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Advice Needed About School in Michigan-Long-Diabetes Related

Posted by on Mar. 7, 2013 at 10:38 PM
  • 38 Replies

I am going to try to make my story short.

My son will be 8 (tomorrow). He was diagnosed with Type 1 Diabetes about 2 months ago. He is handling it very well, and we have all adjusted much better than expected, but at school, there have been many problems. I live in a small town in southeast Michigan, and I just feel that there is no one at the school who is qualified to help him manage his insulin and blood sugars. They don't even have a school nurse (she got let go when they had budget cuts). They have 2 'parapros' who help kids, and they claim to have dealt with diabetic children before, but everything that they do says otherwise. I realize that it is an adjustment for everyone, but it has been 2 months, and they still can't count carbs, do the basic math required for his insulin dosing, treat his high and low sugars, or anything. They rush through everything and even lack the common sense to let him do his school work in the office when he is waiting for his blood sugar to go up when it's low. I have contacted everyone necessary, and talked to his teacher, the school counselor, the school social worker, his doctor, the parapros at school, the office staff, the principal...there is really no one else that I can go to, and nothing changes. We are supposed to test his blood sugar 4 times a day, or a couple extra times if he is feeling like his sugar is low so that we can treat it. They are testing it at school 10-15 times a day (just at school, between 9am and 340pm). I have talked to them about this several times, and they always seem to listen, seem to understand, and we come up with a plan, only for them to go right back to the way things were the next day. I went from calming talking to them, to very angrily and frustrated talking to them, to borderline yelling, to just crying because I am so frustrated and they just don't get it. I seriously feel like a group of monkeys could do better. It's like these people retain nothing. At this point, I just want to pull him out of the school. He is in the office more than he is in his class each day, and most of his school work gets sent home to be completed. I can't switch school districts, because I don't have a car to be able to drive him to another school, so I don't have many options. I asked the principal about just having him finish this year out from home, and possibly coming in to the school to take the required tests and whatnot. She didn't answer me. She kind of danced around it, and then told me that I need to make the decision that I feel is best for him. She said that of course she wants him at school, but it's not her decision. I had an hour long conversation with her about everything that's going on and all of these different options as far as doing his testing in class so that he doesn't miss so much, sending his work to the office, etc. I also talked about how often they test his sugar, saying that it's not necessary, and she agreed...then the next day, they used 10 test strips. It's just like it goes in one ear and out the other. I can't take it anymore. I have talked until I am blue in the face, written everything down so that they can reread anything that they forget, and they still do the same things, over and over.

So, my question is...I am in Michigan. Can I legally pull him out of school and have him do the work at home? Can anyone give me ANY pointers or at least some kind of direction since the principal wouldnt answer me?! I have already enrolled him in online school for next year, so I just need to get through these next 3 months, but I seriously fear for my son's health if he stays in the situation that he is in. (And yes, I have told the school staff and principal this).

Thank You in Advance to anyone that can help.

by on Mar. 7, 2013 at 10:38 PM
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Replies (1-10):
momtoBrenna
by Silver Member on Mar. 7, 2013 at 10:51 PM

From what I just read about  homeschooling in yor state, you just need to withdraw him from his current school and homeschool him until next year when you start him with the virtual school. Unless he has special needs and you want him to get services, you don't even have to notify anyone other than your son's school. It looks like they require a bachelor's degree but that part wasn't very clear on if it was all homeschoolers or only if you register with the state which is optional. Good luck!

KelseyLynn
by on Mar. 7, 2013 at 11:00 PM
Where did you read that? I don't have a degree, and it isn't really homeschool since he would be doing the school's work and taking their tests.
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NDADanceMom
by on Mar. 7, 2013 at 11:22 PM
3 moms liked this
I have 2 type one diabetic kids. I suggest calling your local American diabetes association. They are the ones that should have sent you the whiz kids packet. They have resources to let you know your legal rights.
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calsmom62
by Silver Member on Mar. 7, 2013 at 11:25 PM
1 mom liked this
Good suggestion!!


Quoting NDADanceMom:

I have 2 type one diabetic kids. I suggest calling your local American diabetes association. They are the ones that should have sent you the whiz kids packet. They have resources to let you know your legal rights.

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momtoBrenna
by Silver Member on Mar. 7, 2013 at 11:57 PM
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I googled homeschooling laws in Michigan. What you are looking at would be called home bound instruction and that has to happen from your school district. My sister had to do it growing up due to seizures, they sent her out a teacher and she did everything from home. That was in Texas though. 

Quoting KelseyLynn:

Where did you read that? I don't have a degree, and it isn't really homeschool since he would be doing the school's work and taking their tests.



beadingmom17
by Rachel on Mar. 8, 2013 at 1:25 AM
Which county are you in? I'm in MI, too...Oakland County.

I believe you have to officially unenroll him and make it a homeschool situation. I don't believe you can just get the stuff from the school and bring him in for tests. Are you a SAHM? Any chance you can go in and give him the insulin?
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KelseyLynn
by on Mar. 8, 2013 at 5:14 AM
I do stay at home and I have offered to go on and do his insulin. The problem is between meals and insulin. He feels like his blood sugar is low and they check him. Usually every hour...so even if I did go do his insulin, there are still those times.


Quoting beadingmom17:

Which county are you in? I'm in MI, too...Oakland County.



I believe you have to officially unenroll him and make it a homeschool situation. I don't believe you can just get the stuff from the school and bring him in for tests. Are you a SAHM? Any chance you can go in and give him the insulin?

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KelseyLynn
by on Mar. 8, 2013 at 5:15 AM
I am on the border of Livingston and Washtenaw. His school is in Washtenaw.
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momto3infl
by Ruby Member on Mar. 8, 2013 at 5:23 AM

 You also need to go to the school board-that might get a nurse back in the school.  But as far as your question i agree with the momto Breena.  But I do know that from diabetics at our school who are checked 4-5 times a day no they dont allow them to do work while being watched for levels to go up or back.  We do have a nurse but also several of us TA plus office staff all had to take a diabetic class for in case we see the student around campus and office staff in case for some reason the nurses couldnt be in a day.

AMBG825
by on Mar. 8, 2013 at 6:11 AM

 I'm originally from MI now living in IN but still have quite a bit of family that live there. Quite a few of them are diabetics. Fortunately for you, one of the best hospitals for dealing with diabetic children is not far from you.

 

My DD is in kindergarten and is type 1 diabetic as well. A few suggestions. Apply for the grants to get either a diabetic dog or a pump, (or both) The pump makes things SOOOOOOO much easier. It does the testing for him and to deliver the insulin, just push a button. My DD is 6 (as of today) and she can operate it easily. Talk to the U of M children's hospital and see if they can get you started on helping you get a low cost pump.

 

Before my DD had the pump, she had a dog. The dog pretty much does the same thing. They can sense when the insulin levels go too high or low and alert you to test yourself. There are organizations to help you get one at no cost but there is a waiting period. PAWS and Dogs for Diabetics are 2 organizations to look into.

 

After that the PP had a good suggestion with contacting the American Diabetes foundation.

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