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Anyone?! I was assuming the non vaxers could help me with a bit of info!

Posted by on Nov. 10, 2012 at 1:56 PM
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Hi,

  I am wondering if there is any information out there, that is reliable and credible about vaccines and connective tissue diseases.  

  I am not wondering if vaccines cause, but rather if a child has a connective tissue disease, what can happen to that child. 

  My son has always had respiratory problems since birth, and I had decided to delay shots with him before he was even born until age two.  At age two I decided to give him just the Hib, even though something in my gut was saying NO!  My two previous children had always been vaccinated, yet with my third, something told me before he was even born to withhold.  So anyway, at age two he recieved the Hib.  On September 1st.  Well, on September 20th he had a horrible breathing episode that required a hospital stay.  Since that time, he has had flareups every TWO MONTHS.  And these flare ups do not respond to steriods or anything.  After eight visits to Rochester.  And two to Amplatz, they figured out after a  CT that he has a deformed upper right bronchial tube.  He also has a narrow subglottis and a mild concaved chest.  The pulmologist is having us come back down to check him for connective tissue diseases as she does not believe in coincedences.  Nor do I. 

  So, anyway, I am thinking that what happened is, although he has had this rare congenital defect since birth, I always believed the vaccine worsened his condition.  NEVER was he hospitalized until twenty days passed the vaccine, and we have been living a personal hell with his flareups every two months since.  I am so grateful that I listened to my mother instincts when he was born, I do believe had he recieved the Hep at birth, he would have died.  I can't sugar coat that assumption. 

  So, I'm looking for information about children who have immune disease, or connective tissue disease and how vaccines affect them.  I am not wondering so I can vaccinate him, because I KNOW he shouldn't be.  And, I stopped vaccinating with all of my children the day he was born.  Please help me, as this has been a never ending war. And we do have a diagnosis, yet I'm still trying to get all the pieces to the puzzle together! 

  Thanks ladies!!

by on Nov. 10, 2012 at 1:56 PM
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Replies (1-9):
emmy526
by New Owner on Nov. 10, 2012 at 3:06 PM

Most moms on here don't vaccinate,  but i'd be interested in knowing too...vaccines affected my oldest so badly, I listened to my gut with subsequent kids, and didn't vax them.  Have you filed a report with VAERS? if not, i suggest you do so...at least it will be on record...what did his dr have to say about the vaccine and possible association with his development of breathing issues? Does he acknowledge the vaccine could possibly be to blame? Or is he in denial?

coelmommy824
by Member on Nov. 10, 2012 at 5:44 PM

Well, he has seen so many different doctors.  And the one who initially gave him the vaccine of course didn't think it had anything to do with the vaccine.  Nor did they know what he had going on.

I understand that most moms on here don't.  That is why I thought I would ask here because I figured they would be brushed up on any info about who shouldn't be vaccinated.  Like, what the medical community admits to! 

I thought I understood at one point that kids with immune diseases shouldn't be vaccinated and that it was a well known fact.  Yet I can find nothing supporting this.  Wish that the non vaccinating community could help me figure this out. 

No doctor accepts this theory, as I have only shared it with two. My main objective was getting a diagnosis.  I have that now.  But still piecing the rest together.  Thanks

emmy526
by New Owner on Nov. 10, 2012 at 7:34 PM

Of course the dr who administered the vax is going to deny it...have you looked thru any forums/links on here yet that mite address your concern?  there could also be links within a post on a certain website that might be helpful...i'll see what i can dig up.   Oh, and the medical community does NOT admit to much, even to a parent's face, and i have known parents who have been down right deceived/lied to directly to their face regarding vaccine safety and efficacy.  

Isabelles_mommy
by Bronze Member on Nov. 10, 2012 at 8:18 PM

I don't know. My child is completely unvax.  But I can do some research to see if I can find  anything. I'd also go to a natural dr, Like a homeopath. 

Most moms on here, like me, tend to do alot of research, so hopefully someone came across something connecting the two. And i agree that Dr's tend to sweep things under the rug when it comes to vaccines.

Isabelles_mommy
by Bronze Member on Nov. 10, 2012 at 8:26 PM

I also copy and posted this post on the facebook group "choose to not vaccinate." I hope someone has some info.


ruthie11617
by Member on Nov. 10, 2012 at 8:39 PM


Quoting coelmommy824:

Well, he has seen so many different doctors.  And the one who initially gave him the vaccine of course didn't think it had anything to do with the vaccine.  Nor did they know what he had going on.

I understand that most moms on here don't.  That is why I thought I would ask here because I figured they would be brushed up on any info about who shouldn't be vaccinated.  Like, what the medical community admits to! 

I thought I understood at one point that kids with immune diseases shouldn't be vaccinated and that it was a well known fact.  Yet I can find nothing supporting this.  Wish that the non vaccinating community could help me figure this out. 

No doctor accepts this theory, as I have only shared it with two. My main objective was getting a diagnosis.  I have that now.  But still piecing the rest together.  Thanks

I believe if you actually read the vaccine inserts they say that people who are immune-compromised should not have vaccines...at least the live virus vaccines. Not sure about the others. The only one I have read thoroughly in recent months is the insert for DTaP and I remember seeing it there, along with the statement that those with uncontrolled seizures should not have that vaccine (which covers my older son and was why I was reading it).

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coelmommy824
by Member on Nov. 10, 2012 at 9:19 PM

No, actually the inserts and on the CDC only mention if the child is compromised at that moment ie. an illness.  Not about if they have an immune disease.  I would just like a little more direct information in regards to that rather then vague explanations.  Thanks so much for digging for me ladies, it's very hard to find info on this. 

I am well aware of Drs. stances on vaccines as I have seen several during the duration of us doctoring for my son.  We have seen every kind of specialist you can imagine, most of whom tell us to get him up to date.  I refuse, because my mother instinct is getting some big red flags.  But, I'm not going to sit and argue with a doctor about it, nor do I care to.  I have been battling a war to even get a diagnosis and living with watching my son unable to breath every two months.  Luckily we were just given oxygen for at home and a game plan.  But in a few years if this is unresolved we could be looking at his bronch tube and a section of his lung being removed.  So, the vaccine issue hasn't been a priority and irregardless I'm not vaxing him.  Just want to put more pieces together, as I have an extensive amount of medical records and information. 

Thanks again ladies, please do let me know what you find! 

Isabelles_mommy
by Bronze Member on Nov. 11, 2012 at 9:45 AM

here's what the 2 people from the other site posted..

" I don't have any link or information, but i can say my son also had breathing problems. He started shortly after birth with trouble breathing. He was in and out of the hospital on steroids, breathing treatments and oxygen. His first three years were like this. I stopped vaxing at 3 and his bouts of illness slowly came further apart. He is almost 13 now and still get strep and colds about 5x's a year, but no issues with breathing. Sorry i can't offer any information, but she is not alone. Just keep researching and talking to other moms. I find that helps me a lot."

and

" I suggest she read & listen to Dr Viera Schreibner to see if she has anything to say about this"

jax324
by New Member on Nov. 11, 2012 at 6:04 PM
Just someplace to start. You obviously aren't the only person that sees a relationship.....

http://www.ncbi.nlm.nih.gov/m/pubmed/10622677
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