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Does anybody have experience with Fibromyalgia?

Posted by on Mar. 15, 2013 at 4:08 PM
  • 8 Replies

Fibromyalgia runs in my family.  My mom has it, as do two of my aunts and my grandma.  I have been feeling symptoms of it for the past 4-5 years, a lot like how my mom did before she was diagnosed.  I have tried talking to my mom, just to see if she could give me some insight on how she felt and exactly what she went through in her early days of Fibro.  But she won't talk to me about it.  So I tried talking to one of my aunts, and I got the same reaction from her.  It's like they don't want to acknowledge that I may have it.  So then a couple months ago I went to my doctor.  I have severe chronic migraines, I take 100mg of Topamax a day to keep them under control.  I went in for a follow up on the migraines originally, but had planned to bring up Fibro with her.  The night before my appointment, I went on the National Fibromyalgia Association website and printed off a couple pages of symptoms, etc.  I also wrote down what I've been experiencing and dealing with.  When I got to my appointment, I talked to my doctor and went into great detail.  The burning/aching pain in my upper back and neck; pain in my joints that gets worse when it's cold or rainy; always being exhausted; trouble falling asleep and staying asleep; IBS; Raynaud's; severe PMS (which I've read on a few websites can be part of Fibro); impaired memory and concentration; depression and anxiety (which I'm already being treated for); ringing in the ears; occasional dizziness; and of course my migraines. My doctor listened to me, but I'm not sure if she really took me seriously.  She didn't throw out the idea of my having Fibro, but she didn't want to pursue that course.  She examined my joints, my back, did some basic muscle tests, etc.  She put me on a muscle relaxer called Robaxin...It's not really helping.  She also put in a referral to a physical therapist for me, but being that my husband and I share a car and I don't have anyone to watch my daughter, I haven't gone yet.  I went back to my doctor this past Monday (3/11) for a follow-up on the 100mg Topamax and the Robaxin.  I had a bad cough and congestion in my lungs, and we got caught up in taking care of that.  I forgot to talk about getting the Robaxin replaxed with something else that might help a little more.  I have been experiencing a lot more anxiety though so she added a pill called BuSpar, which is supposed to help with anxiety when added to an anti-depressant (which I'm already on).  I have to go back in another month for a follow-up on the BuSpar.  When I go back in, I definitely need to get something different for the aches and pains.

Between the pain, the migraines that do get through the Topamax, and the overall exhaustion, I feel so bad for my kids.  I try so hard to fight through it all so we can go out and do things on the weekends (my oldest in is in school during the week), but after even 30 minutes on my feet I need to rest.

I don't WANT to have Fibro, I'm not looking for something to be wrong with me, but I just feel like it's the only thing that explains what I'm going through, what I feel like, and nobody in my family will talk to me about it so I can at least get some support or advice.


by on Mar. 15, 2013 at 4:08 PM
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Mommy4-27-08
by Bronze Member on Mar. 15, 2013 at 4:16 PM
My doctor first brought it up with me actually. Funny part is he is like the 30th doctor I have seen and he is the first to mention it. My symptoms started around age 15 and I have seen 12 specialists and countless doctors and e.r. doctors. The pain used to get so bad my body would go into shock and eventually pass out. I would just tell her you think it might be that... But be prepared. My doctor warned me that fibromyalgia is the new diagnosis for everything that they don't know what it is and most doctors won't diagnosis with it because it can't be proven....
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Allisonc7910
by Allison on Mar. 15, 2013 at 4:45 PM

 I know that it is a diagnosis of exclusion usually.  I would find a good rheumatologist and go over all of your symptoms, joint pain and exhaustion are also signs of other conditions you need to be ruled out for like lupus, RA.  Seems funny that the doctor you saw didn't at least check your ANA (antinuclear antibodies) which can signify something autoimmune going on.  Fibro is commonly diagnosed by rheumys also so either way I would go that route.  Celexa and Cymbalta are usually good drugs for it, because it is like an antidepressant but also works on your pain receptors. 

pookie4907
by on Mar. 15, 2013 at 5:46 PM

I'm already on Celexa for my depression and anxiety...Altogether I'm on Celexa, Topamax, Robaxin, and BuSpar.  I was taking Fioricet too but my prescription ran out and I haven't asked for another one, I'm trying to avoid heavier pain meds if possible.

With the insurance we have, I have to get a referral from my regular doctor to see a specialist of any kind.  I'll bring up rheumatology at my next appointment and see what she says, thanks for the suggestion :)

Quoting Allisonc7910:

 I know that it is a diagnosis of exclusion usually.  I would find a good rheumatologist and go over all of your symptoms, joint pain and exhaustion are also signs of other conditions you need to be ruled out for like lupus, RA.  Seems funny that the doctor you saw didn't at least check your ANA (antinuclear antibodies) which can signify something autoimmune going on.  Fibro is commonly diagnosed by rheumys also so either way I would go that route.  Celexa and Cymbalta are usually good drugs for it, because it is like an antidepressant but also works on your pain receptors. 



elliotmommytobe
by on Mar. 15, 2013 at 5:49 PM
My symptoms started around 17 I got admitted to the er and they told me it was the flu. It happens often im now on flexiril and working on getting my medical card cause thats the only thing thats helped with any of the chronic pains I have
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Mznaye
by Member on Mar. 15, 2013 at 6:48 PM
Yes ask your dr. I was diagnosed very recently with it
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tansyflower
by on Mar. 15, 2013 at 7:29 PM
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Try a naturopath....western treatments are not nearly as affective as eastern treatments. Also look into adrenal fatigue syndrome. Many times people with fibro actually have exhausted adrenal glands and a good dr of oriental medicine can really help!
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happy2bmom25
by on Mar. 15, 2013 at 7:37 PM
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what is your diet like? are you seeing a professional for your depression and anxiety? Is there any way you can cope with your depression and anxiety without drugs?

have you ever tried eating a clean diet? have you ever considered a cleanse?

my dh is a chiropractor, and we have a patient that had fibro. she eats well and gets adjusted regularly and she is fine.

have you ever googled natural cures for fibro? it might be a great place to start.

(we love it when parents bring their kids into our office!)

Allisonc7910
by Allison on Mar. 15, 2013 at 7:55 PM

 Quoting pookie4907:

Gotcha, I hope you get everything sorted out.  These symptoms can be an enigma sometimes.

I'm already on Celexa for my depression and anxiety...Altogether I'm on Celexa, Topamax, Robaxin, and BuSpar.  I was taking Fioricet too but my prescription ran out and I haven't asked for another one, I'm trying to avoid heavier pain meds if possible.

With the insurance we have, I have to get a referral from my regular doctor to see a specialist of any kind.  I'll bring up rheumatology at my next appointment and see what she says, thanks for the suggestion :)

Quoting Allisonc7910:

 I know that it is a diagnosis of exclusion usually.  I would find a good rheumatologist and go over all of your symptoms, joint pain and exhaustion are also signs of other conditions you need to be ruled out for like lupus, RA.  Seems funny that the doctor you saw didn't at least check your ANA (antinuclear antibodies) which can signify something autoimmune going on.  Fibro is commonly diagnosed by rheumys also so either way I would go that route.  Celexa and Cymbalta are usually good drugs for it, because it is like an antidepressant but also works on your pain receptors. 


 

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