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PRAYERS PLEASE!!! update from todays appointment :) 1/13/09 update in purple

Posted by on Jan. 2, 2009 at 8:10 PM
  • 198 Replies

(Here is my brave little man....... 11/17/08.)

 1/1/09     Well Monday January 5th we go back to All Childrens for another MRI....  not happy about ds being put under anesthia again.  I am most upset though because we had a follow up appt with a pedatric oncologist at Moffitt Friday the 9th (had it scehduled since November) well his office called me yesterday and cancelled his appointment!!!!  She said he could not be seen until February!!!!  Needless to say I started crying so she said she would talk to Dr and call me Monday- she said maybe they could fit him in another time!  I am sooo upset.... I worry everyday but at least had in my mind we would know something Jan. 9th.  DH got time off work which is hard to do for appointment and everything. 


PLEASE keep ds in your prayers for Monday and hopefully Dr will see him sooner than February.......  Thanks!  I am a nervous wreck again!

THANK YOU EVERYONE!!!  For immediately responding with support!
Sorry more details were not in the post- I am sooo worried my mind is elsewhere. He has a mass on the inside of his wrist.  In November he had a biopsy done as well as a MRI, ultrasound, xrays, etc at All Children's.  They referred him to a pediatric oncologist at Moffitt Cancer Center (the Dr is supposedly world renowned "mass specialist".  They did not know after tests in November what it was so we are going Monday for more anesthsia for another MRI and then follow up in person with cancer Dr. (Previously he did not see son was only brought in by two different dr's to review test results and consult)  This has all been going on since October so I am emotionally drained....
Hopefully that helps fill in missing pieces- I will reread tomorrow and make sure I am making sense.
1/5/09=  we just got home from All Children's....  so far so good :)  Little man just crashed, I think he was glad to be back home in his bed :)  We got lucky and had the same anesthesiologist that treated him in November so that made me feel better.  Now I am just waiting for a call back from the cancer dr's nurse to reschedule the appointment from this coming Friday they cancelled.....  I know we still do not know what the mass is but at least we are one step closer after today...  I keep reminding myself one day at a time.  I tell you what though- poor little guy is going to have me hovering all day just to make sure he is completely okay :)
WE GOT AN APPOINTMENT WE GOT AN APPOINMENT :)  We go see the Dr. at Moffitt next Tuesday the 13th..... 

apparently they only see kids at a "satellite" office on certain days.  Since they cancelled our appointment for this Friday and probably since I cried.... they are seeing us Tuesday the 13th at the main Moffitt location... :)

Thanks to everyone for all the support, prayers and kind words, it means the world.  We are one step closer to having an answer for my handsome little man!!!!
1/13/09  Okay- today we go to Moffitt and they say Dr. we were supposed to see out on family emergency (maybe that was why this past Fridays was cancelled, oh well anyway...) I get nervous til they tell me name of Dr. we will see instead.  I knew his name from months of research and waiting.  We got to see the HEAD of the Sarcoma department- a Dr who research said good things about.... anyway LOVED HIM, he was great!!!  Said ds's tumor is benign!!!!!!  and actually very common.  Said Dr. at All Children's sent him over  because tumor even though common my ds's did not present as "text book case" so they didn't know what it was.  He advised should not be any permanent damage, watch it, any changes call immediately otherwise come back in six months.  He measured it.  I asked if we needed ANOTHER MRI in six months and he said at this time no- he doesn't want little ones like this put under any more than needed. he said often kids out grow these tumors and he may never need surgery... we will just have to wait and see.
I cannot begin to thank you ladies enough for all the prayers and encouraging words.  I feel like today an enourmous weight has been lifted from my shoulders- thank you and hopefully he outgrows it within the next year :)
by on Jan. 2, 2009 at 8:10 PM
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Replies (1-10):
by on Jan. 2, 2009 at 8:11 PM

I will keep you and your little guy in my thoughts and prayers.  I reallly hope that they can get you in earlier than February.  

by Silver Member on Jan. 2, 2009 at 8:12 PM

I hope you can get your little guy into the doctor sooner than feb. Its always really hard having to waiting and not knowing whats going one. You're in my thoughts.

by on Jan. 2, 2009 at 8:12 PM

awwwwwwww what a both will me in my thoughts and prayers.

by on Jan. 2, 2009 at 8:12 PM

Oh honey I am so sorry. What is wrong? If you don't mind me asking? I will keep you all in my thoughts and prayers.

by on Jan. 2, 2009 at 8:12 PM

I'll pray what seems to be the problem? I hate seeing that i.v. it breaks my heart hugs

by on Jan. 2, 2009 at 8:12 PM

Oh my goodness!  I hope you can get an appointment ASAP!  I'll be praying that they'll find him to be completely healthy when they do any testing on him.  I ask this very moment in the name of Jesus that he be healed from and of any sickness or cancer in his tiny body.  Amen!


by on Jan. 2, 2009 at 8:12 PM

I will keep him in my prayers!

boy n girlCohen April 2006 and Makayla July 2003

expecting boy Brandon due April of 09!

by on Jan. 2, 2009 at 8:12 PM

I will pray that you get in to the Doctor sooner rather than later and I pray that they find answers for you about your little one.

Is there anything in particular that they are checking for?

by on Jan. 2, 2009 at 8:12 PM

I just logged on.....he is so adorable. I can't believe the MD office is being so lax. I am sorry! Poor baby. He is beautiful. Best wishes for him.

by on Jan. 2, 2009 at 8:13 PM

i hope your little one does ok good luck im sorry to hear your going through a hard time

im married to military but hate the army,co-sleeping,montissori schooling,athiest,pro choice,breastfeeding kinda gal so now that we got that outta the way its nice to meet you

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