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I'm a mom of a medically complex kiddo ask me anything

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This is Austin Carl (or Austin's Odyssey) and he is 2.5 years old. He was born on Halloween of 2010 6 days late. I had wanted a regular birth and my placenta stopped working properly a few days before he was born, detached, and the umbilical cord was wrapped around his neck. When he was born he was born blue. He was transferred out of my hospital St. Annes' and transferred to Nationwide Children's after a day and a half because he had his first seizures. He was diagnoised with Hypoxic Ischemic Encephalopthy (brain damage) and was one of the worse cases of brain damage they have seen.

In the years to come we were diagnosed with Spastic Quadriplegic Cerebral Palsy, Epilepsy including rate seizures that constantly plague our lives Infantile Spasms that make him regress. CVI (cortical visual impairment), Laryngomalacia, tracheamalacia, failure to thrive, g/j tube, GERD, Torticollis, vision abnormalities, dysphagia, deformation plagiocephaly, sialorrhea, developmental delay, elevated blood pressure, had 2 bowel obstructions (this year), aspiration pneumonia, small air way disease, hypertonia, stridor. He has had 5 surgeries this year including his tracheostomy which allows him to breath better by himself.

He has to be on a pulse ox 24/7 to keep his stats, has a suction machine that we have to do every half an hour at the very least, a vest machine that helps break his secretions up, a feeding pump to feed him, oxygen in the home, bipap machine, a wheel chair (as of Sept 16th when he gets it), and a cool mist machine


by on Sep. 5, 2013 at 8:31 PM
Replies (11-20):
by Silver Member on Sep. 6, 2013 at 2:02 PM

 no questions, just ((((hugs))))

by Joy on Sep. 6, 2013 at 3:16 PM
1 mom liked this

i have a miracle baby also , he is 13 now

by on Sep. 6, 2013 at 6:55 PM

 he is so cute god bless you all :)

by on Sep. 6, 2013 at 10:53 PM

thank you!

Quoting calsmom62:

well said

Quoting Imjustinsmommy:

I have no questions.. i just wanna say im sorry for all the challeneges you & your  son had to go through & i pray for  your family.  also, thank you for reminding me of my blessings.

by Silver Member on Sep. 7, 2013 at 2:31 AM

No questions.  He is such a cutie!

by on Sep. 7, 2013 at 4:17 AM
Do you have a favorite nurse throughout hospital visits or Dr appointments? If so what did they do to make them your favorite?

Austin is such a handsome boy. Hats off to tou and Daddy.
by on Sep. 7, 2013 at 4:19 AM
What took so long (due sept 16th) to get him his wheelchair? Or is he getting a new one?
by on Sep. 9, 2013 at 10:41 AM
1 mom liked this
he definitely is smiling. he's such a happy kiddo!!!

Quoting Imjustinsmommy:

you are blessed with you dh & even your son of course.. im sure you are finding  a lot of  strength through this. i wish you had it easier though.. thanks for sharing your story. bless you & your sweet boy. i love the 2cd pic.. he looks like he is smiling?

Quoting special.mama:

Oh I figure God has a plan for us and I am so blessed to have my wonderful husband. He's an amazing person and has taught me soooo much.

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by on Sep. 9, 2013 at 10:42 AM
because we wanted to do a vbac! I always wanted a natural birth

Quoting Bonneata:

Hugs to you. I have one question why did they let you 6 days past your due date? 

Posted on CafeMom Mobile
by on Sep. 9, 2013 at 10:42 AM
we got onw nurse and had her before the trach since he needs soooo much care.

Quoting romanceparty4u:

Do you have in home nursing care?  If not, why?

I'd think the trach would be the determining factor (if  you live in the US)

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