Ask me anything - I am raising a medically fragile son
This is my son before his tracheostomy
This is Austin Carl (or Austin's Odyssey) and he is 2.5 years old. He was born on Halloween of 2010 6 days late. I had wanted a regular birth and my placenta stopped working properly a few days before he was born, detached, and the umbilical cord was wrapped around his neck. When he was born he was born blue. He was transferred out of my hospital St. Annes' and transferred to Nationwide Children's after a day and a half because he had his first seizures. He was diagnoised with Hypoxic Ischemic Encephalopthy (brain damage) and was one of the worse cases of brain damage they have seen.
In the years to come we were diagnosed with Spastic Quadriplegic Cerebral Palsy, Epilepsy including rate seizures that constantly plague our lives Infantile Spasms that make him regress. CVI (cortical visual impairment), Laryngomalacia, tracheamalacia, failure to thrive, g/j tube, GERD, Torticollis, vision abnormalities, dysphagia, deformation plagiocephaly, sialorrhea, developmental delay, elevated blood pressure, had 2 bowel obstructions (this year), aspiration pneumonia, small air way disease, hypertonia, stridor. He has had 5 surgeries this year including his tracheostomy which allows him to breath better by himself.
He has to be on a pulse ox 24/7 to keep his stats, has a suction machine that we have to do every half an hour at the very least, a vest machine that helps break his secretions up, a feeding pump to feed him, oxygen in the home, bipap machine, a wheel chair (as of Sept 16th when he gets it), and a cool mist machine
ASK ME ANYTHING!