Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Please help pics included *warning graphic description included* *UPDATE IN RED **

Sorry it has taken so lon to get back to you ladies but Jaxson has not been doing too well.... He still refuses to eat and has drank about a total of 4oz today... At his checkup he weighed 36lbs today and was very lathargic. He was placed in an abulance and taken out of state to another hospital... The said they are unlikely to have answers to his problems but are treating him for dehydration and will do what they can to get him in with a specialist in regards to his tummy and neurological issues after they release him pending him perking up... So still no answers or explanations :( It is like no one but me and his daddy cares :( 

when my son was a baby he constantly battled tummy troubles constipation/projectile vomiting/severe diarhea this has plagued him his whole life (he is 5 now 6 in June) no one has ever figured out what is going on with him he has littereally been to 5 different hospitals and seen multiple specialists and been tested for everything from ciliac to food allergies and no results to date. At 22 months old he had is first seizure. He has them randomly still. He also began having episodes of swelling and rashes that were diagnosed as an autioimmune disease and thyroid condition. He cant seem to keep on weight (at 5 years old weighing in at 37lbs). He has Adhd. He has been complaing about belly pain for the past 8 weeks at least, seen numerous drs and still no diagnosis.He has started refusing to eat and drink or eating very little (about 1/8 normal) After thinking thing were looking up (SEIZURE FREE 6 MONTHS) he had his worst seizure to date which warranted a trip to the er last night. Thius was different then his normal seizures and took us a long time to get him recovered from. He had gotten in trouble for misbehaving. His little body froze and became arched. His arms and legs though completely stiff were slightly twitching. He turned blue. He stopped breathing for 3 minutes. His pupils were fixed and dialated for 4 minutes while he seized. Roled back pointed to the right. He wet himself. After the seizure.. He broke out in a rash all over, that resolved on its own... His pupils rapidly dialated and undialated for several minutes on their own. He was confused/disoriented for at least 15 minutes. He could not control his emotions. He went back to what he was doing preseizure after 'snapping out of it" He has seen multiple neurologist and has one that finally 2 years ago started him Keppra. But we have no clue why he has these problems of why he has the seizures or why any of this is happening or how to help our baby.... Please anyone have any answers or suggestions Here we are after gighting for nearly 6 years and no closer to and answer.. If nothign please copy and paste into other grooups or bump to help me help him.. pics of the rash.....

by on Jan. 3, 2014 at 7:50 PM
Replies (21-22):
by Gold Member on Jan. 7, 2014 at 1:27 AM
by on Jan. 7, 2014 at 4:43 AM
Hopefully, the new hospital will find out the problem and help him out. Wishing him well. Prayers for you all!
Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

close Cafemom Join now to connect to other members! Connect with Facebook or Sign Up Using Email

Already Joined? LOG IN