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Anyone familiar with seizures?(non-epilepsy related)

Posted by on Jan. 31, 2013 at 1:43 PM
  • 4 Replies

I hate to post this, for there will be someone out there who thinks I am just stupid for asking and that I should have immediately went to the ER.
I think I had a seizure the other night. It followed a "spell" where I felt I was going to faint and my legs/arm went numb and I lost my vision for less than a minute during the episode...I immediately went to lay down, where I believe I had a seizure..uncontrollable shaking,"seizing" jaw far not a "grand mal" but still disconcerting....
The reason I am hesitent to seek immediate medical attention, as I have in the past for recurring neurological disorders, they threw around MS to Narcolepsy, finally to settle on "Fibromyalgia," a diagnosis that I may share symptoms of, but my issues are more periodic, not as consistent. I have spent DAYS speaking to these people and they just pass me off like it doesn't I'm being dramatic or lying, and the final neurologist did NOT perform a new MRI(last one 2 years ago) before making the decision. He prescribed me, of all things an anti-seizure med, Neurotin/Gabapentin, which the side effects of were far worse than the persistent pain and issues I have on a daily basis, so I quit after a week and a half of doses.
Any one willing to be nice and help me find some hope they will figure this out? Anyone take these meds? Anyone experience what I have and found the cause?
Any answers would be much appreciated! 

by on Jan. 31, 2013 at 1:43 PM
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by on Jan. 31, 2013 at 2:04 PM
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I'm so sorry you're going through this. I would definitely suggest that you go to the doctor and see if they can perform an MRI to confirm a seizure. My son, who just turned 16, was having "episodes" last year out of no where. He was in the shower upstairs and I heard a bunch of stuff drop. I went up there calling his name, asking if he was okay, but he didn't respond and the door was locked. After what seemed like an eternity but was only probably 30 seconds, he finally answered me. I asked him if he was okay and he said yes, but that all of the shampoos and soaps were on the floor and he didn't know how they got there. Over the course of about 6 months he had weekly "episodes" where he would basically black out but still be able to stand. He would feel it coming on and his arms and legs would get heavy, then he would feel fuzzy in his head and then he would be completely unresponsive for about 15-30 seconds. They did an MRI but couldn't conclusively diagnose him as having had a seizure, but the three different specialists all agreed that it sounded like he was having petit mal seizures. Thankfully he hasn't had one in almost 6 months but it was definitely a scary time.

I would just suggest demanding an MRI to rule epilepsy out, that way you know for sure. They can't deny you, it's your body. There might be some doctors that don't think it's necessary but if you think it is, you need to speak up for yourself. :)  Good luck!

by on Jan. 31, 2013 at 2:10 PM

Yes I do,I had seizures when I was younger and I was put on this awful tasting medicine called Zorontin,yes that does sound like a seizure...As I grew my seizure's stopped coming and I was taken off my meds,then when I got pregnant with my 1st child I had 2 seizures and required 2 blood transfusions,I haven't had another seizure in 8 years since my pregnancy...Good Luck.

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by on Jan. 31, 2013 at 2:47 PM
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I would explore the possiblity of a diet change, if you haven't considered that already.  I would find a nutritionist who has professional experience supervising clients with a wide range of dietary choices.  In other words, someone who ALWAYS recommends a plant-based diet is someone to run away from but a nutritionist who recommends plant based, omnivourous, and everything in between, based on symptoms is someone who can be flexible and truely help you out.

To me, coming from a family with several different presentations of celiac disease, both auto immune and gut disturbance, I think it sounds like you have something auto immune going on - fibromyalgia is starting to be regarded as an auto immune process, right?  For my mother, who has the auto immune presentation of celiac, giving up gluten, dairy, and coffee has helped her considerably.  My dad, who has the gut disturbance presentation, only had to give up gluten to see an improvement.  

I would experiment with some food eliminations and also make sure to eat plenty of healthy fats (olive oil, coconut oil, animal fats; seed oils tend to be rancid and poor quality) as fats are necessary for transmission of neuro transmitters and for good function of the nervous system.

by on Jan. 31, 2013 at 3:14 PM

I have a fairly healthy diet :/ I have been experimenting with gluten free/wheat free diet modifications, though, being a chef/baker, that is not always possible :( I have noticed that I feel better with nut oils, and omega's.... the other presenting issues such as difficulty walking and muscle control tend to get better with the nut fats. I am most definately NOT a vegetarian, though eat meat on a very occasional basis.... We eat organic and natural where possible, and grow organic produce in the summer...absollutely no trans fats or preservative/additives.... is there anything else missing that might be helpful when considering diet?

edit: have several nutrition courses under my belt(though from more of a base of culinary perspective)

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