Louie broke out with a rash and its from his head to his toes. He's weak.
He's on a breathing monitor during the nights. we listen to it until we fall asleep.
I just want to make it go away, for my baby. I whisper to him when he's hurting and tell him things will get better.he's so sleepy and weak. It breaks my heart. He's got wires going in and out. Makes it hard to move around. The gi doctor is talking about putting him a feeding tube in so he makes sure he's holding some nutrients.
Its nights like these that I get so sad. My baby should not be fighting this beast. He should not have to go through this.but he is.
And Louie is fighting and we are proud. Sometimes overwhelmed. Maybe a little discouraged at times. But he is the best little fighter. We are blessed. Thanks everyone for your prayers.