores appear, overall health is just bad. It probably doesnt help she smokes as well.
Sorry it's not clicky, I'm mobile.
How have you been? Good, I hope, but if Lupus is involved, I'm worried it's not good. :(
Quoting Apollos82:
BTW, I haven't see you around in ages. I thought Karen ate you or drove you across states (STATES) or something.
How have you been? Good, I hope, but if Lupus is involved, I'm worried it's not good. :(
Lets see have had 3 infections around my heart since 2008, my whole body hurts joints, muscles, bones, and at times my skin hurts, in recent months I have been getting blotches on my skin. I have lost 50% of my right kidney and will most likely need a transplant with in the next 10 years. In reason weeks DH has noticed I have a form of a seizure. I am always tired. I get blisters in my mouth. At times I can't walk. At times I can seem and look 100% healthy then bam I am sick as a dog. Anyone comes around with illness I catch it and it takes weeks some times months to get it out of me. I have forgotten how to talk, write and even type doesn't always happen. My thought process is much slower, I had a store clerk ask my DH if I was retarded one time because I couldn't recall how to swipe a debt card. If we go out for the day DH knows to prepare for me to be hurting and needing to rest the whole next day as I'm tired and sore. I use a walker and wheel chair at times. I have been deemed disabled by 3 doctors but the SSI doctors don't seem to think I am disabled enough. I suffer from depression because of all this I have lost a lot of my life due to Lupus. I use to be so out going and willing to do anything now I can't I most think what will happen if I do A, B, or C.
Quoting smurfbitebug:
How does it effect you?
Quoting Momof2Stepof3:I have Lupus and no 2 people are the same. It is one of the hardest medical conditions to diagnose. My symptoms are all over the board.



- smurfbitebug
on May. 3, 2012 at 1:45 AM