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My Daughter Needs A Heart Echo:( UPDATE: SAW THE CARDIOLOGIST!!!!

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So I'm kind of confused.

We were w/our Pediatrician back home for a little over 5yrs & nothing was ever mentioned about an irregular heartbeat.

When we moved the first Dr we saw said there was a murmur but not abnormal & seen a lot in kids when they are stressed.

Well we switched Drs & my kids are now going where I am at bc I swear every Dr up until now has been quacks that I've been seeing here.

Anyway, I mentioned what the other Dr had said & they listened to her heart for a good long while.

They said she does not have a murmur but an irregular/regular heartbeat.  Meaning it slows slightly for 2 beats but resumes to normal but they say regular bc for her it does not change.

They said it is a good sign that it stays regular for her & isn't all over the place & that this is not abnormal for kids. 

But they are sending us bc a time or 2 Summer has said "my heart hurts" but she had been playing & doing cartwheels & such & if you know how she plays she plays extremely hard so I never really worried about it.  So bc of that & bc I had open heart when I was young they are sending her for an echo.

Now I had a Fetal Echo done w/her & her old pediatrician never mentioned anything  & knows I had surgery so I don't understand why all of a sudden now this is coming up.

I am a bit worried, but feel if something was really wrong we would've known by now.  But I also know that isn't always the case.

They told me not to worry they are only doing this as a precaution & had it not been for my history they wouldn't typically order an Echo yet.

But I can't help but worry, she's my baby girl & I don't want her to have to go through surgery or anything horrible:(

Please give me positive thoughts & prayers for my baby girl, thank you!!!

By the way she is 7yrs old.

EDIT:  Her Echo isn't until the 18th, next Friday.  I am going to go insane waiting:(

RESULTS:( Okay so what I was told was that Summer has a "slight enlargement of her Right Atrium & Right Ventricle." They also said there is possibly and "Atrial Septal Defect (ASD)." They said possible bc this was just a limited study.

We are being set up w/a Pediatric Cardiologist at Vanderbilt & I am just freaking out. So many questions like for starters, how has this been missed all these years? I had a fetal echo done, her last physical the Dr said there was no murmur, no click, no abnormal rythm.

My heart is sinking, I am so afraid she will need major surgery, I am scared to death!!! My baby girl, why is this happening all of a sudden?

UPDATE: Summer sees the Cardiologist tomorrow morning. I am a nervous wreck, but so thankful my DH is home & is able to go to this appointment w/us.

Can you all please send prayers or good thoughts, positive vibes, anything please!!! THANK YOU!!!

UPDATE 6/26 SAW THE CARDIOLOGIST: So my DD is a champ, she was not stressed at all today, I am so very proud of her!!!

She had a new & better ECHO done today & she had an EKG & they checked her BP in both arms & both legs. She normally stresses over things & she was just so chilled out & happy to have all the attention, I think it helped that her daddy was there:)

During her BP & Pulse check though the monitor went off bc it said her heart rate was to low, she was at 69. The nurse said it was low for her age but she wasn't worried about it.

So then we waited for the Cardiologist. She listened to her heart sitting up from every single direction. Had her deep breath, had her hold her breath. She listened to Summer's heart laying down, had her deep breath, had her hold her breath. Then she listened to her heart standing up, again deep breathing & then holding her breath as well.

After all that FINALLY we are told she is perfectly fine!!!!! :):):)

The cardiologist said the ECHO Summer originally had is a "limited echo" and they get many kids bc of them. The Tech can position just slightly wrong, the child can move just slightly & it throws off the picture.

The Tech today obviously did her entire heart but then focused on what the other ECHO said was wrong.

She has no hole in her heart, so no Atrial Septal Defect. She also has NO enlargement like the other ECHO showed as a possibility.

The cardiologist did say Summer does have an irregular heart beat, but it goes away when she holds her breath & that this is VERY COMMON in children her age.

She also was not concerned w/her resting heart rate being at 69, it was around 75 during her ECHO. She said her heart is completely healthy.

I am so excited, so happy beyond belief!!!

Thank you everyone for all the prayers, good thoughts, positive vibes, everything!!!! You have no idea how happy & lucky & grateful I feel right now, thank you so much!!!

by on May. 10, 2012 at 7:21 PM
Replies (41-50):
momgirlsx2
by on May. 10, 2012 at 9:45 PM
My daughter was 7 when we found out she had an irregular heart beat and a murmur. EKG also indicated one side of her heart was enlarged Just like you I was completely freaked out. She had to have chest xray and echo done to evaluate all of this. I am happy to say everything turned out fine. Her heart was within normal limits, the irregular beat is not a problem as her heart stays within it's own rythem, and her murmur is the best kind to have...just a benign murmur. I completely understand where you are nerve wise. All I can say is keep thinking positively.
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Bird16_J
by on May. 10, 2012 at 9:47 PM

I'm sure everything will be just fine momma! :) Good thoughts sent your way!


TrouserMouse
by on May. 10, 2012 at 9:48 PM

It's hard not to worry.  I know how that is.  I get all worried each year when I take my son in each year for his annual EKG, Echo, and MRI of his heart.

It sounds like they are just being cautious. I hope everything goes well and eases your worries.

CABZS
by Ruby Member on May. 10, 2012 at 9:50 PM

Why does he have to have all that done?

Quoting TrouserMouse:

It's hard not to worry.  I know how that is.  I get all worried each year when I take my son in each year for his annual EKG, Echo, and MRI of his heart.

It sounds like they are just being cautious. I hope everything goes well and eases your worries.


TrouserMouse
by on May. 10, 2012 at 9:55 PM

He was born with a congenital heart defect called Tetralogy of Fallot.  

Here is a post that I made recently about it. Going through what we did makes me appreciate things so much more. You may not want to look if you are really worried though. It shows some post op photos.

Quoting CABZS:

Why does he have to have all that done?

Quoting TrouserMouse:

It's hard not to worry.  I know how that is.  I get all worried each year when I take my son in each year for his annual EKG, Echo, and MRI of his heart.

It sounds like they are just being cautious. I hope everything goes well and eases your worries.



CABZS
by Ruby Member on May. 10, 2012 at 10:01 PM

Is he okay now?

I don't need to look, I remember how I was after my surgery which is why I really don't want her having to go through.

So he was born w/it?  I don't think this would be something she was born with bc she/we had the fetal echo done.

IDK, I'm still just real bothered that she is 7 & nothing had ever been said to me.  If it just now appeared that is typically not a good sign.

Quoting TrouserMouse:

He was born with a congenital heart defect called Tetralogy of Fallot.  

Here is a post that I made recently about it. Going through what we did makes me appreciate things so much more. You may not want to look if you are really worried though. It shows some post op photos.

Quoting CABZS:

Why does he have to have all that done?

Quoting TrouserMouse:

It's hard not to worry.  I know how that is.  I get all worried each year when I take my son in each year for his annual EKG, Echo, and MRI of his heart.

It sounds like they are just being cautious. I hope everything goes well and eases your worries.

 



Momof2Stepof3
by Platinum Member on May. 11, 2012 at 12:42 AM

He was born with the extra wire in his heart I call it a wire because that is how they explained it to me. The extra wire that controls the heart bets makes it seem off when doing EKG and Echo's.

What he has is dangerous but his heart is self correcting so he is good to go but it was scary for many weeks because when the first doctor found it he scared us and we refer to that doctor as diaria mouth doctor because he gave way to much info in a short time and freaked me and my family out.

Just remember to breath.

Can I ask your location, as I know in our area there are only 2 ped heart doctors for our regian.

Quoting CABZS:

Thank you!

Positive stories are helpful:)

How did they put the extra wire in?

Quoting Momof2Stepof3:

First off just breath. DS13 has what is called WPW or better know as Wolff Parkinson White syndrome. It was found due to an accidnet he had nearly a year ago. They did an Echo, they did MRI, CT, non stress test, stress test and many more tests. He has an extra wire in his heart that controls the bets. He is fine and healthy.

Just breath and know your daughter will be OK!!!!

Quoting CABZS:

 



CABZS
by Ruby Member on May. 11, 2012 at 7:59 AM
We are at Fort Campbell, KY. My kids and I see Drs off post so if there was a problem we would probably end up seeing someone in Nashville.

I know about crap Drs like that but for me he told my parents I was fine when in all actuality without surgery I could have died.


Quoting Momof2Stepof3:

He was born with the extra wire in his heart I call it a wire because that is how they explained it to me. The extra wire that controls the heart bets makes it seem off when doing EKG and Echo's.

What he has is dangerous but his heart is self correcting so he is good to go but it was scary for many weeks because when the first doctor found it he scared us and we refer to that doctor as diaria mouth doctor because he gave way to much info in a short time and freaked me and my family out.

Just remember to breath.

Can I ask your location, as I know in our area there are only 2 ped heart doctors for our regian.

Quoting CABZS:

Thank you!


Positive stories are helpful:)


How did they put the extra wire in?


Quoting Momof2Stepof3:


First off just breath. DS13 has what is called WPW or better know as Wolff Parkinson White syndrome. It was found due to an accidnet he had nearly a year ago. They did an Echo, they did MRI, CT, non stress test, stress test and many more tests. He has an extra wire in his heart that controls the bets. He is fine and healthy.


Just breath and know your daughter will be OK!!!!


Quoting CABZS:


 





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starreyedcutie
by Platinum Member on May. 11, 2012 at 8:02 AM
Try to be calm (((hugs)))
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xtc88
by Member on May. 11, 2012 at 8:16 AM
My nephew had open heart surgery when he was 18 days old. He will be 6 in september. He will probably have another surgery this summer. Hes excited but all of us arent. Lol. Im sure everything will be ok with your DD and even if its not kids are strong. Its the parents who have a harder time dealing with it. Definitely sending positive vibes your way. *hugs*
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