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Poland's Syndrome?

Posted by on Aug. 25, 2009 at 6:41 PM
  • 13 Replies

My son was just diagnosed and I was hoping to find other moms who's kids have this.  I've been researching it and it's supposed to be very rare, but I'm hoping there's someone out there who'd like to talk.......

 


 

by on Aug. 25, 2009 at 6:41 PM
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Replies (1-10):
KimmyShaw
by Ruby Member on Aug. 25, 2009 at 6:46 PM
bump



MissiHampt
by on Aug. 25, 2009 at 7:05 PM

Thank you!

Quoting KimmyShaw:

bump


 


 

Rie03
by on Aug. 25, 2009 at 7:13 PM

BUMP! 

Lilypie - Personal pictureLilypie

Lilypie - Personal pictureLilypie

Lilypie - Personal pictureLilypie
MissiHampt
by on Aug. 25, 2009 at 7:30 PM

Thanks, Mama!

Anyone?  Please.....?

Quoting Rie03:

BUMP! 


 


 

Cafe GroupAdmin
by Head Admin on Aug. 25, 2009 at 7:34 PM

 

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,

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Ladyinthewater
by on Aug. 25, 2009 at 7:35 PM

unless it means you just found out he's polish i can't help ya but i will BUMP! 


Good luck mama!!

I am a almost 30 yr old mommy I am a SAHM that's hates her life as just a mommy and a wife I love my son to death he is my heart and soul I love my husband and he is my honey bunches of oats. my mom and my sister are my best friend. i do spank my child i do support making marijuana legal i don't believe in CIO and I think the ERFing is stupid, I let my kid eat what he wants and play video games i am not here for your approval but i do like a good debate ya don't like it tough you wanna know more cool




chiamom123
by on Aug. 25, 2009 at 7:36 PM

bump

fwkitten2008
by on Aug. 25, 2009 at 7:38 PM

http://www.polands-syndrome.com/


Named after Sir Alfred Poland, Poland's Syndrome is described as an absence or underdevelopment of the chest muscle (pectoralis) on one side of the body and webbing of the fingers (cutaneous syndactyly) of the hand on the same side (ipsilateral hand). Sometimes referred to as "Poland anomaly," it is a rare condition present at birth (congenital). For people born with Poland's Syndrome, the breastbone portion (sternal) of the pectoralis is also missing.

The severity of Poland's Syndrome differs from person to person and is often not diagnosed or reported. The incidence, therefore, is difficult to determine, but current estimates are between one in 10,000 to one in 100,000 births.

Poland's Syndrome is three times more common in boys than girls, and affects the right side of the body twice as often as the left. The reasons for these differences are unknown, as is the cause.

A baby with
Poland's Syndrome
is born in the
United States
every
1 to 10 days.

No one knows why.

Meet and learn about some of them on the People page!



Clinical Signs of Poland's Syndrome

Very Frequent Signs

  abnormal gastrointestinal tract (digestive system)
  absent pectoral muscles (muscles of the chest)
  brachydactyly (shortness of the fingers)
  dextrocardia (heart is on the right side of the body)
  diaphragmatic hernia/defect
  humerus (bone of the upper arm) absent/abnormal
  liver/biliary tract anomalies
  maternal diabetes
  oligodactyly (missing fingers)
  radius (bone of the lower arm) absent/abnormal
  rhizomelic micromelia
  syndactyly of fingers (fused together)
  ulna (bone of the lower arm) absent/abnormal
  upper limb asymmetry (arms not symmetrical)

Frequent Signs

  abnormal rib
  hypoplastic (underdeveloped)/absent nipples
  scapula (shoulder blade) anomaly

Occasional Signs

  agenesis/hypoplasia (underdevelopment) of kidneys
  encephalocele/exencephaly (prutrusion of brain tissue)
  abnormal morphology of hypothalamic-hypophyseal axis
  abnormal function of hypothalamic-hypophyseal axis
  microcephaly (smaller circumference of head)
  preaxial polydactyly
  ureteric anomalies (reflux/duplex system)
  vertebral segmentation anomaly


MissiHampt
by on Aug. 25, 2009 at 8:04 PM

LOL!  Thanks for making me giggle, I needed it.

No, he's not Polish.

He's missing one of the muscles on the right side of his chest and has abnormally short fingers.  He also has a few upper GI issues that might be related.  He'll probably require an MRI to determine if anything else on the inside is out of place or missing, and as an adult or late teen he'll have reconstructive surgery to fill in the gap where the muscle in his chest should be. 

The scary part is that apparently kids with this disease are more likely to have lymphoma, lukemia, or scoliosis.  Those things scare me more than the actual Poland's Syndrome.

Quoting Ladyinthewater:

unless it means you just found out he's polish i can't help ya but i will BUMP! 

 

Good luck mama!!


 


 

withsecond
by on Aug. 25, 2009 at 8:06 PM

Sorry I don't know about this but here's a bump to keep you going...

 

bump 

Wife to Seanin loveMom to Michael 11 years old teen boy




Aedan 17 monthstoddler boyand pregnant with a boy! Due October 3rd! pregnant belly

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