Does anybody have experience with Fibromyalgia?
Fibromyalgia runs in my family. My mom has it, as do two of my aunts and my grandma. I have been feeling symptoms of it for the past 4-5 years, a lot like how my mom did before she was diagnosed. I have tried talking to my mom, just to see if she could give me some insight on how she felt and exactly what she went through in her early days of Fibro. But she won't talk to me about it. So I tried talking to one of my aunts, and I got the same reaction from her. It's like they don't want to acknowledge that I may have it. So then a couple months ago I went to my doctor. I have severe chronic migraines, I take 100mg of Topamax a day to keep them under control. I went in for a follow up on the migraines originally, but had planned to bring up Fibro with her. The night before my appointment, I went on the National Fibromyalgia Association website and printed off a couple pages of symptoms, etc. I also wrote down what I've been experiencing and dealing with. When I got to my appointment, I talked to my doctor and went into great detail. The burning/aching pain in my upper back and neck; pain in my joints that gets worse when it's cold or rainy; always being exhausted; trouble falling asleep and staying asleep; IBS; Raynaud's; severe PMS (which I've read on a few websites can be part of Fibro); impaired memory and concentration; depression and anxiety (which I'm already being treated for); ringing in the ears; occasional dizziness; and of course my migraines. My doctor listened to me, but I'm not sure if she really took me seriously. She didn't throw out the idea of my having Fibro, but she didn't want to pursue that course. She examined my joints, my back, did some basic muscle tests, etc. She put me on a muscle relaxer called Robaxin...It's not really helping. She also put in a referral to a physical therapist for me, but being that my husband and I share a car and I don't have anyone to watch my daughter, I haven't gone yet. I went back to my doctor this past Monday (3/11) for a follow-up on the 100mg Topamax and the Robaxin. I had a bad cough and congestion in my lungs, and we got caught up in taking care of that. I forgot to talk about getting the Robaxin replaxed with something else that might help a little more. I have been experiencing a lot more anxiety though so she added a pill called BuSpar, which is supposed to help with anxiety when added to an anti-depressant (which I'm already on). I have to go back in another month for a follow-up on the BuSpar. When I go back in, I definitely need to get something different for the aches and pains.
Between the pain, the migraines that do get through the Topamax, and the overall exhaustion, I feel so bad for my kids. I try so hard to fight through it all so we can go out and do things on the weekends (my oldest in is in school during the week), but after even 30 minutes on my feet I need to rest.
I don't WANT to have Fibro, I'm not looking for something to be wrong with me, but I just feel like it's the only thing that explains what I'm going through, what I feel like, and nobody in my family will talk to me about it so I can at least get some support or advice.